Needs assessment of rural and remote women travelling to the city for breast cancer treatment

Davis, Cindy; Girgis, Afaf; Williams, Philippa; Beeney, Linda J.

doi:10.1111/j.1467-842x.1998.tb01431.x

Cited by 40 publications

(61 citation statements)

References 12 publications

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“…In the Australian study by Davis et al [11] in 1998, only 39% of the participants received financial assistance, 19% of whom had trouble claiming the money for which they were eligible. In 2003 [36], the same researchers found that 47% of the women had received financial assistance, and 13% had difficulties organising or claiming financial assistance, indicating that only small improvements had been realised since the earlier study.…”

Section: Quantitative Studies With No Control Groupmentioning

confidence: 99%

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Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: a systematic review

Butow

Phillips

Schweder

et al. 2011

Support Care Cancer

207

232

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PurposeTo describe what is known about levels of morbidity and the experience and needs of people with cancer, and their carers, living in rural areas. MethodsA search of online databases for English language papers describing or assessing the prevalence of psychosocial morbidity or needs in a population of rural or regional cancer patients. Excluded: intervention studies, discussion of service delivery, effectiveness of support groups or support via videoconferencing, concentrated on medical outcomes or survival rates, reported differences in the uptake of cancer screening, or concentrated on health attitudes or treatment decision making. ResultsThere were 37 studies included in the review, including 25 quantitative studies (all surveys), 11 of which included a control group of urban patients, and 12 qualitative studies. Until recently, most studies had methodological short-comings. Only two prospective studies were identified, most studies focused on breast cancer and few addressed psychological morbidity. The majority of controlled studies reported worse 3 outcomes for rural patients, who appear to have higher needs in the domains of physical/daily living. This may reflect more limited access to resources, a more selfsufficient lifestyle and personal characteristics, for example, being more stoical and less likely to ask for help. The need to travel for treatment caused many practical, emotional and financial problems for patients and burdened them with additional worry concerning family and work commitments. Some patients reported benefits in sharing experiences with others also forced to stay away from home, but most agreed that staying at home was preferable. ConclusionThis review highlights that whilst we are beginning to get some insight into the needs of people with cancer in rural areas, much is still unknown. Population-based, prospective studies including people with heterogenous cancers from rural and urban settings are needed.

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Section: Quantitative Studies With No Control Groupmentioning

confidence: 99%

“…There were 14 quantitative studies without a control group, three on emotional aspects, three on travel issues and eight on needs and quality of life, all in the active phase of treatment [9,11,[26][27][28][29][30][31][32][33][34][35][36][37]. Only one study [35] was longitudinal.…”

Section: Quantitative Studies With No Control Groupmentioning

confidence: 99%

Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: a systematic review

Butow

Phillips

Schweder

et al. 2011

Support Care Cancer

207

232

View full text Add to dashboard Cite

show abstract

“…4 Rural and remote family members (RRFM) experience significant disruption to family life when critically ill relatives move to a tertiary hospital. [5][6][7] Families make a significant contribution to both the acute and ongoing illness recovery of critically ill patients. 8,9 For critically ill patients, an IHT typically occurs with limited time to fully inform and involve the family.…”

Section: Introductionmentioning

confidence: 99%

The experiences of rural and remote families involved in an inter-hospital transfer to a tertiary ICU: A hermeneutic study

Mackie

Kellett

Mitchell

et al. 2014

Australian Critical Care

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“…Australian women travelling for breast cancer treatment spend over six weeks away from home on average, and many do not receive the financial assistance to which they are entitled. 301 For both local and rural patients, ambulance travel may also be necessary sometimes.…”

Section: Travel and Accommodationmentioning

confidence: 99%

Broken doctor–patient relationships: why won't they listen?

Jefford

Zalcberg

2014

Medical Journal of Australia

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Every user of this rescinded publication acknowledges that the information contained in it may not be accurate, complete or of relevance to the user's purposes. The user undertakes the responsibility for assessing the accuracy, completeness and relevance of the contents of this rescinded publication, including seeking independent verification of information sought to be relied upon for the user's purposes.Every user of this rescinded publication is responsible for ensuring that each printed version contains this disclaimer notice, including the date of recision and the date of downloading the archived Internet version. This work is copyright.Apart from any use as permitted under the Copyright Act 1968, no part may be reproduced by any process without prior written permission from National Breast Cancer Centre. Requests and enquiries concerning reproduction and rights should be addressed to the Copyright Office, National Breast Cancer Centre, Locked Bag 16, Camperdown NSW 1450, Australia.Website:www.nbcc.org.au Email: directorate@nbcc.org.au These guidelines were approved by the National Health and Medical Research Council at its 147th Session on 10 April 2003, under section 14A of the National Health and Medical Research Council Act 1992.Approval for the guidelines by NHMRC is granted for a period not exceeding five years, at which date the approval expires.The NHMRC expects that all guidelines will be reviewed no less than once every five years. Readers should check with the National Breast Cancer Centre for any reviews or updates of these guidelines. RESCINDEDThe strategic intent of the NHMRC is to provide leadership and work with other relevant organisations to improve the health of all Australians by:• fostering and supporting a high quality and internationally recognised research base; • providing evidence based advice; • applying research evidence to health issues thus translating research into better health practice and outcomes; and • promoting informed debate on health and medical research, health ethics and related issues.This document is a general guide to appropriate practice, to be followed subject to the clinician's judgement and the patient's preference in each individual case.The guidelines are designed to provide information to assist decision-making and are based on the best evidence available at the time of publication. C O N T E N T S L I S T O F TA B L E S L I S T O F F I G U R E S F O R E W O R DOptimal care of the patient with cancer incorporates effective physical and psychological care.There are currently several clinical practice guidelines available documenting evidence-based information and treatment recommendations for the physical care of people with cancer, many of which are also available in consumer versions. Some of these treatment guidelines include chapters devoted to psychosocial care.People with cancer suffer significant emotional morbidity. In addition to the distress, fear and grief consequent upon diagnosis, up to 30% experience clinically significant anxiety disorde...

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Needs assessment of rural and remote women travelling to the city for breast cancer treatment

Cited by 40 publications

References 12 publications

Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: a systematic review

Psychosocial well-being and supportive care needs of cancer patients living in urban and rural/regional areas: a systematic review

The experiences of rural and remote families involved in an inter-hospital transfer to a tertiary ICU: A hermeneutic study

Broken doctor–patient relationships: why won't they listen?

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