No man is an Island: The silent struggle of invisible caregivers

Lohne, Vibeke; Schjølberg, Tore Kr.; Lindwall, Lillemor; Nåden, Dagfinn

doi:10.15761/ccrr.1000s1002

Cited by 2 publications

(4 citation statements)

References 9 publications

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“…Dignity in rehabilitation care was in focus on four empirical studies. In this context, focus was on patients struggling with multiple sclerosis ( 41 ), patients struggling after head injuries ( 42 ), family caregivers to patients struggling with multiple sclerosis ( 43 ) and healthcare personnel struggling with preserving and promoting dignity within the rehabilitation practice ( 44 ). According to patients suffering from multiple sclerosis, their struggling was described as invisibility and as being captured by fatigue ( 41 ).…”

Section: Resultsmentioning

confidence: 99%

“…They felt alone with the daily responsibility and had to give up their own lives. According to healthcare professionals in a rehabilitation practice ( 44 ), they considered that dignity was promoted and preserved when patients became active in the process of rehabilitation, when the staff members were able to cope with the patient’s disability, and when patient feelings and thoughts were respected. The staff never used the word dignity, rather they used expressions such as quality of life, meaning helping the patients to feel more dignified and worthy.…”

Section: Resultsmentioning

confidence: 99%

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Human dignity research in clinical practice – a systematic literature review

Lindwall

Lohne

2020

Scandinavian Caring Sciences

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Human dignity research in clinical practicea systematic literature review Background: This literature study describes caring science research on human dignity in different clinical practice. We already know a good deal about human dignity in nursing care but how do patients, nurses, healthcare professionals and next of kin experience human dignity in clinical practice? Aim: To summarise studies on human dignity to gain a deeper understanding of how it can be achieved in caring science research and to gain a broader understanding of the differences and similarities across caring contexts. The aim was also to gain a broader understanding of the differences and similarities of human dignity across different clinical practice. Method: The literature review re-analysed 28 empirical studies on human dignity are experienced from acute, psychiatric, elderly and rehabilitation care. The data analysis strategy was conducted in a systematic and critical way and consisted of a five-step method.Result: Maintaining dignity was described when caregivers had the time and the will to see and listen to patient and had the courage to see what they did not want to see, allowing their inner powers to act with the purpose of doing good. In elderly care, it was important that elderly persons are involved as members of society and experience respect, confidence, security and charity. Indignity was described when caregivers did not allow patients to have their will and when they had unethical attitudes, ignoring patients and creating powerlessness. The feeling of being abandoned and not being taken seriously are also described in elderly care. Conclusion: Findings show how caregivers fulfil their ethical responsibility by seeing, listening and being a part of the time and place. The will to do good includes the courage to preserve dignity and human value rests on being created as a human being. More research is needed about ethical and moral responsibility in clinical practice.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Human dignity research in clinical practice – a systematic literature review

Lindwall

Lohne

2020

Scandinavian Caring Sciences

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“…Family caregivers of residents in nursing homes experienced a continuous uneasiness on behalf of their relatives due to vulnerability and daily struggling (34). Families of individuals suffering from multiple sclerosis experienced a lonely and silent struggle day and night and reported experiences of feeling imprisoned and invisible while they suffered from fatigue and insomnia (39). Additionally, relatives also reported poor health status, although they were still healthy.…”

Section: The Nursing Context Of Prevention and Health Promotionmentioning

confidence: 99%

“…Hope also contributed to strength and sometimes a new direction (36). Hope and faith, even in the roughest time, were also understood as pushing limits (39). Conclusively, the essence of the contextual hope was understood as 'vitality and freedom'.…”

Section: Hope Means Pushing Limitsmentioning

confidence: 99%

‘Hope as a lighthouse’ A meta‐synthesis on hope and hoping in different nursing contexts

Lohne

2021

Scandinavian Caring Sciences

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Background: Hope has a contextual dimension and experiences of hope seem to be an important part of everybody's life irrespective of changing and challenging health conditions. However, less focus has been placed on the similarities and differences in the experiences of hope among patients and family caregivers in different contexts of suffering and health, such as the nursing contexts of acute and critical care, rehabilitation and long-term care and prevention and health promotion. Aim: This paper focuses on experiences of hope and hoping in different clinical nursing contexts, based on a meta-synthesis of seventeen empirical studies on hope and hoping.These studies highlight experiences of hope and advance our theoretical and clinical understanding of the phenomenon.Methodological framework: This study on hope and hoping from seventeen empirical research studies was based on a meta-synthesis, by clarifying and modifying the essence of hope and hoping, aiming to identify the unique conditions in the different clinical contexts. Results: A new understanding of the empirical findings emerged from the text: Hope means transformation and hope is indispensable in the acute and critical nursing context, and hope as an inner flame and hope as a lighthouse related to rehabilitation and long-term care. Hope means pushing limits and expanding hope was experienced in the context of prevention and health promotion. Conclusions: According to the findings, dimensions of hope and hoping were always present but also influenced by contextual suffering and losses. Implications for practice: Hope means metaphorically a lighthouse, meaning a bright and shining centre, which must be promoted and protected in patients and their families.

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No man is an Island: The silent struggle of invisible caregivers

Cited by 2 publications

References 9 publications

Human dignity research in clinical practice – a systematic literature review

Human dignity research in clinical practice – a systematic literature review

‘Hope as a lighthouse’ A meta‐synthesis on hope and hoping in different nursing contexts

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