Neurodiversity studies

Rosqvist, Hanna Bertilsdotter; Stenning, Anna; Chown, Nick

doi:10.4324/9780429322297-23

Cited by 27 publications

(37 citation statements)

References 1 publication

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“…Frost's model encapsulates the enhanced stress burden that stigmatised populations experience, termed 'minority stress' (Meyer, 2003). Botha and Frost (2020) examined the impact of minority stress on well-being outcomes in autistic people (Botha & Frost, 2020), who constitute a 'neurominority' (Bertilsdotter-Rosqvist et al, 2020). They found that autistic adults were more likely to experience negative events (including victimisation), which predicted lower mental well-being and heightened psychological distress.…”

Section: Introductionmentioning

confidence: 99%

‘I felt like I deserved it because I was autistic’: Understanding the impact of interpersonal victimisation in the lives of autistic people

Pearson

Rose²,

Rees

2022

Autism

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Research suggests that there is a high prevalence of interpersonal violence and victimisation within the autistic population, and that this accounts for poor mental health outcomes. This study aimed to examine the impact of interpersonal violence and victimisation on autistic adults from their own perspective and explore what helps or hinders their recovery. In total, 102 autistic adults completed either an online survey or a spoken interview about their experiences of interpersonal violence and victimisation. We analysed the data using a thematic analysis, and found four themes: (1) The usual for autism (expectations of victimisation, experiences of othering), (2) Personhood revoked: The cost of living (being part of a neurominority, trauma, masking and burnout), (3) Unpacking the baggage (impact of hermeneutical injustice) and (4) ‘ If you want to make an apple pie from scratch, you have to invent the universe first’ (structural inequality/power dynamics, support and community). Findings highlight the importance of considering the relationship between stigma and victimisation, and the relationship between trauma, masking, and burnout in autistic people. Reducing barriers to support and recovery are contingent on reducing structural inequality and providing better training about autistic people to frontline professionals. Lay abstract Research suggests that autistic people are more likely to be hurt by someone they know (e.g. a friend or a family member) compared to non-autistic people. In this study, we wanted to know how being hurt by someone you know affects autistic people, and what might help them recover. In total, 102 autistic people took part in an interview, where we asked questions like how being hurt by people they know had made them feel and whether anyone they had asked for help had done a good job of supporting them. We analysed what they had said using thematic analysis, which involved reading what everyone said and looking for common themes. Our findings showed that a lot of autistic people think it is normal to be hurt by people you know because it has happened to them so much. This makes many autistic people feel like they need to mask parts of themselves to stay safe, but this also makes them really exhausted. It took some people a long time to realise what had happened to them was wrong, and it was hard to ask for help. People who did ask for help often had bad experiences with professionals (e.g. police) who did not know much about autistic people. They said better support would come from creating more autistic-run support groups and educating people about autism. These findings are important for working out how to help people who have been hurt by people they know.

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Section: Introductionmentioning

confidence: 99%

‘I felt like I deserved it because I was autistic’: Understanding the impact of interpersonal victimisation in the lives of autistic people

Pearson

Rose²,

Rees

2022

Autism

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“…Using this SDT-based framework as a foundation, our following projects focus on understanding potential positive aspects of ADHD, and a pilot of a treatment approach. Recent research highlights the critical nature of lived experience accounts, particularly in neurodivergent populations (Grant & Kara, 2021; Milton & Bracher, 2013; Rosqvist et al, 2020b; Stenning & Rosqvist, 2021). Examining ADHD lived experience through the lens of SDT may provide new insights into the positives offered by ADHD.…”

Section: Summary and Future Workmentioning

confidence: 99%

Seeking connection, autonomy, and emotional feedback: A self-determination theory of self-regulation in attention-deficit hyperactivity disorder.

Champ¹,

Adamou²,

Tolchard³

2023

Psychological Review

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“…The social model recognises/makes the crucial difference between impairment and disability (Oliver, 1990). Within this model, impairment is defined ‘in relation to a species norm in terms of functional ability’ (Chapman, 2020, p. 218) or ‘loss’ in some ability that is assumed to be common to humans with impairments themselves' (Rosqvist, Chown, & Stenning, 2020, p. 5). It considers disability to be societal failure, failing to accommodate and accept impaired individuals (Oliver, 1990).…”

Section: Literature Reviewmentioning

confidence: 99%

“…It considers disability to be societal failure, failing to accommodate and accept impaired individuals (Oliver, 1990). People are disabled by ableist structures, both physical and attitudinal (Rosqvist, Chown, & Stenning, 2020, p. 5). Rather than an individual issue, the social model emphasises ‘material factors, social relations and power structures that exclude people with a disability’ (Verhaeghe, Van der Bracht, & Van de Putte, 2016, p. 234).…”

Section: Literature Reviewmentioning

confidence: 99%

“…The social model, hence, argues for the removal of these barriers and has been accompanied by a social movement designed to politically address the social exclusion of disabled people (Verhaeghe, Van der Bracht, & Van de Putte, 2016, p. 234). Within the social model it is the lived experience that is essential to further understanding and research of the barriers to independence and equality (Rosqvist, Chown, & Stenning, 2020, p. 5).…”

Section: Literature Reviewmentioning

confidence: 99%

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Exploring barriers to social inclusion for disabled people: perspectives from the performing arts

Collins

Rentschler

Williams

et al. 2021

Journal of Management & Organization

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Although the potential of arts to promote social inclusion is recognised, barriers to social inclusion for disabled people in the arts is under-researched. Based on 34 semi-structured interviews with disabled people and those without disability from four arts organisations in Australia, the paper identifies barriers for social inclusion for disabled people within performing arts across four dimensions: access; participation; representation and empowerment. Findings highlight barriers are societal, being created with little awareness of needs of disabled people, supporting the social model of disability. Findings have implications beyond social inclusion of disabled people within the arts, demonstrating how the arts can empower disabled people and enable them to access, participate and represent themselves and have a voice. Our framework conceptualises these four barriers for social inclusion for disabled people for management to change.

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Neurodiversity studies

Cited by 27 publications

References 1 publication

‘I felt like I deserved it because I was autistic’: Understanding the impact of interpersonal victimisation in the lives of autistic people

‘I felt like I deserved it because I was autistic’: Understanding the impact of interpersonal victimisation in the lives of autistic people

Seeking connection, autonomy, and emotional feedback: A self-determination theory of self-regulation in attention-deficit hyperactivity disorder.

Exploring barriers to social inclusion for disabled people: perspectives from the performing arts

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