‘Non-compliance’ as illness management: Hemodialysis patients’ descriptions of adversarial patient–clinician interactions

Allen, Dawn; Wainwright, Megan; Hutchinson, Thomas

doi:10.1016/j.socscimed.2011.05.018

Cited by 46 publications

(54 citation statements)

References 19 publications

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“…When commencing hemodialysis, some participants struggled with feelings of vulnerability and their dependency on both dialysis treatment and caregivers (24,26,(28)(29)(30)(31)(32)(35)(36)(37)(38)(39)(40). The "assembly line" (26) nature of dialysis and lack of interest shown by staff could result in a loss of personal identity (24,26,28,35). Interference with earlier roles in society and social networks could also affect identity.…”

Section: Synthesismentioning

confidence: 99%

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A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

Reid

Seymour

Jones

2016

CJASN

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Background and objectives Patients on in-center dialysis spend significant amounts of time in the dialysis unit; additionally, managing ESRD affects many aspects of life outside the dialysis unit. To improve the care provided to patients requiring hemodialysis, their experiences and beliefs regarding treatment must be understood. This systematic review aimed to synthesize the experiences of patients receiving in-center hemodialysis.Design, setting, participants, & measurements We searched Embase, MEDLINE, CINAHL, PsychINFO, Google Scholar, and reference lists for primary qualitative studies published from 1995 to 2015 that explored the experiences of adult patients receiving treatment with in-center hemodialysis. A thematic synthesis was conducted.Results Seventeen studies involving 576 patients were included in the synthesis. Four analytic themes were developed. The first theme (a new dialysis-dependent self) describes the changes in identity and perceptions of self that could result from dialysis dependence. The second theme (a restricted life) describes the physical and emotional constraints that patients described as a consequence of their dependence. Some patients reported strategies that allowed them to regain a sense of optimism and influence over the future, and these contributed to the third theme (regaining control). The first three themes describe a potential for change through acceptance, adaption, and regaining a sense of control. The final theme (relationships with health professionals) describes the importance of these relationships for in-center patients and their influence on perceptions of power and support. These relationships are seen to influence the other three themes through information sharing, continuity, and personalized support.Conclusions Our synthesis has resulted in a framework that can be used to consider interventions to improve patients' experiences of in-center hemodialysis care. Focusing on interventions that are incorporated into the established relationships that patients have with their health care professionals may enable patients to progress toward a sense of control and improve satisfaction with care.

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Section: Synthesismentioning

confidence: 99%

“…Consequently, this resulted in difficulties maintaining social connections and friendships. However, the dialysis unit could also provide a new social framework through the development of friendships with staff and patients (26,(28)(29)(30)34,35,38).…”

Section: Synthesismentioning

confidence: 99%

A Thematic Synthesis of the Experiences of Adults Living with Hemodialysis

Reid

Seymour

Jones

2016

CJASN

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“…and HD treatment, a second phase of appreciating the HD treatment, and a third phase of grappling with the negative aspects of HD and returning to a satisfactory life (Wright and Kirby, 1999;Tanyi and Werner, 2008a). Nevertheless, patients sometimes fail to adjust because of poor communication between them and health care professionals and therefore they might use self-protective strategies, such as refusing recommended treatments, adjusting diet and medications, and refusing care from particular health professionals (Allen et al, 2011).…”

Section: Meanings Of Spiritualitymentioning

confidence: 99%

Quality of life and well‐being of people receiving haemodialysis treatment in Scotland: A cross‐sectional survey

Alshraifeen

McCreaddie

Evans

2013

Int J of Nursing Practice

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End-stage renal disease is a complex, progressive and debilitating illness that affects patients' quality of life, physical and mental health, well-being, social functioning and emotional health. A cross-sectional survey was carried out in renal dialysis centres in Scotland to assess patients' health status and the impact of haemodialysis treatment on quality of life and well-being. A sample of 72 participants was recruited. Participants scored considerably lower than the UK general population in all domains of health-related quality of life, although mental health components were nearer to general population norms than physical health components. However, 34 (47%) participants achieved a score on a general well-being questionnaire that was indicative of stress and anxiety. Increasing age was associated with better overall mental health, but worse physical functioning. Increasing levels of hope and support were associated with improved general well-being

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“…Some studies explored nurses' views (Bull & FitzGerald, 2006;Marck, 2000;McGibbon & Peter, 2008;Tranter et al, 2009) and Allen et al (2011) andNagle (1998) identified the need to investigate similarities and differences between care recipients' and providers' perspectives of technologies and their settings.…”

Section: Discussionmentioning

confidence: 99%

“…I concede, however, that difference between adults' and children's senses of time also may exist. However, a small body of literature specifically has studied adult experiences of hospital-based hemodialysis, focusing on the ramifications of hemodialysis technologies on the participants' bodies and lives (Allen et al, 2011;Hagren et al, 2001;Nagle, 1998 (2000) is large-scale time that refers to historical "long-term processes that transcend the limits of our personal existence" (p. 18). Large-scale time includes shared pasts and futures fashioned on broader collective structures of power, cultural knowledges and narratives about group identities, such as gender, nationality, religion, and ethnicity.…”

Section: The Children's Technological Embodimentmentioning

confidence: 99%