Nurses’ experiences of caring for patients with intellectual developmental disorders: a systematic review using a meta-ethnographic approach

Appelgren, Marie; Bahtsevani, Christel; Persson, Karin; Borglin, Gunilla

doi:10.1186/s12912-018-0316-9

Cited by 49 publications

(55 citation statements)

References 99 publications

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“…The reason for this challenge of poor demonstration of PCC in PHC can be attributed to existing knowledge gaps among nurses, lack of enforcement agencies from the national and local governments and inadequate training on the utilization and provision of PCC, among others. This nding is similar to the conclusions of other researchers [74][75][76]. In addition, valued care providers are required at the PHC to provide quality healthcare services to the people.…”

Section: Discussionsupporting

confidence: 90%

A Qualitative Study on Patient-Centered Care and Perception of Nurses in Primary Healthcare Practice

Lateef

Mhlongo

2020

Preprint

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Background: Patient-centered care (PCC) approach has continued to gain recognition globally as the key to providing quality healthcare. However, this concept is not fully integrated into the management of primary health care (PHC) in existing nursing practice due to numerous challenges. Among these challenges is the perception of nursing on PCC in the Primary Health Care system. This study seeks to present the results of qualitative research performed at various selected PHC centers on nurses’ perceptions in PCC practice.Aim: This study aims at exploring the perception of nurses on PCC.Method: A qualitative research approach was adopted for this study. This study involved thirty local government PHC centers located in Osun State of southwest Nigeria. The sample comprised 28 female nurses and 7 male nurses. Data were collected through a semi-structured interview schedule in different sessions that were conducted on a one on one basis. Thereafter, data analysis was performed using thematic analysis and NVivo 12 software to generate themes, subthemes, and codes.Results: The findings of the study revealed a number of perceptions on PCC that were categorized into positive and negative themes. The negative themes include: Poor approach by the nurses and lack of enforcement agency. The positive themes that emerged include: Outcome-driven healthcare, valued care provider, communication to sharpen care, and driven healthcare service. In addition, the findings established a positive correlation between perception and years of working experience. 68.5 % of the participants, who had working experience in the range of 12 – 31 years, expressed a mixed perception of PCC practice. The remaining 31.5 % of the participants interviewed who had working experience in the range of 2, 6 – 11 years, expressed positive perceptions on the provision of PCC. Conclusion: From the findings of this study, there is a need for the government to enforce the utilization and provision of PCC in the PHC setting. This should be done through the provision of an enabling environment in the PHC setting. In addition, the government should provide regulations and monitoring mechanisms in the PHC institutions. Enforcement agencies should also offer opportunities for continuous training to enhance the nursing care skills of nurses to stimulate and sustain improved healthcare services. Lastly, the government should remunerate and promote nurses based on merit as another means of supporting improved healthcare service delivery by the nurses.

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Section: Discussionsupporting

confidence: 90%

A Qualitative Study on Patient-Centered Care and Perception of Nurses in Primary Healthcare Practice

Lateef

Mhlongo

2020

Preprint

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“…Nurses work at the front line of care for patients in hospital (Applegren et al, 2018), but they often feel underprepared to care for people with ID (Lewis et al, 2017). Feeling underprepared can result in the experience of negative emotions such as hopelessness, nervousness and frustration for nurses caring for people with ID in hospital (Lewis and Stenfert-Kroese, 2010).…”

Section: Introductionmentioning

confidence: 99%

“…Stereotyping can result in a reluctance by nurses to engage with people with ID and fewer instances of interaction between nurses and people with ID (Drodz and Clinch, 2015; Merrifield, 2011). Developing skills in non-verbal communication and recognising the person that exists independently of the diagnosis of ID can be challenging for nurses practising in the acute care context (Applegren et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

A qualitative study of nurses’ perspectives of caring for children with intellectual disability and their families in a paediatric acute care setting

Lewis

Wilson

Jaques

et al. 2019

J Child Health Care

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Children with intellectual disability (ID) experience chronic and pervasive limitations across intellectual and adaptive functioning. They are also at risk of developing co-morbidities. They are likely to be hospitalised more frequently and for longer periods of time than other children. The purpose of this study was to understand the experiences of nurses when caring for children and teenagers with ID in an acute paediatric hospital setting. The aim of the research was to inform future directions for the delivery of equitable and effective care for this vulnerable population. This study used a qualitative thematic analysis of individual interviews conducted with eight registered and enrolled nurses who provided care to children and adolescents with ID in an Australian paediatric acute hospital setting. Themes which emerged from this analysis were (1) Recognising similarities and managing differences; (2) Nurse–parent relationships; and (3) Caring for children with ID requires additional time. This study highlights that navigating care delivery and relationships when working with young people with ID and their caregivers in an acute care setting is complex. Nursing children with ID in hospital requires sophisticated skills. To ensure quality healthcare for patients with ID, a range of strategies are proposed.

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“…27 Only Ireland and the United Kingdom include the opportunity for a nursing subspecialty in intellectual and developmental disability in their undergraduate nursing curriculum. [28][29][30] Unfortunately, these courses are not well integrated or have limited inclusion in other fields of pre-qualifying specialism, like adult nursing. 30 In the United States, minimal education or clinical opportunities exist in undergraduate and graduate, or nurse practitioner programs.…”

Section: Educationmentioning

confidence: 99%

A nurses’ ethical commitment to people with intellectual and developmental disabilities

et al. 2020

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Aim: This article explores the issues of knowledge deficits of healthcare professionals in meeting the needs of people with IDD throughout the life span, and to identify factors that contribute to these deficits. Although statistics vary due to census results and the presence of a “hidden population,” approximately 1%–3% of the global population identify as living with an intellectual or developmental disability. People with intellectual or developmental disability experience health inequities and confront multiple barriers in society, often related to the stigma of intellectual or developmental disability. Disparities in care and service are attributed to a lack of knowledge and understanding among healthcare providers about people with intellectual or developmental disability, despite their increased risk for chronic health problems. The near absence of educational programs in nursing both nationally and internationally contributes to this significant knowledge deficit. In addition, ethical considerations between paternalistic beneficence and idealized autonomy have resulted in a lack of clear direction in working with a population that is often ignored or exploited. Nurses who view people with intellectual or developmental disability as vulnerable without assessing or acknowledging their capabilities may err toward paternalism in an effort to “first do no harm.” Likewise, nurses who fail to recognize the challenges and limitations faced by people with intellectual or developmental disability may not provide sufficient protections for a vulnerable person. People with intellectual or developmental disability are not binary, but rather complex individuals with a myriad of presentations. This article seeks to encourage a well-informed model of nursing care. Through an ethical lens, this article explores the nurse’s ethical commitments in cases of victimization, access to care, decision making, and the provision of optimal end-of-life care for people with intellectual or developmental disability.

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Nurses’ experiences of caring for patients with intellectual developmental disorders: a systematic review using a meta-ethnographic approach

Cited by 49 publications

References 99 publications

A Qualitative Study on Patient-Centered Care and Perception of Nurses in Primary Healthcare Practice

A Qualitative Study on Patient-Centered Care and Perception of Nurses in Primary Healthcare Practice

A qualitative study of nurses’ perspectives of caring for children with intellectual disability and their families in a paediatric acute care setting

A nurses’ ethical commitment to people with intellectual and developmental disabilities

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