Nineteenth-Century American Domesticity

Fellman, Anita Clair

doi:10.3138/cjh.19.3.398

Cited by 1 publication

(1 citation statement)

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“…Following coding and the development of initial themes, we identified a similarity to some of the key themes within the concept of social death [ 23 ], a series of losses resulting in a disconnection from social life. Social death was first conceptualised in 1982 by Patterson in relation to slavery to describe how people can be considered unworthy and seen as dead when they are alive [ 24 ]. The theory has also been applied, at times controversially, to patients with chronic diseases, for example people living with dementia or, as it was then perceived, ‘suffering from dementia’ [ 23 ].…”

Section: Methodsmentioning

confidence: 99%

Views of people living with dementia and their carers on their present and future: a qualitative study

Nimmons¹,

Manthorpe

West

et al. 2023

BMC Palliat Care

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Background Dementia leads to multiple issues including difficulty in communication and increased need for care and support. Discussions about the future often happen late or never, partly due to reluctance or fear. In a sample of people living with dementia and carers, we explored their views and perceptions of living with the condition and their future. Methods Semi-structured interviews were conducted in 2018-19 with 11 people living with dementia and six family members in England. Interviews were audio-recorded, transcribed and analysed using reflexive thematic analysis. Results Findings were explored critically within the theory of social death and three themes were developed: (1) loss of physical and cognitive functions, (2) loss of social identity, and (3) social connectedness. Most participants living with dementia and carers wanted to discuss the present, rather than the future, believing a healthy lifestyle would prevent the condition from worsening. Those with dementia wanted to maintain control of their lives and demonstrated this by illustrating their independence. Care homes were often associated with death and loss of social identity. Participants used a range of metaphors to describe their dementia and the impact on their relationships and social networks. Conclusion Focusing on maintaining social identity and connectedness as part of living well with dementia may assist professionals in undertaking advance care planning discussions.

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Section: Methodsmentioning

confidence: 99%