Neuropsychological feedback services improve quality of life and social adjustment

Rosado, Dana L.; Buehler, Susan; Botbol-Berman, Emilie; Feigon, Maia; León, Adeline; Luu, Hien; Carrión, Carmen I.; Gonzalez, Mitzi; Rao, Julia; Greif, Taylor R.; Seidenberg, Michael; Pliskin, Neil H.

doi:10.1080/13854046.2017.1400105

Cited by 33 publications

(16 citation statements)

References 17 publications

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“…Given that research has identified low adherence rates to neuropsychological testing recommendations in multiple sclerosis (38%), it may be preferable to provide additive follow-up care (in-person feedback and case management) where possible, to improve compliance and increase utility for such an intervention. 14,31,35,36…”

Section: Discussionmentioning

confidence: 99%

“…13 The present study sought to fill this gap by comparing a standard care intervention (neuropsychological assessment with phone feedback of recommendations) with the inclusion of additive follow-up procedures (in-person feedback and case management), as these have been efficacious in improving adherence to non-medication treatment recommendations in other illness populations. 14,15 Given that women with multiple sclerosis are at a higher risk for loss of employment, the present intervention specifically targeted employed women. 9…”

Section: Introductionmentioning

confidence: 99%

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A neuropsychologically-based intervention with increased follow-up support for employed women with multiple sclerosis: a pilot randomized controlled trial

et al. 2020

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Objective: To evaluate feasibility and acceptability of a neuropsychologically-based vocational intervention with increased follow-up support for women with multiple sclerosis. Design: Single-blinded parallel-group randomized controlled trial with 12-month follow-up. Setting: Tertiary-care multiple sclerosis center. Participants: Forty-nine employed women with multiple sclerosis meeting criteria on measures of cognitive dysfunction (Symbol Digit Modalities Test), fatigue (Fatigue Severity Scale), and/or depression (Beck Depression Inventory/Patient Health Questionnaire). Interventions: Participants received either neuropsychological testing and phone feedback regarding findings and tailored recommendations (standard-care treatment), or testing, in-person feedback, and two calls from a care-coordinator (experimental treatment). Measures: Feasibility measures included enrollment and attrition rates, and compliance to recommendations at 12-months between groups. Acceptability was evaluated by participants’ report of benefit from interventions. Secondary analyses included evaluation of symptom changes (cognition, fatigue, depression) from baseline to 12-months. Results: Of 49 women meeting screening measure thresholds, 44 were randomized to treatment groups (attrition: standard-care = 8, experimental = 6), and 30 completed the study (standard-care = 14, experimental = 16). Recommendation adherence rates did not significantly differ between standard-care and experimental groups (31% vs 49%). However, 16/16 experimental participants at least partially completed given recommendations as compared to 8/14 in the standard-care group. Participants across groups (97%) reported benefit from participation. No significant differences in symptom outcomes between groups at 12-months. Conclusion: In-person feedback and care-coordinator calls were feasible and acceptable additions to a neuropsychological intervention and may serve to increase recommendation adherence. Given high drop-out rate, particularly prior to testing, future research may explore avenues to improve completion rates and maximize benefits of such interventions.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

A neuropsychologically-based intervention with increased follow-up support for employed women with multiple sclerosis: a pilot randomized controlled trial

et al. 2020

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“…Previous research showed that providing the patient and family with extensive feedback on the neuropsychological findings was not a universal service in Dutch MCs (Gruters et al, 2019). However, providing patients with feedback on their cognitive performance was shown to lead to improved quality of life and social adjustment (Rosado et al, 2018). Other studies have also shown that patients evaluated the feedback they received from the neuropsychologist as useful (Bennett-Levy et al, 1994;Postal & Armstrong, 2013;Westervelt et al, 2007).…”

Section: Discussionmentioning

confidence: 99%

Neuropsychological assessment and diagnostic disclosure at a memory clinic: A qualitative study of the experiences of patients and their family members

