NCCN Virtual Patient Advocacy Summit: Cancer Across the Lifespan

Abstract

Patients with cancer have widely divergent experiences throughout their care from screening through survivorship. Differences in care delivery and outcomes may be due to varying patient preferences, patient needs according to stage of life, access to care, and implicit or explicit bias in care according to patient age. NCCN convened a series of stakeholder meetings with patients, caregivers, and patient advocacy groups to discuss the complex challenges and robust opportunities in this space. These meetings informed the NCCN Virtual Patient Advocacy Summit: Cancer Across the Lifespan held on December 10, 2020, which featured a keynote presentation, multidisciplinary panels, and presentations from patient advocacy organizations. This article encapsulates and expounds upon the findings from the stakeholder meetings and discussions during the summit.

Fight against cancer in Italy: What patients, caregivers and healthy citizens think about care delivery from National Health System

“…In this context, the role of patient advocacy groups and no-profit associations supporting CP&CG become crucial: playing a role as intermediaries between the National HCS and CP&CG they can take part in the process of information, for example, through mass media and education of patients, helping to mend the gap between them and the National HC. (Martin et al, 2021).…”