Abstract:The idea of narrative has been widely discussed in the recent health care literature, including nursing, and has been portrayed as a resource for both clinical work and research studies. However, the use of the term 'narrative' is inconsistent, and various assumptions are made about the nature (and functions) of narrative: narrative as a naive account of events; narrative as the source of 'subjective truth'; narrative as intrinsically fictional; and narrative as a mode of explanation. All these assumptions hav… Show more
“…Como narraciones testigo que con su verdad y pasión experienciales empujan al examen de prácticas médicas y preceptos éticos aceptados 17 . Las narraciones autobiográficas de los pacientes o las de sus seres queridos son importantes porque tienen un valor considerable como testimonio: Algunas de ellas ofrecen comentarios desde el punto de vista del paciente o de sus familiares sobre cuestiones éticas como la autonomía y el respeto por las personas, la veracidad y el consentimiento informado, la beneficencia y a veces incluso sobre la no-maleficencia 18 . En su forma ideal, la ética narrativa reconoce la primacía de la narración del paciente (o de su ser querido) 19 pero anima a que se escuchen diferentes voces y que surjan múltiples narraciones de aquellos cuyas vidas están implicadas en la resolución de un caso 20 : Paciente, familia, médico, enfermero, amigo, trabajador social, etc., pueden compartir sus narraciones en un coro dialógico 21 que puede ofrecer la mejor posibilidad de respetar a todas las personas implicadas.…”
Estudio de la calidad de la asistencia al moribundo en un hospital Quality of care for the dying in a hospital I. Osés, K. Martínez, A. Díaz RESUMEN Objetivo. Analizar las narraciones de los familiares de pacientes fallecidos durante un año en el hospital de Navarra, dentro de un estudio de la calidad asistencial al moribundo.Método. Se entrevistó telefónicamente al ser más querido de los pacientes fallecidos a lo largo de un año en el hospital de Navarra. Para ello se utilizó la encuesta TOOLKIT, previamente validada. Se hicieron en todos los casos un máximo de tres llamadas hasta conseguir contactar con la persona a entrevistar. Las llamadas se realizaron entre tres y seis meses después del fallecimiento del enfermo. La primera parte de la entrevista se dirigió a informar del objeto del estudio y se solicitó consentimiento informado. Se analizaron cuatro campos: confort físico y emocional, toma compartida de decisiones, respeto y dignidad y cuidado de los cuidadores. La encuesta terminó con una pregunta abierta: ¿Quiere usted añadir algo más?Resultados. El número de personas entrevistadas fue 327. De los 712 fallecidos en el hospital que cumplí-an los requisitos, no pudieron ser localizados 320 y otros 65 se negaron a ser entrevistados. Se recogieron muchas quejas en relación a la información por cantidad, calidad, modo y momento de darla. También acerca del respeto a los deseos de paciente, así como de manejo del dolor, disnea y trato personal recibido. La falta de apoyo emocional percibida por los familiares es importante.Conclusiones. Además de variables numéricas recogidas en la encuesta pensamos que la narratividad que una encuesta puede recoger aporta información clave para el análisis de la calidad asistencial.Palabras clave. Final de la vida. Calidad. Narratividad. Paciente terminal. Bioética.
ABSTRACTAim. To analyse the accounts of the relatives of patients who died during one year in a hospital in Navarre, within a study of the quality of care for the dying.Method. A telephone interview was conducted with the person dearest to the patients who had died in the course of one year in the hospital. The TOOLKIT survey, previously validated, was used to this end. In all cases a maximum of three calls was made to establish contact with the person to be interviewed. The calls were made between three and six months following the death of the patient. The first part of the interview was aimed at providing information about the aim of the study and informed consent was requested. Four fields were analysed: physical and emotional comfort, shared decision making, respect and dignity, and care of the carers. The interview ended with an open question: Do you wish to add anything else?Results. The number of persons interviewed was 327. For the 712 deceased in the hospital who met the requirements, 320 persons could not be located and another 65 refused to be interviewed. Many complaints were gathered concerning the quantity and quality of information and the manner and time of its provision. There were also complain...
