Nursing care dependence in the experiences of advanced cancer inpatients

Piredda, Michela; Bartiromo, Chiara; Capuzzo, Maria Teresa; Marinis, Maria Grazia De

doi:10.1016/j.ejon.2015.07.002

Cited by 13 publications

(34 citation statements)

References 21 publications

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“…Furthermore, a study by Piredda et al (2016) found that patients experience multiple transitions related to care dependency during hospitalisation and the perception of these differs among patients. Some had positive experiences with dependency of care as it made them feel at home and relieved to receive the needed care.…”

Section: A C C E P T E D Accepted Manuscriptmentioning

confidence: 99%

Transition experiences during courses of incurable cancer from the perspective of patients

Madsen

Uhrenfeldt

Birkelund

2019

European Journal of Oncology Nursing

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The present study explores patients' experiences of transitions during courses of incurable cancer. So far, qualitative studies have primarily contributed with insight on what it is like living with incurable cancer related to predefined areas in patients' lives. Studies rarely focus on transition experiences and none have explored patients' transition experiences throughout the course of illness. Focusing on transitions in palliative care is important as it facilitates possibilities for healthcare professionals to support patients when needed. Method: Ten patients living with incurable cancer were included from a specialised palliative care team and participated in individual semi-structured interviews conducted in participants' private homes. The study takes a phenomenological-hermeneutic approach and data analysis and interpretation were inspired by the French philosopher Paul Ricoeur. Results: Two main themes were identified: "Everyday life changes" and "Approaching end of life". In total, seven sub-themes were identified. Three related to the first main theme: "Normal life changes", "People changing attitude", "Changes hurting loved ones" and four related to the second main theme: "Approaching death", "Preparing for leaving", "Holding on to life" and "Connecting with places and belongings". Conclusion: Patients experienced multiple transitions within their everyday lives and in the process of approaching end of life. These transitions involved experiences of both suffering and well-being..

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Section: A C C E P T E D Accepted Manuscriptmentioning

confidence: 99%

Transition experiences during courses of incurable cancer from the perspective of patients

Madsen

Uhrenfeldt

Birkelund

2019

European Journal of Oncology Nursing

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“…Seven articles were qualitative in nature. Five relied on phenomenological interview processes (Matarese & Piredda, 2016;Rose & Yates, 2015;Komatsu & Yagasaki, 2014;Skea, MacLennan, Entwistle & N'Dow, 2014;Udo, 2014;McLennon et al, 2013). One was a case study (Rose & Yates, 2015) and one was a free-response survey (Banernjee et al, 2016).…”

Section: Overview Of Studies Selectedmentioning

confidence: 99%

“…Participants were selected purposefully in five of the research studies depending on their literacy (Chen, Wang, Shih & Wu, 2013), demographics (Piredda et al, 2016;Skea, MacLennan, Entwistle & N'Dow, 2014;McLennon et al, 2013), or for lack sensory impairments (Karagozoglu & Kahve, 2013). The remaining ten studies relied on convenience samples of voluntary participants.…”

Section: Interventions For Reducing Anxiety and Distress In Onc Patientmentioning

confidence: 99%

“…The remaining ten studies relied on convenience samples of voluntary participants. Piredda et al (2016) suggest that allowing patients to depend heavily on their nurses and caregivers immediately following their diagnosis allows patients time to learn to cope with their illness without the stress of self-care. However, as the illness and treatments progress, patients' coping mechanisms should be in place in order to allow them to regain as much independence as possible.…”

Section: Interventions For Reducing Anxiety and Distress In Onc Patientmentioning

confidence: 99%

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Reported Interventions for Reducing Anxiety and Distress in Adult Oncology Patients throughout their Cancer Experience

Gomez¹

2017

Preprint

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Background: The purpose of this paper is to identify present methods at relieving anxiety and distress in adult oncology patients. According to the American Cancer Association (2016), 1.7 million American will be diagnosed with cancer in 2016, and therefore, it is important for nurses to be competent caregivers to this growing patient population. Literature Review: A comprehensive review of current literature showed that consistent, competent caregivers, honest communication from the medical team, back massage, and music therapy were effective at cutting mean anxiety and distress scores by as much as 50 percent. Sixteen peer-reviewed articles from around the world and published in the last three years, plus one seminal article from 2004 were included in the literature review. Research: A phenomenological interview process with nine volunteers from a convenience snowball sample, who were diagnosed and treated over the age of 18 in California. Findings: Oncology patients benefit from personal coping methods such as: having a strong support system, having either personal or religious faith, and staying busy throughout their treatment. Medical personnel can supplement patient coping by providing clear expectations, by being compassionate and forthright, by prefacing negatives with positives, and by ensuring clinical competency in the skills performed.

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“…This also has an impact on patients who experience nursing care dependence, which is associated with feeling useless, worthless (Eriksson & Andershed, 2008), and distressed by being a burden to others (Chindaprasirt et al, 2019). However, some patients with advanced cancer who became care dependent found that their condition could be also experienced positively (Piredda et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

Development and psychometric testing of the care dependence perception questionnaire

et al. 2021

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Objective: This multicentre study aimed to develop a measure of the perception of care dependence in patients diagnosed with cancer and to test its psychometric properties. Methods:The questionnaire was developed based on findings emerged from a metasynthesis and from qualitative studies conducted in three hospitals in Italy. The draft questionnaire was tested for face and content validity and pilot-tested with patients.The questionnaire was completed by care-dependent patients with cancer. Testretest was conducted to verify stability. Exploratory factor analysis (EFA) was performed using a Maximum Likelihood robust estimator. Results and conclusion:The Scale-Content Validity Index was 0.92. The final 15-item questionnaire was completed by 208 patients admitted to two hospitals. The EFA yielded a two-factor model including a positive and a negative perception of care dependence. Factor score determinacy coefficients, Cronbach's alpha coefficients, composite reliability coefficients and Intraclass Correlations Coefficients yielded satisfactory results confirming internal consistency and stability. The hedonic balance score is also available as a single indicator of subjective well-being. The study provides initial validation of the Care DEeP Questionnaire that can be used by cancer nurses to assess positive and negative patient experiences with care dependence and to personalise and improve their care.

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Nursing care dependence in the experiences of advanced cancer inpatients

Cited by 13 publications

References 21 publications

Transition experiences during courses of incurable cancer from the perspective of patients

Transition experiences during courses of incurable cancer from the perspective of patients

Reported Interventions for Reducing Anxiety and Distress in Adult Oncology Patients throughout their Cancer Experience

Development and psychometric testing of the care dependence perception questionnaire

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