National estimates of the quantity and cost of informal caregiving for the elderly with dementia

Langa, Kenneth M.; Chernew, Michael E.; Kabeto, Mohammed U.; Herzog, A. Regula; Ofstedal, Mary Beth; Willis, Robert J.; Wallace, Robert B.; Mucha, Lisa; Straus, Walter L.; Fendrick, A. Mark

doi:10.1111/j.1525-1497.2001.10123.x

Cited by 370 publications

(180 citation statements)

References 43 publications

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“…The evidence of the effects of depression and anxiety in performance on cognitive performance is far from consistence (Han et al, 2008;Langa et al, 2001;Moraes et al, 2010).…”

Section: Discussionmentioning

confidence: 98%

Initial phase of adaptation of Memory Alteration Test (M@T) in a Portuguese sample

Sousa¹,

Pereira²,

Costa³

et al. 2015

Archives of Gerontology and Geriatrics

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“…The evidence of the effects of depression and anxiety in performance on cognitive performance is far from consistence (Han et al, 2008;Langa et al, 2001;Moraes et al, 2010).…”

Section: Discussionmentioning

confidence: 98%

Initial phase of adaptation of Memory Alteration Test (M@T) in a Portuguese sample

Sousa¹,

Pereira²,

Costa³

et al. 2015

Archives of Gerontology and Geriatrics

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“…17,18 This resonated with the participants having a huge caregiving burden, which they felt was present for 24 hours in the day.…”

Section: Views and Responsibilities Of The Caregivermentioning

confidence: 99%

“…17 The amount of time spent in performing caregiving tasks is expected to increase as the dementia progresses. 18 This too is not unexpected, as dementia is a serious neurodegenerative condition, with a progression over approximately 10 years from diagnosis to death.…”

Section: Introductionmentioning

confidence: 99%

Caregiving for people with dementia in a rural context in South Africa

Gurayah

2015

South African Family Practice

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Background: This research is an exploratory pilot study into the phenomenon of caregiving for people with dementia in a rural context in South Africa. Method: This study used a qualitative method of inquiry for conducting individual interviews with five caregivers to collect the data. The interviews were conducted in the local language of isiZulu. All interviews were audiotaped, and then transcribed into English. Transcriptions were analysed using thematic analysis. Findings: There were three main emergent themes, namely views and responsibilities of the caregiver, impact of caregiving, and skills and services to assist the caregiver. There were numerous subsidiary themes such as acceptance of the ageing process, a sense of duty and kinship in African culture, and dealing with problem behaviours. Caregiving was also viewed as a character-building experience, and has major implications such as promoting social isolation, restricting activities of daily living, reducing employment and increasing financial burden. Services that would alleviate caregiver burden are education, caregiver training, a financial grant and respite care. Conclusions: Although these findings are not generalisable, it would appear that caregivers of people with dementia suffer significant psychosocial distress, and would benefit from emotional and financial support. It remains to be seen who will provide this support, but policy-makers as well as governmental and non-governmental organisations will have to factor this into their forward planning to render an effective service for people with dementia and their families. Advocacy groups should also disseminate information on dementia and caregiving responsibility, whilst healthcare professionals should screen for caregiver stress or caregiver burden in individuals caring for people with dementia.

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“…Alzheimer's is the most prevalent form of dementia, with an average survival of 10 years, though this varies depending on the age of onset [14]. As dementia progresses, the afected person requires an increasing amount of help [16] and time [17]. In this situation, caregivers are essential, and it is expected that the number of caregivers of people with dementia will increase signiicantly in the following decades, as it is estimated that the number of people with dementia will reach 75.6 million worldwide in the year 2030 [15].…”

Section: Dementiamentioning

confidence: 99%

Psychopathological Symptoms in Caregivers of Demented and Nondemented Patients

Vázquez¹,

Otero²,

Blanco³

et al. 2018

Caregiving and Home Care

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Currently, more than 1 in 10 adults living in the Organization for Economic Co-operation and Development is involved in nonprofessional care of a dependent family member. The main causes of dependence are dementia, followed by other conditions such as cerebrovascular accidents, limb impairment, depression, and vision impairment. Although care provided by the caregiver is crucial to the well-being of the cared person, it can also have negative consequences on the caregiver's emotional state. This chapter aims to describe the psychopathological symptoms experienced by caregivers based on the condition of the person cared for. A bibliographic search was conducted to examine the efects of care on the emotional state of caregivers, distinguishing patients with dementia from those with other conditions. Depressive and anxiety symptoms were the most frequent psychopathological symptoms, both in caregivers of demented and nondemented patients, experienced by caregivers of patients with dementia, cerebrovascular accidents, traumatic brain injury, schizophrenia, cancer, amyotrophic lateral sclerosis, and autism spectrum disorder. In caregivers of patients with bipolar disorder and vision impairment, depressive symptoms were most prominent, whereas anxiety symptoms were common in caregivers of patients with spinal cord injuries. Sleep disturbances were found among caregivers of dementia and schizophrenia patients. Strategies for preventing psychopathological symptoms were provided and the importance of professional support when they occur was pointed out.

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National estimates of the quantity and cost of informal caregiving for the elderly with dementia

Cited by 370 publications

References 43 publications

Initial phase of adaptation of Memory Alteration Test (M@T) in a Portuguese sample

Initial phase of adaptation of Memory Alteration Test (M@T) in a Portuguese sample

Caregiving for people with dementia in a rural context in South Africa

Psychopathological Symptoms in Caregivers of Demented and Nondemented Patients

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