Neuro-oncology family caregivers’ view on keeping track of care issues using eHealth systems: it’s a question of time

Abstract

support services, but that those who experience more care issues would prefer more support, particularly in the early disease phase. Keeping track of care issues was thought to provide more insight into unmet needs and help them find professional help, but it requires investment of time and takes discipline. Caregivers preferred a brief and easy-touse 'blended care' instrument that combines digital monitoring with personal feedback. The present study shows that the preferences of family caregivers in neuro-oncology toward keeping track of care issues are likely not heavily influenced by country-or culture-specific differences. The development of any instrument thus has the potential to benefit a large group of family caregivers.

Telemedicine in Neurological Disorders: Opportunities and Challenges

“…Innovative models suggest that routine follow-up visits can be conducted via telemedicine without undermining the patient satisfaction or compromising the clinical outcomes. [25][26][27] And Table 1. Overview of the Main Evidences Supporting the ''Opportunities'' for Telemedicine…”

Feasibility of implementing an electronic social support and resource visualization tool for caregivers in a neuro-oncology clinic

“…However, in a time when support is critical, caregivers may distance themselves from available support as they become immersed in caregiving tasks, opting to spend all available time with the patient [20]. Caregivers also report that they find it stressful to identify and organize available resources, and instead try to handle everything themselves [21–23].…”

Telemedicine for Outpatient Neurosurgical Oncology Care: Lessons Learned for the Future During the COVID-19 Pandemic

“…8 Its use in neurosurgical oncology has been limited to institutional collaborations, rehabilitation, and psychological support. [9][10][11][12] This knowledge gap poses a challenge to optimal delivery of outpatient care, particularly in the current pandemic. Given our institutions' early adoption of telemedicine, we summarize the necessary capabilities and recommendations for the incorporation of telemedicine in outpatient surgical neuro-oncology sparked by the COVID-19 pandemic, with the expectation that this technology continues to be optimized and used beyond this period.…”