‘Not knowing where I am doesn't mean I don't know what I like’: cognitive impairment and quality of life responses in elderly people

Mozley, Caroline; Huxley, Peter; Sutcliffe, Caroline; Bagley, Heather; Burns, Alistair; Challis, David; Cordingley, Lis

doi:10.1002/(sici)1099-1166(199909)14:9<776::aid-gps13>3.0.co;2-c

Cited by 166 publications

(68 citation statements)

References 9 publications

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“…Even though 23 is the cutoff score, individuals who scored between 17 and 30 participated in this study. This decision was made to include lower MMSE scores based on converging evidence from recent studies that suggest a dimensional relationship between cognitive status and insight and that older adults are capable of identifying their thoughts and feelings even in the presence of significant cognitive deficits (Derouesne, Thibault, Lagha-Peirucci, Baudouin-Madec, Ancri, & Lacomblez, 1999;Duke, Seltzer, Seltzer, & Vasterling, 2002;Mozley et al, 1999;Zanetti et al, 1999).…”

Section: Methodsmentioning

confidence: 99%

Memory Self-Efficacy and Memory Performance in Older Males

McDougall¹,

Kang²

2003

International Journal of Men's Health

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The study reported here was a secondary analysis of data on 157 males from a larger study of predictors of memory performance in community-dwelling elders. The males' average age was 76 years, with 13 years of education and a Mini-Mental State Exam score of 26. Measures included depression, memory performance, metamemory, and memory self-efficacy. An unusual finding was the multimodal distribution of memory self-efficacy strength scores. Using a median split, the sample was divided into low and high memory self-efficacy groups. The high efficacy group were significantly younger, had larger scores on capacity (+ = high capacity) and change (+ = greater stability). These findings provide new evidence that the memory self-efficacy of aging males influences their perceptions of cognitive performance related to memory.Keywords memory performance; gender difference; aging males; self-efficacy Data from the Health and Retirement study published in Older Americans 2000: Key Indicators of Well Being suggest that in every age cohort older than 65 years, a higher percentage of males than females have moderate or severe memory impairment, defined as four or fewer words recalled out of 20 (Federal Interagency Forum of Aging-Related Statistics, 2000). In both crosssectional and longitudinal studies of memory performance, males performed worse than females and had larger performance decrements (Barrett-Connor & Kritz-Silverstein, 1999;Zelinski, Gilewski, & Schaie, 1993). In one study healthy older males had lower scores on selfreported memory function than females (McDougall, 1998a). In another study of nursing home residents, McDougall (1998b) found scores on the capacity and change metamemory scales were significantly lower in the group with mixed depression and cognitive impairment when compared to a group with cognitive impairment and no depression. This phenomenon of compromised thinking, anxiety, and decreased confidence in memory has been described as mental frailty by McDougall and Balyer (1998) and sense of control by Lachman, Steinberg, and Trotter (1987) and Lachman and Leff (1989). Palmer, Wolkenstein, LaRue, Swan, and Smalley (1994) found that in 6% of a sample of community males (N = 1149), memory performance scores were low enough to be classified as risk for dementia. Larrabee and Crook (1993), who examined 417 male-female pairs, found that males had greater age-associated atrophy of the left hemisphere than women; however, this difference was not manifested in everyday verbal memory. Magnetic resonance imaging studies have also found greater atrophy and shrinkage in the brain structures of men than in the brains of women (Coffey et al., 1998;Larkin, 1998;Palmer et al., 1994 Risk Factors Thought to Contribute to a Decrease in Memory Performance Memory ComplaintsMemory complaints are the subjective aspect of cognitive function and may be related to memory performance in older adults, but findings about this relationship are inconclusive (Comijs, Deeg, Dik, Twisk, & Jonker, 2002;Commissaris, Ponds, & Jol...

