'Not taken in by media hype': how potential donors, recipients and members of the general public perceive stem cell research

Peddie, Valerie; Porter, Maureen; Counsell, Carl; Caie, L.; Pearson, Donald; Bhattacharya, Siladitya

doi:10.1093/humrep/den496

Cited by 25 publications

(25 citation statements)

References 26 publications

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“…Data were analyzed using a grounded theory approach [27], which has proven to be useful to obtain in-depth understanding of subjective experiences concerning health issues [e.g. [28,29,30]]. In this approach, descriptive categories are identified by using line-by-line coding and the constant comparison method, assessing meaning units and categories for similarities and differences [28].…”

Section: Methodsmentioning

confidence: 99%

How Couples' Experiences prior to the Start of Infertility Treatment with Donor Gametes Influence the Disclosure Decision

Indekeu

Rober²,

Schotsmans³

et al. 2013

Gynecol Obstet Invest

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Aims: To explore couples' experiences in the preconception phase of infertility treatment with donor gametes and how this may influence the disclosure process to the offspring and/or others. Methods: In-depth interviews with 10 recipient couples were analyzed using a grounded theory approach. Results: In the context of their infertility and a culture in which definitions of gender and family are fundamentally biologically based, participants reconsidered the significance and meaning of genetics, and social connectedness in family-building and parenthood. When couples emphasized the similarities with the biologically based definitions of parenthood and family, the question of disclosing the donor conception to the offspring seemed less relevant. When couples adapted their view on families and parenthood to an alternative family formation, long-term consequences became more relevant, including the disclosure question. Support from others was needed to manage the challenges of this stage, but this could be in conflict with their decision of non-disclosing the donor conception to the potential offspring. Conclusions: This study highlights the importance of couples' experiences in the preconception phase for their disclosure process. The treatment of infertility and a future-oriented, family-building approach should be addressed in a fertility program with donor gametes and valued as complementary.

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Section: Methodsmentioning

confidence: 99%

How Couples' Experiences prior to the Start of Infertility Treatment with Donor Gametes Influence the Disclosure Decision

Indekeu

Rober²,

Schotsmans³

et al. 2013

Gynecol Obstet Invest

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“…Patients participate in clinical drug trials after the obligatory preclinical testing on animals and they are the intended beneficiaries of research; indeed, the patient's potential relief of suffering and pain is among the strongest arguments justifying medical research inflicting harm on non-consenting animals (DeGrazia, 1996;Ideland, 2009;Wayne and Glass, 2010). Despite the vast literature on attitudes towards animal testing (see, for example, Hagelin et al, 2003;Crettaz von Roten, 2008;Swami et al, 2008;Crettaz von Roten, 2009;Knight et al, 2009;Hobson-West, 2010), patients' views on this topic are only rarely explored, or explored in related areas of bioethics (Sattar et al, 2004;Dixon-Woods et al, 2008;Hull et al, 2008;Peddie et al, 2009;Newson, 2010).…”

Section: Introductionmentioning

confidence: 99%

Patients’ attitudes towards animal testing: “To conduct research on animals is, I suppose, a necessary evil”

2014

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A strong argument for the practice of animal testing in medical research is the potential benefit to patients in getting improved pain relief, minimising morbidity and mortality. However, patients' opinions on the ethics of animal testing are seldom sought, despite their role as principal stakeholders. This study compared the attitudes of patients and researchers on animal testing. Focus-group interviews were held with patients suffering from chronic inflammatory diseases, resulting in a questionnaire that was distributed January-May 2011. The questionnaire was posted to patient members of the Swedish Rheumatism Association (n = 1195) and to all scientific experts serving on Ethical Review Boards in Sweden (n = 364), with response rates of 65 per cent and 60 per cent, respectively. Results show that patients hold a positive stance towards animal testing, but with many caveats, and the level of support is comparable to those held by the general public found in national surveys. A clear majority of researchers were positive towards animal testing, and large statistical differences between patients and researchers were found regarding their attitudes towards testing animals commonly held as pets (P<0.001). Women were more critical than men regarding which species are used for what purposes (P<0.001). Researchers need to be aware that their more positive attitude towards animal testing is not shared to an equal degree with patients, who are the intended end-users and beneficiaries of medical research. The moral basis for using animals in research needs to be further discussed by all stakeholders.

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“…A grounded theory approach (GTA) according to Charmaz (2006) was used to analyse the data as GTA has proven to be useful to obtain the in-depth understanding of subjective experiences concerning health issues (Charmaz, 1990;Potter & Bhattacharya, 2008;Peddie et al, 2009). Such a qualitative approach results in a complex hierarchically structured list of interconnecting themes that refl ects what is central in the experiences of the participants.…”

Section: Discussionmentioning

confidence: 99%

When ‘sperm’ becomes ‘donor’: Transitions in parents’ views of the sperm donor

Indekeu¹,

D’Hooghe²,

Daniels³

et al. 2014

Human Fertility

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Little is known about recipients' views of their sperm donor. This study aimed to examine the possible transitions or consistencies in donor sperm recipients' (DSRs') view on the sperm donor over time. A longitudinal qualitative study of 19 Belgian heterosexual DSRs was undertaken. Interviews took place with both partners of the couple during pregnancy, at birth and 1.5-2 years after birth, and were analysed using a grounded theory approach. Recipients who intended to disclose exhibited a transition in their awareness of the donor from being of minimal importance to one who was increasingly seen as part of their family narrative. This was partly triggered by the offspring's life, remarks about resemblance and the socio-cultural context. The perceived position of the donor changed for most recipients from a threatening rival to a 'distractor'. This change was supported by the emerging father-child bond and the confidence that stemmed from it. These observations were applicable to those recipients who intended to disclose their donor conception; for those recipients who intended not to disclose, little or no transition was observed. This study describes and analyses the transitions and consistencies in recipients' views of the donor over different stages of the family life-cycle (pregnancy, birth, toddler stage) and could help the fertility clinics tailor their counselling to the specific stages of parenthood.

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'Not taken in by media hype': how potential donors, recipients and members of the general public perceive stem cell research

Cited by 25 publications

References 26 publications

How Couples' Experiences prior to the Start of Infertility Treatment with Donor Gametes Influence the Disclosure Decision

How Couples' Experiences prior to the Start of Infertility Treatment with Donor Gametes Influence the Disclosure Decision

Patients’ attitudes towards animal testing: “To conduct research on animals is, I suppose, a necessary evil”

When ‘sperm’ becomes ‘donor’: Transitions in parents’ views of the sperm donor

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