National Randomized Controlled Trial of Virtual House Calls for People with Parkinson's Disease: Interest and Barriers

Dorsey, E. Ray; Achey, Meredith A.; Beck, Christopher A.; Beran, Denise B.; Biglan, Kevin; Boyd, Cynthia M.; Schmidt, Péter; Simone, Richard; Willis, Allison W.; Galifianakis, Nicholas B.; Katz, Maya; Tanner, Caroline M.; Dodenhoff, Kristen; Ziman, Nathan; Aldred, Jason; Carter, Julie; Jimenez-Shahed, Joohi; Hunter, Christine; Spindler, Meredith; Mari, Zoltán; Morgan, John C.; McLane, Dedi; Hickey, Patrick; Gauger, Lisa; Richard, Irene Hegeman; Bull, Michael; Mejia, Nicte I.; Bwala, Grace; Nance, Martha; Shih, Ludy C.; Anderson, Lauren; Singer, Carlos; Zadikoff, Cindy; Okon, Natalia; Feigin, Andrew; Ayan, J.; Vaughan, Christina; Pahwa, Rajesh; Cooper, Jessica; Webb, S. J.; Dhall, Rohit; Hassan, Anhar; Weis, Delana M; DeMello, Steven; Riggare, Sara; Wicks, Paul; Smith, Joseph M.; Keenan, H. Tait; Korn, Ryan; Schwarz, Heidi B.; Sharma, Saloni; Stevenson, E. Anna; Zhu, William

doi:10.1089/tmj.2015.0191

Cited by 47 publications

(61 citation statements)

References 54 publications

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“…As previously described, 7,20 we conducted a 12-month randomized controlled trial investigating whether providing remote neurologic care into the homes of people with PD is feasible, beneficial, and valuable (Level III evidence). We compared usual care provided by local physicians to usual care augmented by 4 virtual visits from a remote neurologist.…”

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confidence: 99%

“…The National Parkinson Foundation also hosted a national helpline for study-related information. 20 Interested individuals were pointed to a 1-page website where they could reach out to the coordinating center through an online form. The coordinating center directed these individuals to an appropriate site.…”

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confidence: 99%

“…Upon enrolling, participants were sent an e-mail link to Health Insurance Portability and Accountability Act-compliant video conferencing software developed by SBR Health (Cambridge, MA), which downloads video conferencing software from Vidyo (Hackensack, NJ) and is hosted by ID Solutions (Indianapolis, IN). 20 Participants who did not have a web-enabled camera were mailed one (Creative Labs Live! Cam Chat HD camera; Creative Technology, Ltd., Singapore).…”

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confidence: 99%

“…Cam Chat HD camera; Creative Technology, Ltd., Singapore). 20 Technological support was provided by study coordinators by phone.…”

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confidence: 99%

“…Individuals randomized to the control group had the option to receive one virtual visit after the study's conclusion. 20 Outcomes. Feasibility, as defined by the proportion of people who completed at least one virtual visit and the proportion of virtual visits completed as scheduled; and efficacy, as defined by the 12-month change in the Parkinson's Disease Questionnaire-39 (PDQ-39), comprised the primary outcomes.…”

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confidence: 99%

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National randomized controlled trial of virtual house calls for Parkinson disease

Beck

Beran²,

Biglan³

et al. 2017

Neurology

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177

184

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Objective: To determine whether providing remote neurologic care into the homes of people with Parkinson disease (PD) is feasible, beneficial, and valuable.Methods: In a 1-year randomized controlled trial, we compared usual care to usual care supplemented by 4 virtual visits via video conferencing from a remote specialist into patients' homes. Primary outcome measures were feasibility, as measured by the proportion who completed at least one virtual visit and the proportion of virtual visits completed on time; and efficacy, as measured by the change in the Parkinson's Disease Questionnaire-39, a quality of life scale. Secondary outcomes included quality of care, caregiver burden, and time and travel savings.Results: A total of 927 individuals indicated interest, 210 were enrolled, and 195 were randomized.Participants had recently seen a specialist (73%) and were largely college-educated (73%) and white (96%). Ninety-five (98% of the intervention group) completed at least one virtual visit, and 91% of 388 virtual visits were completed. Quality of life did not improve in those receiving virtual house calls (0.3 points worse on a 100-point scale; 95% confidence interval [CI] 22.0 to 2.7 points; p 5 0.78) nor did quality of care or caregiver burden. Each virtual house call saved patients a median of 88 minutes (95% CI 70-120; p , 0.0001) and 38 miles per visit (95% CI 36-56; p , 0.0001).Conclusions: Providing remote neurologic care directly into the homes of people with PD was feasible and was neither more nor less efficacious than usual in-person care. Virtual house calls generated great interest and provided substantial convenience.ClinicalTrials.gov identifier: NCT02038959.