“…Como narraciones testigo que con su verdad y pasión experienciales empujan al examen de prácticas médicas y preceptos éticos aceptados 17 . Las narraciones autobiográficas de los pacientes o las de sus seres queridos son importantes porque tienen un valor considerable como testimonio: Algunas de ellas ofrecen comentarios desde el punto de vista del paciente o de sus familiares sobre cuestiones éticas como la autonomía y el respeto por las personas, la veracidad y el consentimiento informado, la beneficencia y a veces incluso sobre la no-maleficencia 18 . En su forma ideal, la ética narrativa reconoce la primacía de la narración del paciente (o de su ser querido) 19 pero anima a que se escuchen diferentes voces y que surjan múltiples narraciones de aquellos cuyas vidas están implicadas en la resolución de un caso 20 : Paciente, familia, médico, enfermero, amigo, trabajador social, etc., pueden compartir sus narraciones en un coro dialógico 21 que puede ofrecer la mejor posibilidad de respetar a todas las personas implicadas.…”
Estudio de la calidad de la asistencia al moribundo en un hospital Quality of care for the dying in a hospital I. Osés, K. Martínez, A. Díaz RESUMEN Objetivo. Analizar las narraciones de los familiares de pacientes fallecidos durante un año en el hospital de Navarra, dentro de un estudio de la calidad asistencial al moribundo.Método. Se entrevistó telefónicamente al ser más querido de los pacientes fallecidos a lo largo de un año en el hospital de Navarra. Para ello se utilizó la encuesta TOOLKIT, previamente validada. Se hicieron en todos los casos un máximo de tres llamadas hasta conseguir contactar con la persona a entrevistar. Las llamadas se realizaron entre tres y seis meses después del fallecimiento del enfermo. La primera parte de la entrevista se dirigió a informar del objeto del estudio y se solicitó consentimiento informado. Se analizaron cuatro campos: confort físico y emocional, toma compartida de decisiones, respeto y dignidad y cuidado de los cuidadores. La encuesta terminó con una pregunta abierta: ¿Quiere usted añadir algo más?Resultados. El número de personas entrevistadas fue 327. De los 712 fallecidos en el hospital que cumplí-an los requisitos, no pudieron ser localizados 320 y otros 65 se negaron a ser entrevistados. Se recogieron muchas quejas en relación a la información por cantidad, calidad, modo y momento de darla. También acerca del respeto a los deseos de paciente, así como de manejo del dolor, disnea y trato personal recibido. La falta de apoyo emocional percibida por los familiares es importante.Conclusiones. Además de variables numéricas recogidas en la encuesta pensamos que la narratividad que una encuesta puede recoger aporta información clave para el análisis de la calidad asistencial.Palabras clave. Final de la vida. Calidad. Narratividad. Paciente terminal. Bioética.
ABSTRACTAim. To analyse the accounts of the relatives of patients who died during one year in a hospital in Navarre, within a study of the quality of care for the dying.Method. A telephone interview was conducted with the person dearest to the patients who had died in the course of one year in the hospital. The TOOLKIT survey, previously validated, was used to this end. In all cases a maximum of three calls was made to establish contact with the person to be interviewed. The calls were made between three and six months following the death of the patient. The first part of the interview was aimed at providing information about the aim of the study and informed consent was requested. Four fields were analysed: physical and emotional comfort, shared decision making, respect and dignity, and care of the carers. The interview ended with an open question: Do you wish to add anything else?Results. The number of persons interviewed was 327. For the 712 deceased in the hospital who met the requirements, 320 persons could not be located and another 65 refused to be interviewed. Many complaints were gathered concerning the quantity and quality of information and the manner and time of its provision. There were also complain...
“…Understanding and developing our narrative skills with the aim of improving our comprehension of patients’ and our own experiences requires what Paley and Eva describe as “narrative vigilance” 22. They point out four misconceptions about narrative (p93–4).…”
Section: Discussionmentioning
confidence: 99%
“…First, recent nursing and medical literature have tended to romanticise the subjective stories of professionals and patients. These authors comment on the persuasive subjective details of patients’ stories that can be honest, moving, insightful and revealing but also mistaken, disingenuous, evasive and beside the point (Nelson, p xvi;11 Paley and Eva, p9322). The narrative form does not necessarily add credibility, and there is no methodological need for us to “believe” narrative accounts.…”
Where modern medicine has been criticised for having lost sight of the individual on account of its biomedical focus, the profile of narrative in medicine has gained prominence. Within any medical encounter it is possible to identify the existence of several narratives. The aim of this article is to demonstrate this characteristic within the context of specialist palliative care. The emphasis is to see how an awareness of these narratives might improve upon how we attend to the suffering of dying patients. A narrative approach to this work could also help doctors and other healthcare professionals find meaning and understanding in themselves while working in an environment of death and dying. This can expose many challenging personal dimensions that demand reflection, possibly through narrative. The nature of the narratives identified is such that they can weave together and interlink into a greater whole to achieve a much wider set of meanings and shared understandings. However, they can exist in a fragmented state, in which ambiguity, uncertainty and incoherence are sustained. The effect of this should be to encourage us to engage in a more active process of finding meaning, and certainly to recognise that there could be more than one reading or interpretation.
“…Narrative truth refers to the phenomenon of having the core plot and meaning of a story subjectively consistent for the person telling it, while the actual historical events may differ; narrative approaches to the nature of subjective experience allow for multiple realities [38, 39]. Paley and Eva caution against romanticizing personal narratives, stating that there is no inherent authenticity about them, suggesting that caregivers be vigilant about how to use narratives as part of a history [40]. What is clear is that narratives cannot definitively reveal historical facts, but rather the meanings, life patterns, and emotional impact events have for clients.…”
Mental health nurses need to know their clients at depth, and to comprehend their social contexts in order to provide holistic care. Knowing persons through their stories, narratives they tell, provides contextual detail and person-revealing characteristics that make them individuals. Narratives are an everyday means of communicating experience, and there is a place for storytelling in nearly all cultures. Thus narrative is a culturally congruent way to ascertain and understand experiences. This means the nurse should ask questions such as “How did that come about?” versus why questions. A narrative approach stands in contrast to a yes/no algorithmic process in conversing with clients. Eliciting stories illustrates the social context of events, and implicitly provides answers to questions of feeling and meaning. Here we include background on narrative, insights from narrative research, and clinical wisdom in explaining how narratively understanding the person can improve mental health nursing services. Implications for theory, practice, and research are discussed.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.