“No One Asked Me If I’m Alright”: A Mixed-Methods Study Exploring Information/Support Needs and Challenges Engaging Men Diagnosed With Male-Factor Infertility

Abstract

There is limited research exploring men’s experiences of infertility, and fewer previous studies have examined what information and support men desire after being diagnosed specifically with male-factor infertility. We conducted a mixed-methods study utilizing a combined sequential, concurrent design (online survey/semi-structured interviews). Survey outcomes ( N =12) were analyzed using quantitative data analysis, while qualitative survey data ( N = 5) was analyzed by reflexive thematic analysis. Heterosexual men (>18 years), fluent in English, diagnosed solely with male-factor infertility/sub-fertility, who required assisted reproductive treatment within Australia in the past 5 years were recruited online and through fertility clinics Australia-wide. Most men reported that their information and support needs were only somewhat, slightly or not at all met. Preferred information sources on male infertility were a dedicated online resource, app, or fertility doctor/specialist, while support was preferred from fertility specialists and partners. Three themes were identified from the qualitative analysis about men’s experiences and support needs when diagnosed with male infertility (a) Ultimate threat to masculinity; (b) Holistic care, and (c) the power of words. The information-rich data collected provided valuable insights into men’s experiences of male-factor infertility and important considerations to improve recruitment for future research. A diagnosis of male-factor infertility has the potential to be deeply impactful and difficult to navigate for men. Adequate and holistic information, recognition of emotional impacts, proactive offers of support and sensitive language are needed to improve men’s experiences when undergoing assisted reproductive technology.

Approaches to Engaging Men During Primary Healthcare Encounters: A scoping review

“…This includes in specialist care settings where similar approaches have been called for to optimize the healthcare provision and outcomes for men. Examples include when communicating with men about active surveillance (Mro´z et al, 2013) and when supporting men in care after a diagnosis of male-factor infertility (Obst et al, 2023).…”