Narrative Medicine: Attention, Representation, Affiliation

Charon, Rita

doi:10.1353/nar.2005.0017

Cited by 144 publications

(118 citation statements)

References 16 publications

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“…This iterative relationship between attention and representation offers the opportunity for project and clinical team members to 'donate the self towards the meaning-making of another'. 7 The affiliative connections catalysed by creating and sharing Word Clouds encourage family members and clinicians to beneficially 'join one another as we suffer illness, bear the burdens of our clinical powerlessness, or simply together, bravely contemplate our moral limits on earth'. 6 Word Clouds remain a visual reminder of the coming together of family, friends and clinicians in a time of great pain to honour the patient.…”

Section: Discussionmentioning

confidence: 99%

“…The process of creating Word Clouds, 'making visible and audible that which otherwise may pass without notice' 6 involves iteration between the narrative steps of attention and representation, supporting all involved in achieving the ultimate goal of narrative medicine: affiliation-authentic connections between others and the self. 7 While the process of creating Word Clouds can deepen affiliative relationships, relationships are a precondition for this work.…”

Section: The Process For Creating Word Cloudsmentioning

confidence: 99%

“…Clinicians are experienced in certain types of oral representation (eg, case summaries on rounds), and written representation (eg, medical charts and consultation letters). 7 Word Clouds allow clinicians and families to represent the patient collaboratively, using the particulars and priorities of the patient rather than the imperatives of practice. Generating the words involves keen attention to the individual: "they started to remember things about the patient and talk about the significant relationships and significant things in his life and who he was and what these words represented" (nurse).…”

Section: Researchmentioning

confidence: 99%

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Narrative medicine and death in the ICU: word clouds as a visual legacy

Vanstone

Toledo

Clarke

et al. 2016

BMJ Support Palliat Care

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ObjectiveThe Word Cloud is a frequent wish in the 3 Wishes Project developed to nurture peace and ease the grieving process for dying critically ill patients. The objective was to examine whether Word Clouds can act as a heuristic approach to encourage a narrative orientation to medicine. Narrative medicine is an approach which can strengthen relationships, compassion and resilience.DesignWord Clouds were created for 42 dying patients, and we interviewed 37 family members and 73 clinicians about their impact. We conducted a directed qualitative content analysis, using the 3 stages of narrative medicine (attention, representation, affiliation) to examine the narrative medicine potential of Word Clouds.ResultsThe elicitation of stories for the Word Cloud promotes narrative attention to the patient as a whole person. The distillation of these stories into a list of words and the prioritisation of those words for arrangement in the collage encourages a representation that did not enforce a beginning, middle or end to the story of the patient's life. Strong affiliative connections were achieved through the honouring of patients, caring for families and sharing of memories encouraged through the creation, sharing and discussion of Word Clouds.ConclusionsIn the 3 Wishes Project, Word Clouds are 1 way that families and clinicians honour a dying patient. Engaging in the process of making a Word Cloud can promote a narrative orientation to medicine, forging connections, making meaning through reminiscence and leaving a legacy of a loved one. Documenting and displaying words to remember someone in death reaffirms their life.

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Section: Discussionmentioning

confidence: 99%

Section: The Process For Creating Word Cloudsmentioning

confidence: 99%

Section: Researchmentioning

confidence: 99%

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Narrative medicine and death in the ICU: word clouds as a visual legacy

Vanstone

Toledo

Clarke

et al. 2016

BMJ Support Palliat Care

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“…In emotionally challenging areas of health care work, such as oncology and palliative care, supporting the wellness of professionals is important for preventing burnout, conflict, distress, and illness among caregivers. [8][9][10] Second, engaging in experiential narrative writing created a sense of presence or awareness for some participants, which attuned them to the stories of their patients and colleagues. These findings resonate with the concepts of attention, representation, and affiliation described by Rita Charon, 10 who suggests that acts of representing can change the way that professionals subsequently experience their interactions with patients.…”

Section: Discussionmentioning

confidence: 99%

Stories at Work: Writing to Learn, Care, and Collaborate in Radiation Therapy

Osmar¹,

Whyte

2014

Journal of Medical Imaging and Radiation Sciences

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“…(page number not for citation purpose) understand how the story teller makes sense of that reality and to gain insight into the use of image and metaphor (Charon 2005).…”

mentioning

confidence: 99%

Teaching psychology to student nurses: the use of ‘Talking Head’ videos

Snelgrove

Tait

Tait³

2016

Research in Learning Technology

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Psychology is a central part of undergraduate nursing curricula in the UK. However, student nurses report difficulties recognising the relevance and value of psychology. We sought to strengthen first-year student nurses' application of psychology by developing a set of digital stories based around 'Talking Head' video clips where authentic patients relate their experiences of illness and nursing care. The aim of this article is to discuss the technological, organisational and pedagogical challenges, student and staff evaluations and our recommendations for the future of Talking Heads. First-year student nurses were shown a video clip of a patient talking about their illness experiences followed by a group learning situation linking main themes to psychology and nursing. Students and staff valued the authenticity of patient's narrative, found the video clip easy to follow, reported a raised awareness of psychological concepts and improved empathetic understanding of chronic illness. Negative evaluations were related to a sanitised, untypical representation and limited internet access. This small-scale study highlighted how patient narrative may enhance students understanding of illness experience. It chronicles the development and evaluation of a Talking Head in a specific context but which may be useful across disciplines.

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Narrative Medicine: Attention, Representation, Affiliation

Cited by 144 publications

References 16 publications

Narrative medicine and death in the ICU: word clouds as a visual legacy

Narrative medicine and death in the ICU: word clouds as a visual legacy

Stories at Work: Writing to Learn, Care, and Collaborate in Radiation Therapy

Teaching psychology to student nurses: the use of ‘Talking Head’ videos

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