Narrative storytelling as both an advocacy tool and a therapeutic process: Perspectives of adult storytellers with acquired brain injury

D’Cruz, Kate; Douglas, Jacinta; Serry, Tanya

doi:10.1080/09602011.2019.1586733

Cited by 34 publications

(19 citation statements)

References 67 publications

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“…The findings of this study are grounded in the experiences of the storytellers and facilitators. Building upon earlier work that focused solely upon the experiences of the storytellers (D'Cruz et al., 2019a), the unique contribution of this study is the insights gained from analysing the intersection of data from both groups of participants. Central to the storytelling experience were two key relationships: an enduring and collaborative partnership between the storytellers and the organisation, and an intentional story-sharing relationship between the storytellers and facilitators.…”

Section: Discussionmentioning

confidence: 99%

“…In particular, the storytellers appreciated the enduring nature of this partnership and the way in which the organisation sought and valued their contribution. The storytellers experienced validation and a sense of achievement in this productive role of sharing their story to help others (D'Cruz et al., 2019a), which was further reinforced through their partnership with the advocacy organisation. This finding extended upon the findings of our recent scoping review of personal narrative approaches in ABI rehabilitation (D'Cruz et al., 2019b), in which opportunities to share stories and make a public contribution were valued, although only evident in four of the 12 retrieved articles.…”

Section: Discussionmentioning

confidence: 99%

“…The following description outlines the process of research relevant to the findings reported in this study. A full description of the research methods can be found in an earlier publication (D'Cruz et al., 2019a).…”

Section: Methodsmentioning

confidence: 99%

“…Consistent with the advocacy context of the storytelling programme, the storytellers were primarily motivated to participate in the storytelling to help others through sharing their story. However, they also found the experience to be personally beneficial, reporting experiences of feeling heard and releasing emotion (D'Cruz et al., 2019a). Building upon these findings, the present study explored the perspectives of the storytelling facilitators.…”

Section: Introductionmentioning

confidence: 99%

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Sharing stories of lived experience: A qualitative analysis of the intersection of experiences between storytellers with acquired brain injury and storytelling facilitators

D’Cruz

Douglas

Serry

2020

British Journal of Occupational Therapy

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Introduction Narrative storytelling is a relational process. While interest in storytelling in brain injury rehabilitation is increasing, little attention has been directed to the interpersonal relationships experienced through storytelling. As part of a larger study exploring narrative storytelling, this paper reports on the intersection of experiences between those sharing their story and those listening to the story. Method A qualitative grounded theory approach informed all stages of the study. In-depth interviews were conducted with adult storytellers with severe acquired brain injury and facilitators of a storytelling advocacy programme. Findings Analysis of the intersection of data from 28 transcripts of interviews with eight storytellers and six facilitators was conducted. Two key relationships emerged to be central to the storytelling experience: (1) a collaborative partnership between the storytellers and the advocacy organisation, and (2) an intentional story-sharing relationship between the storytellers and facilitators. The advocacy context of helping others through story-sharing was central to the meaningfulness of the experience. Conclusion Narrative storytelling is a social relationship experience with much potential for building relationships in rehabilitation. Sharing stories of lived experience of disability presents an opportunity for meaningful occupational engagement, enabling social connectedness and contribution to society.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Sharing stories of lived experience: A qualitative analysis of the intersection of experiences between storytellers with acquired brain injury and storytelling facilitators

D’Cruz

Douglas

Serry

2020

British Journal of Occupational Therapy

Self Cite

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“…• Black dog Institute at the University of New South Wales Australia. See for example (de Jager et al, 2017;Lenette et al, 2019) • La Trobe University in Melbourne Australia, for example (D'Cruz, Douglas, & Serry, 2019;De Vecchi et al, 2016) UK:…”

Section: Contextual Reviewmentioning

confidence: 99%

Personal storytelling for wellbeing; form, content and process

Walters¹

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Nature and scope: This enquiry examines personal storytelling in the form of the practice of digital storytelling. Digital storytelling is seen as a craft, a creative making practice. The enquiry examines what impact engaging in this practice has on wellbeing. It is a practice based enquiry which draws on art and design research methods and considers the many facets that the author brings to the table, including her identity as a maker and occupational therapy educator and especially, the way her own engagement with making enabled personal, transformational learning and recovery from mental illness, shame and grief. The purpose of the enquiry is to bring these new insights back to occupational therapy and science. Contribution to knowledge: Knowing through making, as conceptualised through art and design research methodologies, has the potential to enable occupational therapy and occupational science to realise the original intensions of its founders. A study of the collaborative process of digital story telling has offered a worked example of this. Comparing and contrasting digital story telling with other collaborative making practices uncovered what digital story telling is and what it is not. Digital story telling is a high-status craft. The key to understanding its potential impact on wellbeing is to understand it as a craft – a making practice. Further, the potential impact on wellbeing is determined not by the process or properties of digital story telling itself, but by the care and attention to the detail of the experience and how connections between the people involved are made. A digital story telling workshop is a non-generalisable event, unique to that time and place and those people. What digital story telling is not, is an ideal method of co-production. Its uses as a participatory arts-based research methodology has been well documented, but I contend that the ideal collaboration is one where the team is assembled first. I propose The crystal model of transformational scholarship in human health and wellbeing which sets out how this may be accomplished.

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