Abstract:Sensitive research necessitates routine ethical practices of confidentiality, anonymity and worthiness. However, when co-constructing narratives with participants, the nurse researcher also faces unexplored ethical issues that arise out of the emotional intensity and professional responsibility inherent in the relationship. Such issues may be recognized and managed using clinical supervision in addition to academic supervision. Researcher vulnerability adds depth and complexity to human inquiry.
“…The issues of privacy and confidentiality are identified as reasons for its particular importance in interview research [43,47,55,57,[65][66][67]72]. Whilst it is desirable for the participant to know the privacy and confidentiality 'rules' before agreeing to the interview, the privacy issue suggests that this cannot be entirely assured.…”
Section: Informed Consentmentioning
confidence: 99%
“…Privacy as an issue per se and not simply an element of confidentiality is identified in a number of papers [4,17,27,30,31,34,37,40,50,55,65,66,70,74]. Interviews can delve into areas unanticipated at the outset.…”
“…The issues of privacy and confidentiality are identified as reasons for its particular importance in interview research [43,47,55,57,[65][66][67]72]. Whilst it is desirable for the participant to know the privacy and confidentiality 'rules' before agreeing to the interview, the privacy issue suggests that this cannot be entirely assured.…”
Section: Informed Consentmentioning
confidence: 99%
“…Privacy as an issue per se and not simply an element of confidentiality is identified in a number of papers [4,17,27,30,31,34,37,40,50,55,65,66,70,74]. Interviews can delve into areas unanticipated at the outset.…”
“…These researchers face a situation where participant distress is ethically justifiable because it is outweighed by respect for participant autonomy and the overall benefits of the research project. 20 However, this may cause significant moral uncertainty for the researcher and distress about how to proceed. The lack of consideration for the emotional safety of researchers in ethics review processes has been acknowledged previously by qualitative researchers, 15 yet these complexities of qualitative health research remain unrecognised in research guidelines and ethics application review processes.…”
Section: Therapeutic Interviews and The Emotional Impact Of Qualitatimentioning
confidence: 99%
“…19(p338) Boundary issues may also arise for researchers with a clinical background, particularly members of caring professions such as nursing, where the researcher-participant relationship challenges the researcher to balance their professional values with the constraints of the researcher role (this will be addressed in the next section). 20 These 'shifts' need acknowledgment and discussion in terms of their ethical implications for research practice. 21,14 Rapport and friendship tap a common affective vein, drawing on attributes such as approachability, warmth, interest, trustworthiness and concern.…”
Section: Participant Relationships and Unclear Relational Boundariesmentioning
“…Social harm can occur when the ramifications of a research project extend beyond the participant themselves and others feel as if their data has been wrongly used. Equally important is the need to protect researchers and the potential harm that the research can have on them, for example, emotional intensity in the early stages of research or being a researcher practitioner (Kidd and Finlayson 2006).…”
Section: Implications For Scientific Value and Potential Harmmentioning
This article addresses the general ethical issues of accessing online personal data for research purposes. The authors discuss the practical aspects of online research with a specific case study that illustrates the ethical challenges encountered when accessing data from Kooth, an online youth web-counselling service. This paper firstly highlights the relevance of a process-based approach to ethics (Markham and Buchanan 2012) when accessing highly sensitive data and then discusses the ethical considerations and potential challenges regarding the accessing of public data from Digital Mental Health (DMH) services. It presents solutions that aim to protect young DMH service users as well as the DMH providers and researchers mining such data. Special consideration is given to service users' expectations of what their data might be used for, as well as their perceptions of whether the data they post is public, private or open. We provide recommendations for planning and designing online research that includes vulnerable young people as research participants in an ethical manner. We emphasise the distinction between public, private and open data, which is crucial to comprehend the ethical challenges in accessing DMH data. Among our key recommendations, we foreground the need to consider a collaborative approach with the DMH providers while respecting service users' control over personal data, and we propose the implementation of digital solutions embedded within the platform for explicit opt-out/opt-in recruitment strategies and 'read more' options (Bergin and Harding 2016).
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