Nursing genetics and genomics: The International Society of Nurses in Genetics (ISONG) survey

Abstract

Findings provide a foundation for developing additional educational programs for an international nursing workforce in genomics.

The 2019 US medical genetics workforce: a focus on clinical genetics

“…The important roles of the other members of the interdisciplinary team seeing genetics patients and their workforce issues have been previously addressed. 6 , 7 …”

Randomized controlled trial on the effectiveness of web‐based Genomics Nursing Education Intervention for undergraduate nursing students: a study protocol

“…Research has shown that progress in genetic–genomic knowledge has led to an expanded role for nurses as genetic counsellors (Consensus Panel on Genetic/Genomic Nursing Competencies, 2009; Hickey et al, 2018; Jenkins & Calzone, 2007; World Health Organization, 2020). Furthermore, the nursing profession can play a crucial role for successful adoption of genetics–genomics discoveries in healthcare services (Bancroft, 2013; Beery et al, 2018; Calzone et al, 2010; Calzone, Jenkins, Bakos, et al, 2013).…”

“…Furthermore, the nursing profession can play a crucial role for successful adoption of genetics–genomics discoveries in healthcare services (Bancroft, 2013; Beery et al, 2018; Calzone et al, 2010; Calzone, Jenkins, Bakos, et al, 2013). As the most trusted healthcare profession, nursing has the responsibility for integrating and translating genomic care into practice (Calzone et al, 2010; Hickey et al, 2018). It is essential for nurses to develop roadmaps on how to include genetics–genomics into nursing practice, education and research (Calzone, Jenkins, Bakos, et al, 2013; Chuang et al, 2013; Kirk, Calzone, Arimori, & Tonkin, 2011; Lea, Skirton, Read, & Williams, 2011; Williams et al, 2017).…”

“…However, there are gaps in the research literature on how to effectively integrate genomics science in nursing education and clinical practice (Bancroft, 2013; Camak, 2016; Hickey et al, 2018; Munroe & Loerzel, 2016; Ward, 2017; Ward, Haberman, & Barbosa‐Leiker, 2014). Current literature shows major challenges in preparing nurses in the field of genetics–genomics including lack of knowledge, confusion, misconceptions and inadequate training regarding foundational genetics–genomics concepts (Bancroft, 2013; Hickey et al, 2018; Ward, 2017). Even more difficult in incorporating and using the recent advances in genomic health care are the disparities and limitations in genetics–genomics content across nursing curricula (Camak, 2016; Munroe & Loerzel, 2016).…”

Educational and Ethical Considerations for Genetic Test Implementation Within Health Care Systems

“…51 However, there are approximately n = 350 nurse clini-cian, educator, and scientist members in the professional advocacy organization for genetics/genomics and approximately n = 425 graduates of the NIH National Institute of Nursing Research's (NINR) Summer Genetics Institute. [51][52][53] To facilitate content translation to the broader nursing community, essential genetic and genomic competencies, curricula guidelines, and outcome indicators were developed for U.S. entry level and advanced practice nurse programs and were endorsed and implemented by numerous professional nursing accreditation and certification organizations. 54,55 Knowledge standards for omic science doctoral nursing research programs were recently developed, in addition to genetic and genomic competencies for nursing informatics.…”