Negotiating boundaries

Aarhus, Rikke; Ballegaard, Stinne Aaløkke

doi:10.1145/1753326.1753509

Cited by 54 publications

(14 citation statements)

References 25 publications

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“…Although patients have divergent opinions about the tensions between religion and healthcare, these tensions highlight that there is no binary division between health and non-health domains in the home. Aarhus and Ballegard applied the integration-segregation continuum to describe the material appearances of the boundary work of patients who introduce self-care into the home [1]. P5's kitchen table is a reminder of the presence of care demands in the daily life of patients with chronic conditions.…”

Section: Implications For Designmentioning

confidence: 99%

"It just seems outside my health"

Lim

Berry

Hirsch

et al. 2016

Proceedings of the 2016 ACM Conference on Designing Interactive Systems

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To improve care for the growing number of older adults with multiple chronic conditions, physicians and other healthcare providers need to better understand what is most important in the lives of these patients. In a qualitative study of home visits with patients and family caregivers, we found that patients withhold information from providers when communicating about what they deem important to their health and well-being. We examine the various motivations and factors that explain communication boundaries between patients and their healthcare providers. Patients' disclosures reflected perceptions of what was pertinent to share, assumptions about the consequences of sharing, and the influence of interpersonal relationships with providers. Our findings revealed limitations of existing approaches to support patient-provider communication and identified challenges for the design of systems that honor patient needs and preferences.

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Section: Implications For Designmentioning

confidence: 99%

"It just seems outside my health"

Lim

Berry

Hirsch

et al. 2016

Proceedings of the 2016 ACM Conference on Designing Interactive Systems

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show abstract

“…Moreover, work is often carried out on the move [13,14] and not by sitting still at a desk [15,16] In addition, many different kinds of work are carried out in the home: paid work, care work and housework [6,[17][18][19] to mention a few. Even when discussing working from home, Bødker [6,9] seems to agree with the polarization of rationality and emotion emphasized in the first dimension.…”

Section: Work and The Automation Of Work Tasksmentioning

confidence: 99%

Do-it-yourself services and work-like chores: on civic duties and digital public services

Verne

Bratteteig

2016

Pers Ubiquit Comput

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Doing civic duties is neither paid work nor leisure: it is a private, work-like activity. Digital services enrol customers in doing work tasks. Also digital public services delegate work to citizens, but there are important differences between automation for citizens doing their civic duties and services that customers choose to use. In this paper, we discuss how digitally automated services remove some tasks but also introduce new work tasks for citizens and how citizens handle these. We present a study of citizens' calls to a public service provider (the tax authorities) requesting help carrying out their civic duties. The analysis of citizens' problems with doing their taxes is a basis for suggesting an alternative design of digital tax services that can increase citizens' mastery and autonomy when doing their taxes. We suggest an approach for designing coherent tasks for the citizen, and how doing one's civic duties can be seen as work-and as a part of life. We argue that designing for automated public services need to apply a citizen-centric perspective in order to maintain a basis for citizens to participate in democratic processes in society.

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“…Others mention that self-care has a practical nature that requires patients to take care of their health [Storni 2010] by observing signs, managing symptoms, and performing lifestyle decisions [Mamykina et al 2006;Aarhus et al 2009] to avoid further problems [Glasemann et al 2010]. Only in one paper is an attempt made to formally define self-care; Aarhus and Ballegaard define self-care as "the tasks a person has been requested to do outside a clinical setting by healthcare providers" [Aarhus and Ballegaard 2010]. However, this definition does not fit all studies in the review because it expects clinicians 20 to request patients to perform care tasks.…”

Section: Perspectivementioning

confidence: 99%

“…(1) Technology can help in the self-management of a chronic condition that is especially difficult to manage due to its characteristics and treatment (17 studies). User-Centred Design [Mamykina et al 2008;Güldenpfennig and Fitzpatrick 2013] Participatory Design [Glasemann et al 2010;Kusk et al 2013] Ethnographically Inspired [Mamykina et al 2006[Mamykina et al , 2008Aarhus and Ballegaard 2010;Kilbourn 2010;Storni 2010Storni , 2011Grönvall and Verdezoto 2013a] (2) Chronic conditions represent a large cost for healthcare systems, and these may be reduced through the introduction of technology (four studies). (3) Introducing technology is seen as an opportunity to explore technology and understand self-care (eight studies).…”

Section: Perspectivementioning

confidence: 99%

“…Sharing Care Activities with Informal Carers. Self-care is likely to happen in a context with one or more informal caregivers participating in both care decisions and activities, even when the patient is not dependent on external support [Aarhus and Ballegaard 2010]. The involvement of informal caregivers varies from case to case, depending on the chronic condition, its current stage, and the personalities, values, and routines of both patients and caregivers.…”

Section: Opportunities Created By Self-care Technologies In the Reviewmentioning

confidence: 99%

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Self-Care Technologies in HCI

Nunes

Verdezoto

Fitzpatrick

et al. 2015

ACM Trans. Comput.-Hum. Interact.

183

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Many studies show that self-care technologies can support patients with chronic conditions and their carers in understanding the ill body and increasing control of their condition. However, many of these studies have largely privileged a medical perspective and thus overlooked how patients and carers integrate selfcare into their daily lives and mediate their conditions through technology. In this review, we focus on how patients and carers use and experience self-care technology through a Human-Computer Interaction (HCI) lens. We analyse studies of self-care published in key HCI journals and conferences using the Grounded Theory Literature Review (GTLR) method and identify research trends and design tensions. We then draw out opportunities for advancing HCI research in self-care, namely, focusing further on patients' everyday life experience, considering existing collaborations in self-care, and increasing the influence on medical research and practice around self-care technology. CCS Concepts: r Applied computing → Consumer health; r Human-centered computing → Interaction design process and methods; HCI theory, concepts and models;

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Negotiating boundaries

Cited by 54 publications

References 25 publications

"It just seems outside my health"

"It just seems outside my health"

Do-it-yourself services and work-like chores: on civic duties and digital public services

Self-Care Technologies in HCI

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