Narrowing the “digital divide”—facilitating access to computer technology to enhance the lives of those with aphasia: a feasibility study

Kelly, Helen; Kennedy, Fiona; Britton, Hannah E.; McGuire, Graham; Law, James

doi:10.1080/02687038.2015.1077926

Cited by 22 publications

(22 citation statements)

References 48 publications

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“…It is proposed that similar training in communication support may be of benefit to aged care staff and other health professionals to facilitate consumer involvement in shared decision‐making and care planning across the health and aged care sectors. This proposal is consistent with past exploration of the perspectives of community‐dwelling adults living with a communication impairment about their interactions with healthcare providers (Kelly, Kennedy, Britton, McGuire, & Law, ; Lezzoni, O’Day, Kileen, & Harker, ; Nordehn, Meredith, & Bye, ; Tomkins, Siyambalapitiya, & Worrall, ). Similar to participants in this study, community‐dwelling adults who experience communication impairment have expressed a desire to be treated with respect and as a person of intellect who is explicitly supported to take an active role in their health care (Lezzoni et al, ; Nordehn et al, ).…”

Section: Discussionsupporting

confidence: 88%

“…To improve communication with healthcare providers, participants in these studies emphasised the need for healthcare providers to receive additional training in communication support to enable them to respond to the needs of consumers who use a range of communication means. Furthermore, the participants called for healthcare providers to take increased responsibility in supporting consumers with communication impairment, rather than relying on the consumer to accommodate their own communication needs (Kelly et al, ; Lezzoni et al, ; Nordehn et al, ; Tomkins et al, ).…”

Section: Discussionmentioning

confidence: 99%

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Resident perceptions of opportunity for communication and contribution to care planning in residential aged care

Bennett

Treuer

McCabe

et al. 2019

Int J Older People Nursing

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Background and Aim Irrespective of age, communication is a tool of expression and a key daily activity meeting the human need for social interaction and connection. The introduction of consumer‐directed care (CDC) emphasises the importance of communication to provide consumers with the opportunity to exercise choice over the care they receive. As consumer‐directed care progresses, it is hypothesised that the feasibility of shared decision‐making and care planning in residential aged care will be largely determined by the communication opportunities afforded to the residents. Therefore, the aim of this study was to explore resident perceptions of the opportunities they have to communicate, including the opportunity to express their care preferences and contribute opinions about their care. Design A qualitative inductive design was adopted. Methods An individual interview format was used to gather the perspectives of 102 residents. Data were analysed using qualitative content analysis to generate themes illustrating patterns in participant views. Findings Overall, residents desired increased involvement in their care planning and increased opportunity for more meaningful communication and social opportunities. Residents described the negative impact of the communication difficulties they face on their communication and the need for support and activities to be tailored to residents' individual communication needs. Conclusions To facilitate resident participation in CDC and meet resident desire for increased social communication, further investment in resources to support resident–staff communication and accommodate residents’ individual communication needs is required. Implications for Practice By highlighting communication as a stand‐alone activity and a priority of residents, the findings of this study raise the profile of communication and demonstrate the need for explicit allocation of care time and specialist services to support resident–staff communication and social communication in residential aged care. Such support must be tailored to meet residents’ individual communication needs and be coupled with increased staff training in providing communication support. Without facilitating resident communication and increasing the opportunity to communicate, shared decision‐making and care planning in residential aged care consistent with person‐centred and consumer‐directed models of care will be limited.

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Section: Discussionsupporting

confidence: 88%

Section: Discussionmentioning

confidence: 99%

Resident perceptions of opportunity for communication and contribution to care planning in residential aged care

