Nursing care for people dying from chronic obstructive airways disease

Skilbeck, Julie; Mott, Laurie; Smith, Diane A.; Page, Hilary; Clark, David

doi:10.12968/ijpn.1997.3.2.100

Cited by 16 publications

(10 citation statements)

References 2 publications

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“…’s (2001) comparative study, for example, found that 39% of end‐of‐life COPD patients had contact with DNs (compared with 50% in patients with malignancy) but it did not go further to discuss the actual interaction. This was similar in studies by Skilbeck et al. (1997) and Elkington et al.…”

Section: Introductionsupporting

confidence: 91%

“…Edmonds et al's (2001) comparative study, for example, found that 39% of end-of-life COPD patients had contact with DNs (compared with 50% in patients with malignancy) but it did not go further to discuss the actual interaction. This was similar in studies by Skilbeck et al (1997) and Elkington et al (2005). Skilbeck et al's (1998) later study did in fact note that the interaction between DNs was strictly taskbased, but it did not reflect on the broader patient needs.…”

Section: Introductionsupporting

confidence: 71%

“…2007). Loss of social role and physical restriction often cause patients to be housebound and suffer psychological distress, depression and overall poor quality of life (Skilbeck et al. 1997, Cicutto et al.…”

Section: Introductionmentioning

confidence: 99%

“…Debilitating breathlessness is the most prominent symptom, often resulting in marked physical and social dysfunction (Gore et al 2000, Lundh et al 2006, McHugh et al 2007). Loss of social role and physical restriction often cause patients to be housebound and suffer psychological distress, depression and overall poor quality of life (Skilbeck et al 1997, Cicutto et al 2004, Elkington et al 2005. The high impact of end-stage COPD and debilitating symptoms are predominantly similar to other terminally ill groups, such as patients with malignancy (Guthrie et al 2001, Coventry et al 2005, Goodridge 2006).…”

Section: Introductionmentioning

confidence: 99%

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District nurse interaction in engaging with end‐stage chronic obstructive pulmonary disease patients: a mixed methods study

Disler¹,

Jones²

2010

J of Nursing and Healthcare

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disler r & jones a (2010) Journal of Nursing and Healthcare of Chronic Illness2, 302–312 District nurse interaction in engaging with end‐stage chronic obstructive pulmonary disease patients: a mixed methods study Aims and objectives. To explore the role of district nurses in caring for people with end‐stage chronic obstructive pulmonary disease living in metropolitan London. Background. People with chronic obstructive pulmonary disease experience high symptom burden in their final stages of life. While the majority of end‐stage chronic obstructive pulmonary disease patients’ symptoms are markedly similar to any end‐stage chronic illness, these patients have limited access to supportive community services, such as district nursing. District nurses have an established role in end‐of‐life care in the community, however, this care has mainly focused on patients with terminal malignancy. It is unclear why district nurses’ established skills in end‐of‐life care not are not applied to this high needs patient group. Methods. A mixed‐method design incorporating face‐to‐face interviews and mailed survey was chosen to gain a coherent understanding of the perceptions of district nurses in metropolitan London. Forty‐three district nurses participated in this mixed method study in 2008. Conclusions. District nurses were found to lack confidence in their own knowledge about, and in their ability to interact with end‐stage chronic obstructive pulmonary disease patients. While district nurses did interact with these patients, this was limited to tasks unrelated to chronic obstructive pulmonary disease. Referrers appeared to misunderstand the district nurse role in end‐stage care and therefore its application to the care of end‐stage chronic obstructive pulmonary disease patients. Relevance to clinical practice. District nurses need to closely engage with people with end‐stage chronic obstructive pulmonary disease. In addition, referrers must alter their discourse to engage these high‐risk patients with health services early in their disease trajectory. Infrastructural change is furthermore required to assist district nurses to provide patient‐focused care in the community and implement the holistic nursing roles outlined in the literature.

