Narratives of loss: the impact of COVID-19 lockdown on experiences of loss, grief, and bereavement

Abstract

Introduction.Restrictions imposed to eliminate the spread of the coronavirus disease 2019 (COVID-19) virus had significant implications on peoples' experiences of caring for family/whānau at the end of life, and on their own bereavement process. Aim. This qualitative research explored the impact of COVID-19 lockdown restrictions on experiences of loss, grief and bereavement in Aotearoa New Zealand. Methods. This qualitative narrative research used semi-structured interviews with 10 participants who experienced the loss of a loved one during Levels 3 or 4 lockdown in Aotearoa New Zealand (23 March-13 May 2020). Interviews were coded using NVivo software and inductive thematic analysis was used to evaluate the data. Results. Results were grouped into three themes: death experience; mourning in isolation; and availability of support. These themes provide insight into the challenges and difficulties participants faced when they experienced the death of a loved one during a COVID-19 lockdown, and the impact of these restrictions on their experiences of grief and bereavement. Discussion. The findings from this research suggest there is an increased risk of prolonged grief among those bereaved during lockdown. Primary care professionals need to be aware of this increased risk in order to identify need and provide access to bereavement support.

From the editors: challenges and opportunities for sustainable and equitable primary care

“…16 Dew and colleagues have conducted a qualitative study of people who experienced the death of a whānau (family) member during COVID-19 lockdown. 17 Having their loved one die in lonely isolation complicated their bereavement process and prolonged their grief. For future reference, the authors advocate having a way within the rules and restrictions for whānau to able to say goodbye, and provision of bereavement support.…”