Objective-To describe nurse behaviors that assisted parents to make life support decisions for an extremely premature infant before and after the infant's birth.Design-Qualitative, longitudinal, collective case study where interviews were done pre-and postnatally and medical chart data were collected.Setting-Interviews were conducted face-to-face in a private room in the hospital, in the mother's home, or over the telephone.Participants-A sample of 40 cases (40 mothers, 14 fathers, 42 physicians, 17 obstetric nurses, 6 neonatal nurses, and 6 neonatal nurse practitioners) was recruited from three hospitals that provided high risk perinatal care. Parents were at least 18 years of age, English speaking, and had participated in a prenatal discussion with a physician regarding treatment decisions for their infant due to threatened preterm delivery. Physicians and nurses were those identified by parents who had spoken to them about life support treatment decisions for the infant.Methods-Using a semi-structured interview guide, a total of 203 interviews were conducted (137 prenatal, 51 postnatal, and 15 end-of-life). For this analysis, all coded data related to the nurse's role were analyzed and summarized.Results-Parents and nurses both described several nurse behaviors: providing emotional support; giving information, and meeting the physical care needs of mothers, infants, and fathers. Physicians' description of the nurse behaviors focused on the way nurses provided emotional support and gave information.
Conclusions-Nurses play a critical role in assisting parents surrounding life support decisions.Keywords decision making; role of nurses; parent support; life support decisions Life support decisions for infants surrounding a pregnancy with a threatened preterm delivery between 22 and 25 weeks gestation remain challenging for parents and clinicians (Batton, 2009;Chiswick, 2008). Despite the gains in survival rates of preterm infants from 1965 to 1995, the rates have not improved in the last decade (Meadow & Lantos, 2009 1. Life support decisions for infants surrounding a pregnancy with a threatened preterm delivery between 22 and 25 weeks gestation remain challenging for parents and clinicians.
2.For both parents and nurses, providing emotional support was the most commonly reported way that nurses assisted parents during decision making.3. Parents reported that nurses played a very important role as parents were making critical decisions.NIH Public Access