Nurse-Led Effort in Developing, Implementing and Evaluating Healthcare Transition and Promoting Developmentally Appropriate Healthcare for Young People with Haemophilia

Khair, Kate; Pembroke, Luke; Christie, Deborah

doi:10.1007/978-3-030-23384-6_11

Cited by 1 publication

(1 citation statement)

References 29 publications

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“…ability to discuss their goals if they are different from parent/caregiver goals; identify advocates in their family to help them become more independent). Promoting YYA self-advocacy facilitates transitioning (Okumura et al, 2015) and can be found in specialty care documents in the fields of school nursing and intellectual and developmental disabilities (American Nurses Association., 2013;National Association of School Nurses, 2019) and in health care transition practice standards (Betz, 2017b;Khair et al, 2020;Royal College of Nursing, 2013). The least reported SMA assessed by nurse respondents pertained to identifying/requesting community services and supports; these are transition and adult-related abilities that may be needed by YYA as they transfer care to adult primary and specialty care providers and transition into emerging adulthood (i.e.…”

Section: Discussionmentioning

confidence: 99%

Survey of US pediatric nurses’ role in health care transition planning: Focus on assessment of self-management abilities of youth and young adults with long-term conditions

Betz

Mannino

Disabato

2020

J Child Health Care

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The survival rates of youth and young adults (YYAs) diagnosed with long-term conditions have improved considerably as 90% now enter adulthood; health care transition planning (HCTP) has emerged as a nursing practice priority. The aim of this national online survey was to investigate the extent to which nurses, recruited from two major United States pediatric nursing organizations are involved with HCTP including assessing YYA self-management abilities (SMA). Findings of a 9-item assessment of self-management abilities subscale of the nurses’ role in HTCP tool are reported. The nurse respondents ( n = 1269), identified the most frequently assessed SMA was the YYAs’ ability to understand and speak about their condition and its treatment ( M = 2.3, SD = .89). The least frequently assessed was the YYAs’ ability to identify community advocates to help them become more independent ( M =1.5, SD = .90). Regression analysis identified significant predictors of the frequency nurses assess YYA for SMA included nurses’ level of knowledge, perceived level of importance, HCTP and skills identified in job description, and caring for YYA. Findings indicate HCTP care advancements will necessitate HCTP training and development of nurse-led service efforts to facilitate optimal outcomes for YYA.

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Section: Discussionmentioning

confidence: 99%