Non-cancer patients as an under-served group

Addington‐Hall, Julia; Hunt, Katherine

doi:10.1093/acprof:oso/9780199599400.003.0066

Cited by 14 publications

(10 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Increased accuracy of prognostication, together with improved symptom control, may allow more dying people to tell their own stories than in the past. However, accurate prognostication remains a significant challenge, particularly beyond cancer,7 and patient EoLC surveys will exclude patients who are not recognised as dying or are too ill to participate. Despite these challenges there is a public health imperative to explore the experiences and needs of people approaching end of life, and the people around them, particularly as these needs are changing as a result of population ageing and increased illness complexity arising from multimorbidity 8–10…”

Section: Introductionmentioning

confidence: 99%

Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end-of-life care in England

Hunt

Richardson

Darlington

et al. 2017

BMJ Support Palliat Care

View full text Add to dashboard Cite

The National Survey of Bereaved People was conducted by the Office for National Statistics on behalf of NHS England for the first time in 2011, and repeated annually thereafter. It is thought to be the first time that nationally representative data have been collected annually on the experiences of all people who have died, regardless of cause and setting, and made publicly available informing palliative and end-of-life policy, service provision and development, and practice. This paper describes the development of the questionnaire used in the survey, VOICES-SF, a short-form of the VOICES (Views Of Informal Carers-Evaluation of Services) questionnaire, adapted specifically to address the aims of the national survey. The pilot study to refine methods for the national survey is also described. The paper also reports on the development of the retrospective, after-death or mortality follow-back method in palliative and end-of-life care, and reviews its strengths and weaknesses.

show abstract

Section: Introductionmentioning

confidence: 99%

Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end-of-life care in England

Hunt

Richardson

Darlington

et al. 2017

BMJ Support Palliat Care

View full text Add to dashboard Cite

show abstract

“…Even so, compared to patients with cancer, palliative care is not a common practice for patients with COPD 3. This may be due to the fact that historically the focus of palliative care has been based on oncology 4. But, according to the definition of the World Health Organization (WHO), palliative care is intended for any life-threatening disease by means of early identification, assessment, and treatment of pain and other problems, such as physical, psychosocial, and spiritual in order to prevent and relieve suffering 5.…”

Section: Introductionmentioning

confidence: 99%

The view of pulmonologists on palliative care for patients with COPD: a survey study

Duenk

Verhagen

Dekhuijzen³

et al. 2017

COPD

View full text Add to dashboard Cite

IntroductionEarly palliative care is not a common practice for patients with COPD. Important barriers are the identification of patients for palliative care and the organization of such care in this patient group.ObjectivePulmonologists have a central role in providing good quality palliative care for patients with COPD. To guide future research and develop services, their view on palliative care for these patients was explored.MethodsA survey study was performed by the members of the Netherlands Association of Physicians for Lung Diseases and Tuberculosis.ResultsThe 256 respondents (31.8%) covered 85.9% of the hospital organizations in the Netherlands. Most pulmonologists (92.2%) indicated to distinguish a palliative phase in the COPD trajectory, but there was no consensus about the different criteria used for its identification. Aspects of palliative care in COPD considered important were advance care planning conversation (82%), communication between pulmonologist and general practitioner (77%), and identification of the palliative phase (75.8%), while the latter was considered the most important aspect for improvement (67.6%). Pulmonologists indicated to prefer organizing palliative care for hospitalized patients with COPD themselves (55.5%), while 30.9% indicated to prefer cooperation with a specialized palliative care team (SPCT). In the ambulatory setting, a multidisciplinary cooperation between pulmonologist, general practitioner, and a respiratory nurse specialist was preferred (71.1%).ConclusionTo encourage pulmonologists to timely initiate palliative care in COPD, we recommend to conduct further research into more specific identification criteria. Furthermore, pulmonologists should improve their skills of palliative care, and the members of the SPCT should be better informed about the management of COPD to improve care during hospitalization. Communication between pulmonologist and general practitioner should be emphasized in training to improve palliative care in the ambulatory setting.

show abstract

“…While some studies have shown that general practitioners (GPs) regard palliative care as a part of their responsibilities towards their patients, 5 – 8 it has been suggested that not many non-cancer patients in the community receive adequate palliative care. 7 , 9 …”

Section: Introductionmentioning

confidence: 99%

The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: A systematic review of views from patients, carers and health-care professionals

2014

View full text Add to dashboard Cite

Background:Primary care has the potential to play significant roles in providing effective palliative care for non-cancer patients.Aim:To identify, critically appraise and synthesise the existing evidence on views on the provision of palliative care for non-cancer patients by primary care providers and reveal any gaps in the evidence.Design:Standard systematic review and narrative synthesis.Data sources:MEDLINE, Embase, CINAHL, PsycINFO, Applied Social Science Abstract and the Cochrane library were searched in 2012. Reference searching, hand searching, expert consultations and grey literature searches complemented these. Papers with the views of patients/carers or professionals on primary palliative care provision to non-cancer patients in the community were included. The amended Hawker’s criteria were used for quality assessment of included studies.Results:A total of 30 studies were included and represent the views of 719 patients, 605 carers and over 400 professionals. In all, 27 studies are from the United Kingdom. Patients and carers expect primary care physicians to provide compassionate care, have appropriate knowledge and play central roles in providing care. The roles of professionals are unclear to patients, carers and professionals themselves. Uncertainty of illness trajectory and lack of collaboration between health-care professionals were identified as barriers to effective care.Conclusions:Effective interprofessional work to deal with uncertainty and maintain coordinated care is needed for better palliative care provision to non-cancer patients in the community. Research into and development of a best model for effective interdisciplinary work are needed.

show abstract

Non-cancer patients as an under-served group

Cited by 14 publications

References 0 publications

Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end-of-life care in England

Developing the methods and questionnaire (VOICES-SF) for a national retrospective mortality follow-back survey of palliative and end-of-life care in England

The view of pulmonologists on palliative care for patients with COPD: a survey study

The challenges of uncertainty and interprofessional collaboration in palliative care for non-cancer patients in the community: A systematic review of views from patients, carers and health-care professionals

Contact Info

Product

Resources

About