Bennett

Treuer

McCabe

et al. 2019

Int J Older People Nursing

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“…Involving patients and families in shaping health services has potential benefits in terms of improving quality of care and health outcomes (Prior & Campbell, 2018). Communication is central to human existence and participation, so living with a chronic communication impairment has far‐reaching negative effects on health‐related quality of life, self‐identity, mental health, social networks and relationships, return to work, social and community participation, stigmatisation, disadvantage, access to digital technology and ‘third‐party disability’ for family members (FMs) (Baker, Worrall, Rose, & Ryan, 2019; Black‐Schaffer & Osberg, 1990; Grawburg, Howe, Worrall, & Scarinci, 2013; Hersh, 2017; Hilari, Needle, & Harrison, 2012; Kelly, Kennedy, Britton, McGuire, & Law, 2016; Morris, Franklin, & Menger, 2011; Northcott, Marshall, & Hilari, 2016; Northcott, Moss, Harrison, & Hilari, 2016; Parr, 1997; Shadden, 2005). Advocates have shifted focus to providing holistic support targeting personally meaningful outcomes and removal of barriers to participation in society more generally, for example using the International Classification of Functioning, Disability and Health (ICF) framework (WHO, 2001).…”

Section: Introductionmentioning

confidence: 99%

Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland

Manning

Cuskelly

Russ

et al. 2020

Health Soc Care Community

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Living well with post-stroke aphasia is supported by responsive, collaborative heath and related services, aphasia information and training for people with aphasia (PWA) and their social networks, and opportunities to contribute and participate autonomously in their communities. Several international surveys indicate shortcomings in the provision of long-term support and, in Ireland, while there is a lack of data around service provision for PWA, there is evidence that post-acute stroke services are fragmented and under-resourced. The aim of this study was to survey Speech & Language Therapists (SLTs), due to their unique role in aphasia management, to un

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“…Other studies reported how patients favour the use of screen‐reader applications (e.g., the iPad's Speak Selection) or computer‐generated text‐to‐speech technology to access independently text they are interested in when using the device (Kelly et al . 2016, Knollman‐Porter and Julian 2019, Knollman‐Porter et al . 2015).…”

Section: Resultsmentioning

confidence: 99%

Aphasia and acquired reading impairments: What are the high‐tech alternatives to compensate for reading deficits?

Cistola

Farrús

Meulen

2020

Intl J Lang & Comm Disor

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Background: People with aphasia (PWA) frequently present impairments in reading comprehension. Such impairments can be particularly debilitating due to the limitations and constraints they impose on everyday life. Recent technological advancements in the field of information and communication technologies offer many compensative tools for PWA. However, most technological tools are designed for patients with speech production impairments. Instruments addressing reading impairments associated with aphasia remain scarce and underrepresented in the scientific literature. Aims: To conduct a state-of-the-art review of the technologies currently available to PWA and acquired reading impairments. In particular, this review covers (1) research on technologies explicitly developed to compensate for reading difficulties associated with aphasia; and (2) research into which accessibility features included in mainstream high-tech systems are helpful for PWA when trying to access written material. Methods & Procedures: Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) international standard, the authors conducted a systematic review from 2009 to 2019. The databases inspected were Scopus, Web of Science, PubMed, the Cochrane collection, IEEE Xplore, ScienceDirect and SpringerLink. Other research papers were included after checking the references of the selected papers. Main Contribution: The review reveals that research on compensative devices for reading impairments largely neglects tools for individuals with aphasia and acquired reading difficulties. Most of the studies in this field are qualitative investigations of how patients with literacy difficulties tackle everyday tasks with the help of mainstream technology (e.g., smartphone applications). Therefore, this paper highlights the scarce high-tech alternatives that support text comprehension in PWA and acquired reading impairments, and suggests further work on the development of customized software for smartphones and personal computers. Conclusions: High-tech reading tools may help PWA to regain reading autonomy. PWA and acquired reading impairments employ a wide array of devices to overcome reading difficulties, which underlines the importance of reading in everyday life. However, the supports currently available are not yet flexible and accurate enough to answer their day-today needs. Thus, further work is necessary to enhance the compensative devices available to them. For instance, existing new technologies in the area of natural language processing (such as automatic text simplification) could potentially be used in compensative devices.

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Narrowing the “digital divide”—facilitating access to computer technology to enhance the lives of those with aphasia: a feasibility study

Cited by 22 publications

References 48 publications

Resident perceptions of opportunity for communication and contribution to care planning in residential aged care

Resident perceptions of opportunity for communication and contribution to care planning in residential aged care

Supporting people with post‐stroke aphasia to live well: A cross‐sectional survey of Speech & Language Therapists in Ireland

Aphasia and acquired reading impairments: What are the high‐tech alternatives to compensate for reading deficits?

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