Needs of patients and families during the wait for a donor heart

Haugh, Kathy Henley; Salyer, Jeanne

doi:10.1016/j.hrtlng.2006.11.003

Cited by 29 publications

(34 citation statements)

References 35 publications

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“…Earlier research has shown that patients, waiting for heart transplantation, with dependent children felt concern that their partner largely had to take responsibility for children's well-15 being during the patients' illness (20). Regarding children of heart or lung transplant patients, studies have revealed that these patients lacked specifically age-dependent tailored information and support from healthcare services (6,24,32).…”

Section: Discussionmentioning

confidence: 99%

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Relative's experiences before and after a heart or lung transplantation

2014

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Relative's experiences before and after a heart or lung transplantation.Ivarsson, Bodil; Ekmehag, Björn; Sjöberg, Trygve Relative's experiences before and after a heart or lung transplantation. Heart & Lung, 43(3), 198-203. DOI: 10.1016/j.hrtlng.2014 General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal Take down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim. 1Relative's experiences before and after a heart or lung transplantation Bodil Ivarsson, RN, PhD (1,2) Björn Ekmehag, MD, PhD, (3), Trygve Sjöberg, PhD (1) Department of Cardiothoracic Surgery, Lund University and Skåne University Hospital (1) and Medical Services, Lund (2)

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Section: Discussionmentioning

confidence: 99%

“…Studies have shown economic strain for more than half of the relatives of patients on the waiting list (18,19). Therefore, different types of support and information are a matter of great importance for the relatives (8,20,21).…”

Section: Introductionmentioning

confidence: 99%

Relative's experiences before and after a heart or lung transplantation

2014

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“…Much like the uncertainty that occurs in chronic illness, lack of sufficient information to make the future more predictable is a constant concern. 37 In research 38 on patients with heart failure who were waiting for donor hearts, uncertainty was the primary theme for both patients and the patients' families. Similarly, our patients' worry about what would happen next was compounded by apprehension about the reliability of the VAD and the patients' ability to react if something went wrong.…”

Section: Discussionmentioning

confidence: 99%

Edgar Allan Poe, “The Pit and the Pendulum,” and Ventricular Assist Devices

Zambroski

Combs

Cronin

et al. 2009

Critical Care Nurse

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“…Support and information for caregiving relatives are also important (Haugh and Salyer, 2007, Meltzer and Rodrigue, 2001, Ullrich et al, 2004.…”

Section: Introductionmentioning

confidence: 99%

Waiting for a heart or lung transplant: Relatives’ experience of information and support

Ivarsson¹,

Ekmehag²,

Sjöberg³

2014

Intensive and Critical Care Nursing

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Waiting for a heart or lung transplant: Relatives' experience of information and support.Ivarsson, Bodil; Ekmehag, Björn; Sjöberg, Trygve Link to publication Citation for published version (APA): Ivarsson, B., Ekmehag, B., & Sjöberg, T. (2014). Waiting for a heart or lung transplant: Relatives' experience of information and support. Intensive & Critical Care Nursing, 30(4), 188-195. DOI: 10.1016/j.iccn.2014 General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights.• Users may download and print one copy of any publication from the public portal for the purpose of private study or research.• You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal 1 WAITING FOR A HEART OR LUNG TRANSPLANT: RELATIVES' EXPERIENCE OF INFORMATION AND SUPPORT Abstract ObjectivesTo describe the relatives' experiences of information and support while the heart or lung transplant candidates were waiting for a heart or lung transplantation. Methodology/designThe critical incident technique was used. Incidents were collected via interviews with 18 relatives (28-73 years old) of heart or lung transplant patients within four weeks of the patients being accepted onto the transplant waiting list. FindingssA total of 286 important events, both positive and negative, were identified and divided into two main areas: "Experiencing information and support" and "Reflecting upon information and support." "Experiencing information and support" was associated with "dissatisfaction with the health-care system", "being relatively satisfied", "supporting patients" and "the role of social networks." "Reflecting upon information and support" was associated with "finding strength" and "uncomfortable with emotions". Relatives experiences suggest that needs can be met through specific targeted information and support for them as well as mediating contact to previously transplanted persons. ConclusionThe findingss indicate a gap between the information and support that relatives need and receive, and that more attention should be paid to information and support for this group. By increasing awareness among healthcare professionals and the community, interventions can be developed that benefit relatives.

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Needs of patients and families during the wait for a donor heart

Cited by 29 publications

References 35 publications

Relative's experiences before and after a heart or lung transplantation

Relative's experiences before and after a heart or lung transplantation

Edgar Allan Poe, “The Pit and the Pendulum,” and Ventricular Assist Devices

Waiting for a heart or lung transplant: Relatives’ experience of information and support

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