Nursing interventions to support family caregivers in end-of-life care at home: A systematic narrative review

Becqué, Yvonne N.; Rietjens, Judith; Driel, Anne Geert van; Heide, Agnes van der; Witkamp, Erica

doi:10.1016/j.ijnurstu.2019.04.011

Cited by 54 publications

(64 citation statements)

References 37 publications

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“…A review between 2003 and 2013 found that only a few interventions directed at families had an effect on bereavement outcomes, 25 however, a recent review of nursing interventions delivered to family members in end-of-life care at home demonstrated that interventions, especially those where different components were combined, such as peer support and psychoeducation, were beneficial for preparedness, competence, reward, and on reducing the burden of the family member. 138 Previous research on supportive interventions to bereaved children have shown varying effects on outcomes such as self-esteem and symptoms of anxiety and depression. 129,139 In this thesis, only minor changes were reported in a few variables by the young adults, despite support group participation, however, without control or matched comparison groups it is not possible to assess how the support group participation has affected the results in this thesis.…”

Section: Sample Reflectionsmentioning

confidence: 99%

Bereavement stressors and psychosocial well-being of young adults following the loss of a parent – A cross-sectional survey

Lundberg

Forinder

Olsson

et al. 2018

European Journal of Oncology Nursing

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Section: Sample Reflectionsmentioning

confidence: 99%

Bereavement stressors and psychosocial well-being of young adults following the loss of a parent – A cross-sectional survey

Lundberg

Forinder

Olsson

et al. 2018

European Journal of Oncology Nursing

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“…Even though there are no data from research in the home care setting to compare the effectiveness of such an intervention on family caregivers' anxiety, depression, and burden, comparisons with studies in the palliative care setting show agreement in the improvement of the burden experienced ( 58 , 59 ). However, the differences between the studies with the present in the changes shown for anxiety and depression might be due to the period characterizing palliative care ( 58 , 59 ).…”

Section: Discussionmentioning

confidence: 99%

Developing and Assessing the Effectiveness of a Nurse-Led Home-Based Educational Programme for Managing Breathlessness in Lung Cancer Patients. A Feasibility Study

et al. 2020

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Introduction: Breathlessness is the most common and refractory symptom in lung cancer patients. Even though various educational programmes have been developed, only a few were intended for implementation in the home setting for its management. Aim: Feasibility of a study for implementing a nurse-led educational programme for breathlessness management of lung cancer patients at home. Method: A randomized feasibility study was undertaken between February 2017 and October 2018. Patients were recruited through referral from oncologists from two oncology centers in Cyprus under certain inclusion and exclusion criteria. Patients were randomized in the intervention or control group via a computer programme, and their named family caregivers (f.c.) were allocated in the same group. Participants were not blinded to group assignment. The intervention consisted of a PowerPoint presentation and implementation of three non-pharmacological interventions. The control group received usual care. Patients were assessed for breathlessness, anxiety, and depression levels, whereas f.c. were assessed for anxiety, depression, and burden levels. F.c. also assessed patients' dyspnea level. The duration of the study process for both the intervention and control group was over a period of 4 weeks. Results: Twenty-four patients and their f.c. ( n = 24) were allocated equally in the intervention and control group. Five patients withdrew, and the final sample entered analysis was 19 patients and 19 family caregivers. In the intervention group n = 11 + 11, and in the control group n = 8 + 8. In the intervention group patients' breathlessness and anxiety levels showed improvement and their f.c.s in the anxiety and burden levels. Major consideration was the sample size and the recruitment of the patients by the referring oncologists. Attrition was minor during the study process. No harm was recorded by the participants of the study. Conclusions: The study provided evidence of the feasibility of the implementation of the educational programme. For the future definitive study major consideration should be patients' recruitment method in order to achieve adequate sample size. Moreover, qualitative data should be collected in relation to the intervention and the involvement of f.c. The feasibility study was registered to the Cyprus Bioethics Committee with the registration number 2016/16. There was no funding of the study.

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“…We identified four intervention components: psychoeducation, needs‐assessment, practical support with caregiving and peer support. This review showed that multicomponent nursing interventions were the most successful, whereas needs‐assessment seems to be one of the most effective single components (Becqué et al, ).…”

Section: The Studymentioning

confidence: 99%

“…Nurses are in a unique position in primary health care to support family caregivers. However, little is known about which nursing interventions are effective on family caregivers' well-being (Becqué, Rietjens, van Driel, van der Heide, & Witkamp, 2019;Hudson, Remedios, & Thomas, 2010).…”

Section: Introductionmentioning

confidence: 99%

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The effectiveness of a nurse‐led intervention to support family caregivers in end‐of‐life care: Study protocol for a cluster randomized controlled trial

Becqué

Rietjens

Heide

et al. 2020

Journal of Advanced Nursing

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Aim To evaluate the feasibility of a structured nurse‐led supportive intervention and its effects on family caregivers in end‐of‐life care at home. Background Family caregivers are crucial in end‐of‐life care. They may experience burden due to the responsibilities associated with caregiving. Some family caregivers feel insufficiently prepared for their caregiver role. Nurses have a unique position to provide supportive interventions at home to reduce caregivers’ burden and improve preparedness. However, few nurse‐led interventions are available to support family caregivers in end‐of‐life care at home. Design We will perform a cluster randomized controlled trial. The clusters consist of twelve home care services, randomly assigned to the intervention group or the control group. Methods The study population consists of family caregivers of patients in the last phase of life. In the intervention group, nurses will systematically assess the supportive needs of family caregivers, using an assessment tool and the method of clinical reasoning. Family members of the control group receive care as usual. Primary outcome is burden measured by the Self‐Rated Burden Scale. Secondary outcomes are preparedness for caregiving, caregiving reactions and acute (hospital) admissions of the patient. In addition, the feasibility of the intervention will be evaluated. The study was funded in October 2016 and was ethically approved in April 2019. Impact Findings from this study will contribute to the scientific and practical knowledge of nursing interventions to support family caregivers in end‐of‐life care. Trial registration The Netherlands Trial Register (NL7702).

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Nursing interventions to support family caregivers in end-of-life care at home: A systematic narrative review

Cited by 54 publications

References 37 publications

Bereavement stressors and psychosocial well-being of young adults following the loss of a parent – A cross-sectional survey

Bereavement stressors and psychosocial well-being of young adults following the loss of a parent – A cross-sectional survey

Developing and Assessing the Effectiveness of a Nurse-Led Home-Based Educational Programme for Managing Breathlessness in Lung Cancer Patients. A Feasibility Study

The effectiveness of a nurse‐led intervention to support family caregivers in end‐of‐life care: Study protocol for a cluster randomized controlled trial

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