Needs and challenges among physicians and researchers in thrombosis and hemostasis: Results from an international study

Abstract

BackgroundSpecialty societies, such as the International Society on Thrombosis and Haemostasis (ISTH), are a key source of support for clinical and scientific communities, through the provision of educational activities, tools, and resources to support evidence‐based care and high‐quality, relevant basic science and clinical research.ObjectiveThe aim of this study was to identify areas where the thrombosis and hemostasis (T&H) community is facing challenges and could benefit from the support of ISTH.MethodsA 3‐phase, mixed‐methods study consisting of semistructured individual interviews (phase 1), an online survey (phase 2), and discussion groups (phase 3) was conducted on the challenges experienced by the T&H community. Participants included physicians, clinical and basic science researchers, residents, fellows, students, and industry representatives. Qualitative data were analyzed using thematic analysis. Quantitative data were analyzed using frequency tables and chi‐squares.ResultsThe study included 468 participants in interviews (n = 45), surveys (n = 404), and discussion groups (n = 19). Nine themes emerged that describe areas where the T&H community may benefit from additional support. Three areas were related to diagnosis and testing: thrombosis risk assessment, genetic testing, and diagnosis of von Willebrand disease (VWD). Another 3 were related to treatment decision making: use of anticoagulants with certain patients, preventive treatments in bleeding disorders, and VWD treatment. The remaining 3 were related to research: collaboration with/among researchers, collaboration between teams to collect data from human subjects, and promotion of basic science research.ConclusionsThis study provides a comprehensive picture of priorities within the T&H community, which should inform the ISTH in its future interventions, including educational offerings and networking opportunities.

Barriers to shared decision-making with women of reproductive age affected by a chronic inflammatory disease: a mixed-methods needs assessment of dermatologists and rheumatologists

“…27 All sources of information, data analyses and points of interpretation were triangulated to obtain an in-depth understanding of the challenges and barriers identified, as well as their underlying causalities. 25 This approach has been effectively used in previous studies to identify educational needs of HCPs [28][29][30] and helps minimise bias. 25 Theoretical framework A discrepancy model was used to assess gaps between 'what is' and 'what should be' 24 via validated constructs of behaviour change relevant to medical education and training.…”