Nurses' Perceptions of Rooming-in for Caregivers of Infants with CCHD

Abstract

Congenital heart disease (CHD) is the most common congenital defect. Infants with critical congenital heart disease (CCHD) require complex medical care, and their caregivers need extensive training before being discharged home to safely care for their child. The rooming-in process provides caregivers with an opportunity to learn, practice, and manage the skills required for discharge to home during hospitalization. Although the literature reflects positive implications for the use of the rooming-in process in other populations (e.g., neonatal abstinence syndrome), literature about the rooming-in process in a pediatric cardiac care setting is limited. There remains a gap in the literature pertaining to the viewpoints of nurses, specifically as it relates to implementing a rooming-in process. Therefore, a qualitative study design was chosen to explore the nurses' perceptions of the rooming-in process using focus groups. The purpose of this study was to gain insight from nurses as to strategies to enhance the rooming-in process for caregivers of infants with CCHD. Additionally, we explored potential education and interventions to improve outcomes for infants with CCHD preparing to be discharged home.

Tetralogia de Fallot em crianças e adolescentes do Nordeste brasileiro: um estudo descritivo

“…No momento do parto, deve realizar o preparo da sala de parto para uma possível emergência do recém-nascido com T4F, bem como reservar leito na unidade de terapia intensiva neonatal. No pós-parto, o enfermeiro deve realizar acompanhamento do recém-nascido de acordo com o quadro clínico apresentado, seja ambulatorial, seja no internamento, e orientar os pais ou cuidadores sobre a procura imediata dos serviços de saúde em emergências (36). Já nas unidades básicas de saúde, durante as consultas de acompanhamento do crescimento e desenvolvimento infantil, ele deve orientar quanto aos sinais de complicações da doença e à importância do acompanhamento no ambulatório especializado.…”