“No Right Place to Die”

Morgan, Betty D.

doi:10.1177/1078390316629960

Cited by 22 publications

(19 citation statements)

References 39 publications

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“…The final critique scores are included in Supplemental Digital Content 2 (see Supplemental Digital Content 2, http://links.lww.com/JHPN/A80) and represented by “*” as recommended, 11 with scores ranging from one criterion met (*) to all criteria met (*****). Scores ranged from 2 criteria to 5 criteria being met, with the majority (n = 6) meeting 4 or 5 criteria, indicating high-quality studies within their respective methodologies.…”

Section: Resultsmentioning

confidence: 99%

“…Engagement in high-risk behaviors such as smoking, unprotected sex, binge drinking, or lack of exercise can be considered a symptom of psychiatric illness 10 . Symptoms of SPMIs and stigma associated with a psychiatric illness often create an “othering” effect within persons with SPMIs, where they no longer feel welcome within the bounds of society, which may lead to increased suffering in persons with SPMI 11 . Many times, support systems (family, friends) no longer engage with persons with SPMIs, greatly reducing necessary support and subsequently reducing their quality of life 11 .…”

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confidence: 99%

“…Symptoms of SPMIs and stigma associated with a psychiatric illness often create an “othering” effect within persons with SPMIs, where they no longer feel welcome within the bounds of society, which may lead to increased suffering in persons with SPMI 11 . Many times, support systems (family, friends) no longer engage with persons with SPMIs, greatly reducing necessary support and subsequently reducing their quality of life 11 . These complex symptoms and societal aspects of SPMIs are justification for the implementation of palliative care for this population.…”

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confidence: 99%

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Palliative Care in Severe and Persistent Mental Illness

Riley

Hupcey

Kowalchik

2022

J Hosp Palliat Nurs

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Severe and persistent mental illnesses refer to a group of psychiatric disorders causing severe dysfunction in patients and include diagnoses such as schizophrenia, bipolar disorder, and major depression. Patients with severe and persistent mental illnesses have a complex symptomatology and face complicated medical disparities creating a difficult care process and reduced quality of life. Palliative care, a holistic approach to care that aims to reduce symptoms and stress of illness in persons living with chronic diagnoses, is appropriate within this population to address the complexity of care needs but is currently underutilized. The purpose of this review was to systematically review the literature to determine what is currently known about palliative care utilization in the severe and persistently mentally ill population. The databases systematically searched include PubMed, Cumulative Index for Nursing and Allied Health Literature, PsycINFO, and MEDLINE, to find all articles relevant to the research question. Keywords include “palliative care,” “end-of-life care,” and “severe and persistent mental illness,” including all subsets. Literature was reviewed per the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. The results of this systematic review helped synthesize current information about this developing topic to inform clinicians on how to best integrate palliative care to this population.

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Section: Resultsmentioning

confidence: 99%

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confidence: 99%

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confidence: 99%

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Palliative Care in Severe and Persistent Mental Illness

Riley

Hupcey

Kowalchik

2022

J Hosp Palliat Nurs

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“…Such planning could provide support to patients’ relatives too given that patients with COVID-19 may experience rapid deterioration and there are often difficult and stressful decisions to be made about whether the ill person should be hospitalised [23]. The relevance of end of life planning, particularly for inpatient staff in this study, highlights the need for appropriate training to enable staff to facilitate discussions about end of life care [24].…”

Section: Discussionmentioning

confidence: 99%

Impact of the COVID-19 pandemic on Older Adults Mental Health Services: a mixed methods study

Bhome

Huntley

Locke

et al. 2020

Preprint

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PurposeThe Covid-19 pandemic is likely to have a significant impact on older adults mental health care. Our study aimed to explore staff perspectives on key challenges and innovations, to help inform the delivery of older adults mental health care in subsequent waves of the pandemic.MethodsA mixed methods online questionnaire developed by NIHR Mental Health Policy Research Unit (MHPRU) was used to gather staff perspectives on their challenges at work, problems faced by service users and their carers, and sources of help and support. Descriptive statistics were used for quantitative analysis and descriptive content analysis for qualitative analysis.Results158 participants, working in either community or inpatient settings, and from a range of professional disciplines, were included. For inpatient staff, a significant challenge was infection control. In the community, staff identified a lack of access to physical and social care as well as reduced contact with friends and families as being challenges for patients. Remote working was seen as a positive innovation along with Covid-19 related guidance from various sources and peer support.ConclusionOur study, with a focus on staff and patient well-being, helps to inform service development for future waves of the pandemic. We discuss measures to improve infection control in inpatient settings, the role of voluntary organisations in supporting socially isolated community patients, the need for better integration of physical and mental health services at an organisational level, and the importance of training staff to support patients and their families with end of life planning.

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“…While the CHPCA’s (2015) Framework specifically includes homeless shelters and prisons as examples of places where a palliative approach can be provided, patients’ settings of care implicitly extend to forensic and geriatric psychiatry inpatient units, the care context of the research presented in this article. The need to improve access to palliative care in forensic and psychiatric care settings is evident and pressing: There is a growing western population of aging inmates in need of palliative care services (Human Rights Watch, 2012; Office of the Correctional Investigator, 2019), there is limited research related to palliative care programs within forensic environments outside of the United States (Fowler-Kerry, 2003; Hudson & Wright, 2019), and there are many barriers to the provision of palliative care to psychiatric patients (Terpstra & Terpstra, 2012) including stigma associated with mental illness (Steves & Williams, 2016) and the lack of experience of psychiatric nurses (Morgan, 2016).…”

Section: Introductionmentioning

confidence: 99%

Ethics of Finitude: Nursing and the Palliative Approach in Geriatric and Forensic Psychiatry

Skinner

Jacob

Vanderspank‐Wright

et al. 2020

Global Qualitative Nursing Research

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There is a called-for shift to an upstream provision of palliative care as an overall care approach within a health equity perspective. Our research explored how nurses in psychiatry engage with aging patients and mortality to discern enactment of ethical dimensions of care. Drawing from tenets of interpretative phenomenological analysis, forensic and geriatric psychiatry registered nurses working at a mental health facility in eastern Ontario completed interviews for analysis. Nurses engaged with mortality through a process of recognition and through the affirmation of their values. The affirmed values are aligned with the palliative care approach and within an ethics of finitude lens in that their enactment is partly premised on the recognition of patients’ accumulated losses related to human facticities (social, temporal, mortal). This research underscores preliminary insights on a process identifying care practices aligned with the palliative approach and possibilities for expanding upon an ethics of finitude lens.

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“No Right Place to Die”

Abstract: Participants discussed the need for better education and collaboration between psychiatric and palliative care nurses as well as the need for ongoing support.

Cited by 22 publications

References 39 publications

Palliative Care in Severe and Persistent Mental Illness

Palliative Care in Severe and Persistent Mental Illness

Impact of the COVID-19 pandemic on Older Adults Mental Health Services: a mixed methods study

Ethics of Finitude: Nursing and the Palliative Approach in Geriatric and Forensic Psychiatry

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