Gruters

Christie

Ramakers

et al. 2020

The Clinical Neuropsychologist

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Objective: The aim of this study was to gain insight into the experiences of patients and their family members regarding a neuropsychological assessment (NPA) and the diagnostic disclosure given by the medical specialist (psychiatrist, geriatrician, or their residents) at the memory clinic (MC). Method: Patients with and without a cognitive impairment and their family members were recruited from three Dutch MCs. Four focus groups with 14 patients and 13 family members were analyzed using both inductive and deductive content analysis. Results: Three themes were identified: uncertainty, early diagnostic paradox, and knowledge utilization. High levels of uncertainty were experienced throughout the NPA and diagnostic disclosure. The early diagnostic paradox refers to the coexistence of negative emotions, feeling distressed due to undergoing an NPA that made them aware of their cognitive complaints, and the experience of relief due to insight given by the outcome of the NPA and medical diagnosis. Knowledge utilization refers to a low retention of medical information. Conclusion: Clinicians can reduce uncertainty by using clear communication, limiting interruptions during an NPA, and paying attention to contextual factors. Low information retention could possibly be improved by involving a family member and using visual aids or written information during the diagnostic disclosure. Finally, participants also appreciated being provided with neuropsychological feedback on the strengths and weaknesses of their cognitive profiles and with guidance on how to manage this diagnosis in their daily lives.

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“…[12][13][14] Adherence to treatment recommendations is likely beneficial to people with MS as with other populations, 15 but data are insufficient. In addition, although the literature indicates that oral feedback is beneficial for patients and improves adherence, [16][17][18][19] it is unknown whether written and/or oral feedback leads to better adherence to treatment recommendations in people with MS.…”

Section: Methodsmentioning

confidence: 99%

Short Report: Adherence to Neuropsychological Recommendations in Patients with Multiple Sclerosis

Stimmel¹,

Shagalow²,

Seng³

et al. 2019

International Journal of MS Care

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Background: Adherence to nonmedication recommendations is typically low, as seen in various health populations. Because literature on adherence to treatment recommendations made after neuropsychological testing in multiple sclerosis (MS) is lacking, this study evaluated adherence and reasons for nonadherence. Relationships between adherence to recommendations and various other factors in patients with MS were also evaluated. Methods: Of 66 adult patients seen for neuropsychological testing at an MS center, 55 were eligible for this study. Forty-five patients (mean age, 43.4 years; 75.6% women) were reached by phone, and all agreed to an interview involving questions regarding adherence to treatment recommendations. Other information was obtained through retrospective medical record review. Results: Overall self-reported adherence to recommendations made from neuropsychological testing was 38%. Adherence rates varied by recommendation type: psychopharmacological management had the highest rate (80%), and referrals for cognitive rehabilitation had the lowest (6.5%). Reasons for nonadherence included needing more information and wanting to speak with one's physician regarding the recommendations. Adherence was associated with patients' ability to spontaneously recall at least some of their recommendations and with receiving both a written report and a phone call with test results. Conclusions: Adherence to recommendations made after neuropsychological testing for patients with MS is low. Points of intervention may be to give directed feedback for each recommendation and to provide both a written report and a phone call with results and recommendations. Asking patients to repeat back the recommendations may be a simple and efficient way to increase understanding and improve adherence.

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Neuropsychological feedback services improve quality of life and social adjustment

Cited by 33 publications

References 17 publications

A neuropsychologically-based intervention with increased follow-up support for employed women with multiple sclerosis: a pilot randomized controlled trial

A neuropsychologically-based intervention with increased follow-up support for employed women with multiple sclerosis: a pilot randomized controlled trial

Neuropsychological assessment and diagnostic disclosure at a memory clinic: A qualitative study of the experiences of patients and their family members

Short Report: Adherence to Neuropsychological Recommendations in Patients with Multiple Sclerosis

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