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Section: Introductionsupporting

confidence: 91%

Section: Introductionsupporting

confidence: 71%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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District nurse interaction in engaging with end‐stage chronic obstructive pulmonary disease patients: a mixed methods study

Disler¹,

Jones²

2010

J of Nursing and Healthcare

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“…Further studies have been carried out to identify the palliative care needs of other groups of patients. Skilbeck et al (1997) found that patients with chronic obstructive airways disease stressed the psychosocial elements of care, and described their palliative care needs as symptom control, support in daily activities, emotional support, social support and information. Perhaps the work of Addington‐Hall (1998) summarizes the particular needs of many people dying from non‐malignant causes.…”

Section: Similarities Between Palliative Care Nurses and Mental Healtmentioning

confidence: 99%

The commonality and synchronicity of mental health nurses and palliative care nurses: closer than you think? Part one

Cutcliffe

Black²,

Hanson

et al. 2001

Psychiatric Ment Health Nurs

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The role of the palliative care nurse emphasizes the need for holistic care, and as this role has developed it has become evident that palliative care nurses require skills which, arguably, not all registered general nurses possess; particularly, skills pertaining to the psychological, social and spiritual domains of the person. In order to identify the skills that such nurses may require, there may be merit in considering other specialities of nursing which pay particular attention to the psychological, social and spiritual domains of the person. Consequently, this two‐part paper explores the areas of commonality and synchronicity between palliative care nurses and mental health nurses. The authors argue that this commonality is best articulated under the headings: defining the needs of the client group, the role of the nurse in non‐physical care, the nurse–client relationship, and the locus of control. They also argue that the differences between these groups of nurses are best articulated under the headings: facilitation/confrontation, and the focus on physical care. Part one of this paper therefore focuses on the first three areas of alleged commonality, with part two focusing on the fourth commonality, the key differences and the implications of such similarity. Given these areas of similarity the authors argue there is a case for reconsidering if the RGN qualification is an essential requirement for working within palliative care or if those with other skills – skills based on ‘being with’ rather than ‘doing for’– such as RMNs, should be thought of for such roles.

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Pharmacological Management of People Living with End-Stage Chronic Obstructive Pulmonary Disease

Dalgliesh¹,

Pinnock

2017

Drugs Aging

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Supportive care and pharmacological treatment can improve the quality of life of people with end-stage chronic obstructive pulmonary disease (COPD) who cope on a daily basis with substantial physical, psychological, social and spiritual morbidity. Smoking cessation is the only intervention that reduces the rate of progression of COPD, but evidence-based drug treatments and non-pharmacological strategies can relieve symptoms and reduce the impact of exacerbations. People with severe COPD live with increasingly troublesome breathlessness and other symptoms such as fatigue, pain, sputum production and weight loss. As breathlessness increases, treatment is stepped up from short-acting to long-acting bronchodilators supplemented by non-pharmacological interventions such as pulmonary rehabilitation. Opiates relieve breathlessness, and referral to a multidisciplinary breathlessness service is an option for those with intractable symptoms. Other smoking-related conditions, such as coronary heart disease and lung cancer as well as depression and anxiety are common and should be treated with conventional pharmacotherapy. Acute exacerbations become more frequent and more severe as the disease reaches end-stage. Inhaled corticosteroids in combination with long-acting bronchodilators can reduce the frequency of exacerbations, and supported self-management aims to facilitate timely treatment of deterioration. Palliative care services have traditionally been predicated on identifying people with end-stage disease-a model that does not resonate with the unpredictable, relapsing trajectory of COPD. Approaches to care that promote a flexible approach to palliation alongside curative care could do much to improve the burden of living with severe COPD.

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Nursing care for people dying from chronic obstructive airways disease

Cited by 16 publications

References 2 publications

District nurse interaction in engaging with end‐stage chronic obstructive pulmonary disease patients: a mixed methods study

District nurse interaction in engaging with end‐stage chronic obstructive pulmonary disease patients: a mixed methods study

The commonality and synchronicity of mental health nurses and palliative care nurses: closer than you think? Part one

Pharmacological Management of People Living with End-Stage Chronic Obstructive Pulmonary Disease

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