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confidence: 99%

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confidence: 99%

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confidence: 99%

“…Cam Chat HD camera; Creative Technology, Ltd., Singapore). 20 Technological support was provided by study coordinators by phone.…”

mentioning

confidence: 99%

mentioning

confidence: 99%

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National randomized controlled trial of virtual house calls for Parkinson disease

Beck

Beran²,

Biglan³

et al. 2017

Neurology

Self Cite

177

184

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Barriers and challenges of using health information technology in home care: A systematic review

Galavi

Montazeri

Ahmadian

2022

Health Planning & Management

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Objective: Despite the benefits of applying Information technology (IT) in-home care some challenges may affect the quality of the services. To deal with these challenges, it is required to identify them before providing such services.Therefore, the aim of this study is to systematically determine the challenges and barriers of using health IT in-home care. Moreover, the possible solutions reported in the included studies were examined. Materials and Methods: We performed a systematic search of the PubMed, Web of Science, and Embase databases for studies published between January 2010 and January 2020. For quality assessment of the included articles the Critical Appraisal Skills Programme and the Effective Public Health Practice Project checklists were used. The Supporting the Use of Research Evidence (Supporting the Use of Research Evidence (SURE)) framework was used to categorise the identified barriers and challenges. Results: Of 1755 retrieved studies, 47 studies were included. The main barriers and challenges based on the SURE framework were categorised to Facilities (n = 35), Legislation or regulations (n = 19), Knowledge and skills (n = 18), Attitudes regarding programme acceptability, appropriateness and credibility (n = 16), Financial resources (n = 10), Motivation to change (n = 9), and External commu-

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Acceptance and perception of digital health for managing nutrition in people with Parkinson's disease and their caregivers and their digital competence in the United States: A mixed‐methods study

LoBuono

Shea

Tovar

et al. 2021

Health Science Reports

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Background and aims This mixed‐methods study examined participants' acceptance and perception of using digital health for managing nutrition and participants' digital competence. The results will be formative for making digital nutrition education more effective and acceptable for people with Parkinson's disease (PwPD) and their informal caregivers. Methods Qualitative data were collected through in‐person semi‐structured, dyadic interviews, and questionnaires from 20 dyads (20 PwPD and their caregivers) in the Northeastern United States and analyzed throughout the 2018 to 2019 academic year. Interview transcripts were deductively coded using the framework analysis method. Phrases related to acceptance of digital health were sub‐coded into accept, neutral, or reject and those related to perceptions of digital health were sub‐coded into perceived usefulness, perceived ease of use, and awareness of digital health. Quantitative data were analyzed using independent samples t tests and Fisher's exact tests. Qualitative codes were transformed into variables and compared to digital competence scores to integrate the data. An average acceptance rate for digital health was calculated through examining the mean percent of phrases coded as accept from interview transcripts. Results Twenty‐five of 40 (62.5%) participants used the internet for at least 5 health‐related purposes and the average acceptance rate was 54.4%. Dyads rejected digital health devices if they did not see the added benefit. The majority of participants reported digital health to be useful, but hard to use, and about half felt they needed education about existing digital health platforms. There was no difference in digital competence scores between PwPD and their caregivers (28.6 ± 12.6). Conclusion Findings suggest that dyads accept and use technology but not to its full potential as technology can be perceived as hard to use. This finding, combined with digital competence scores, revealed that education is warranted prior to providing a digital nutrition intervention.

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National Randomized Controlled Trial of Virtual House Calls for People with Parkinson's Disease: Interest and Barriers

Abstract: Background: Delivering specialty care remotely directly into people's homes can enhance access for and improve the healthcare of individuals with chronic conditions. However, evidence supporting this approach is limited. Materials and Methods: Connect.Parkinson is a randomized comparative

Cited by 47 publications

References 54 publications

National randomized controlled trial of virtual house calls for Parkinson disease

National randomized controlled trial of virtual house calls for Parkinson disease

Barriers and challenges of using health information technology in home care: A systematic review

Acceptance and perception of digital health for managing nutrition in people with Parkinson's disease and their caregivers and their digital competence in the United States: A mixed‐methods study

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