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Section: Methodsmentioning

confidence: 99%

Memory Self-Efficacy and Memory Performance in Older Males

McDougall¹,

Kang²

2003

International Journal of Men's Health

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“…This is a consequence of the idea that people with dementia are not able to rate their own HRQL due to cognitive impairment. However, there is a strong movement in measurement of HRQL in dementia to obtain self-reports from the individual with dementia where possible given recent findings that suggest that people with mild to moderate dementia are aware and able to assess their HRQL Mozley et al, 1999;Selai et al, 2001a;Logsdon et al, 2002;Ready et al, 2002;Smith et al, 2005a;Trigg et al, 2007b). Proxy informants have a different point of view on the patient's HRQL and tend to give lower rating than people with dementia Thorgrimsen et al, 2003).…”

Section: Dementia Severitymentioning

confidence: 99%

Health-related quality-of-life instruments for Alzheimer's disease and mixed dementia

Perales

Cosco

Stephan

et al. 2013

Int. Psychogeriatr.

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Background: Over the last 20 years, a number of instruments developed for the assessment of health-related quality of life (HRQL) in dementia have been introduced. The aim of this review is to synthesize evidence from published reviews on HRQL measures in dementia and any new literature in order to identify dementia specific HRQL instruments, the domains they measure, and their operationalization.

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“…En primer lugar, porque las personas con demencia tienen la capacidad cognitiva para hacerlo como demostraron las investigaciones de Mozley (1999), pero sobretodo porque ellas mismas han expresado su deseo y voluntad de hablar por si mismas (Beard et al 2009). Al hacerlo, democratizamos los procesos de investigación y reconocemos a las personas con demencia como seres capaces de palabra, acción y de narración, desde una fenomenología del hombre capaz à la Ricoeur (2005).…”

Section: Discussionunclassified

La cultura como instrumento de bienestar e inclusión social: evaluación del impacto del programa Centro de Cultura Contemporánea de Barcelona – Alzheimer

Algado

Pedrosa²,

Pérez

et al. 2017

Arte Individ. Soc.

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Resumen. Este artículo presenta la investigación desarrollada en el Centro de Cultura Contemporánea de Barcelona (CCCB) para conocer el impacto de su programa de Alzheimer. Se describe la metodología mixta de la investigación desarrollada, si bien se ha privilegiado la dimensión cualitativa desde un paradigma hermenéutico. A nivel cuantitativo se ha utilizado la escala Non Pharmacological Therapy. A nivel cualitativo se han desarrollado grupos focales, un cuestionario y diarios de campo basados en la observación participativa durante las visitas. En la investigación han participado las personas con Alzheimer, sus acompañantes y familiares así como las educadoras del CCCB. La investigación muestra que el programa ha tenido un impacto positivo en el bienestar cognitivo y emocional de los participantes, así como en la dimensión de participación social. Destacan dimensiones como la evocación de recuerdos, el disfrute de la novedad, o la participación que rompe con una situación de aislamiento y exclusión. Se verifica un impacto igualmente positivo del programa en los cuidadores, familiares, educadores y en la propia institución, en el marco de un movimiento de las instituciones de cultura y los museos hacia la inclusión. La cultura es un poderoso instrumento para el bienestar y la participación social de las personas con Alzheimer. Palabras clave: Investigación mixta; Alzheimer; cultura; bienestar; inclusión.[en] Culture as an instrument of well-being and social inclusion: evaluation of the impact of the program Center for the Contemporary Culture of Barcelona -AlzheimerAbstract. This paper presents a research developed at the Centre for the Contemporary Culture of Barcelona (CCCB) to understand the impact of it's Alzheimer program. Mixed research methodology has been developed, although a qualitative research from an hermeneutic paradigm has been privileged. The quantitative research has been based on the Non Pharmacological Therapy Scale. The qualitative research has been developed through focus groups; a questionnaire; and field diaries based on participatory observation during the visits. The research shows that the program has had a positive impact on the cognitive and emotional wellbeing of participants as well as in the social participation. It is remarkable the positive impact in dimensions as evocation of memories, enjoying the novelty, or

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‘Not knowing where I am doesn't mean I don't know what I like’: cognitive impairment and quality of life responses in elderly people

Cited by 166 publications

References 9 publications

Memory Self-Efficacy and Memory Performance in Older Males

Memory Self-Efficacy and Memory Performance in Older Males

Health-related quality-of-life instruments for Alzheimer's disease and mixed dementia

La cultura como instrumento de bienestar e inclusión social: evaluación del impacto del programa Centro de Cultura Contemporánea de Barcelona – Alzheimer

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