“My experience has been a terrible one, something I could not run away from”: Zambian women’s experiences of advanced breast cancer

Maree, Johanna E.; Mulonda, Jennipher Kombe

doi:10.1016/j.ijans.2015.07.001

Cited by 18 publications

(60 citation statements)

References 27 publications

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“…In another qualitative study conducted with a group of women living with advanced breast cancer in Zambia, the participants stated that the experience of having to live with advanced breast cancer changed their lives (Maree & Mulonda, 2015). According to the participants, the diagnosis of advanced breast cancer added a new role of cancer patient that made it difficult for them to fulfill their roles as mothers and wives.…”

Section: Experiences Of Women Living With Advanced Breast Cancermentioning

confidence: 99%

“…According to the participants, the diagnosis of advanced breast cancer added a new role of cancer patient that made it difficult for them to fulfill their roles as mothers and wives. Mastectomy that resulted in their living with altered bodies added to their emotional distress (Maree & Mulonda, 2015). Participants also stated that some side effects of chemotherapy such as hair loss, fatigue, nausea and vomiting, oral mucositis, and anorexia affected them psychologically.…”

Section: Experiences Of Women Living With Advanced Breast Cancermentioning

confidence: 99%

“…Participants in a qualitative study that explored the experiences of women living with advanced breast cancer have described hope as the heart of palliative care that can thrive during terminal illness even when no cure is possible (Maree & Mulonda, 2015). Participants also narrated that they experienced various losses such as loss of femininity, physical strength, roles, and support that changed the lives they lived before becoming ill.…”

Section: Hope and Advanced Breast Cancermentioning

confidence: 99%

“…Some of those activities include: establishing a caring and supportive environment; encouraging patients to become aware of and express their fears, questions, expectations, and hopes; assisting patients to identify areas that promote hope as well as areas of threats to hope in their lives; helping patients to recognize the dialectic relationship between hope and hopelessness; assisting patients to acknowledge the interdependence of the influence of family and friends; supporting patients to identify the resources that are available in the community; encouraging activities that enable patients to reflect on the meaning and purpose of life, death, and suffering; encouraging activities that help patients to identify and appreciate their sources of strength; encouraging activities that are geared towards appreciation of the positive role of interaction with nature and positive memories; providing information that are geared towards increasing the patient's cognitive understanding of their illness, treatment options and control of symptoms; and light-heartedness. Other hope enhancing strategies identified in literature include: inviting and talking with patients about hope, telling stories about hope, listening and being willing to walk with patients through their pain and illness, maintaining a positive nurse-patient relationship, journeying with patients and building trust over time, providing honest and accurate information, controlling pain, being knowledgeable about patients cancer, answering their questions, using humour appropriately, value clarification, supporting their dignity, affirmation of their worth, and caring for the patients in a holistic way (Kylmä, Duggleby, Cooper, & Molander, 2009;Maree & Mulonda, 2015;McClement & Chochinov, 2008;Turner & Stokes, 2006). Maree and Mulonda (2015) stressed that the understanding of hope in the caregivers' lives will help them to nourish, enhance, and sustain it in others.…”

Section: Enhancing Hopementioning

confidence: 99%

“…Other hope enhancing strategies identified in literature include: inviting and talking with patients about hope, telling stories about hope, listening and being willing to walk with patients through their pain and illness, maintaining a positive nurse-patient relationship, journeying with patients and building trust over time, providing honest and accurate information, controlling pain, being knowledgeable about patients cancer, answering their questions, using humour appropriately, value clarification, supporting their dignity, affirmation of their worth, and caring for the patients in a holistic way (Kylmä, Duggleby, Cooper, & Molander, 2009;Maree & Mulonda, 2015;McClement & Chochinov, 2008;Turner & Stokes, 2006). Maree and Mulonda (2015) stressed that the understanding of hope in the caregivers' lives will help them to nourish, enhance, and sustain it in others. Turner and Stokes (2006) argued that the ways in which these strategies are used depend on the context.…”

Section: Enhancing Hopementioning

confidence: 99%

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Hope and Advanced Breast Cancer: Engaging with the Parish Nursing Community to Explore Hope in Women with Advanced Breast Cancer in Nigeria

Ogunkorode¹,

Holtslander²

2017

ESJ

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Women with advanced breast cancer living in Nigeria face many obstacles and are very reliant on the support of faith communities, including parish nurses, who have a strong presence in Nigeria. Research with people with advanced cancer has shown the importance of hope as a source of strength and an important spiritual concept in their lives. Parish nursing focuses on the promotion of health within the context of the values, beliefs, and practices of the faith community. What distinguishes parish nursing care is the intentional integration of the body, mind, and spirit to create wholeness, health, and a sense of well-being even when the patient's illness is not curable. This specialty nursing practice holds that all persons are sacred and must be treated with respect and dignity. In line with these beliefs, the parish nurse serves her community with compassion, mercy, presence, and justice. Community-based research is needed to explore what hope means for women in Nigeria with advanced breast cancer, in order to build essential and innovative nursing knowledge and provide opportunities to identify meaningful interventions and ways the faith community can support these women, their families, and their communities.

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Section: Experiences Of Women Living With Advanced Breast Cancermentioning

confidence: 99%

Section: Experiences Of Women Living With Advanced Breast Cancermentioning

confidence: 99%

Section: Hope and Advanced Breast Cancermentioning

confidence: 99%

Section: Enhancing Hopementioning

confidence: 99%

Section: Enhancing Hopementioning

confidence: 99%

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Hope and Advanced Breast Cancer: Engaging with the Parish Nursing Community to Explore Hope in Women with Advanced Breast Cancer in Nigeria

Ogunkorode¹,

Holtslander²

2017

ESJ

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Psychosocial aspects of adult cancer patients: A scoping review of sub‐Saharan Africa

2022

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Objective Psychosocial aspects of adult cancer patients in sub‐Saharan Africa (SSA) have been described in silos of research articles. Integrative analysis of regional evidence is lacking. This review aimed to describe the scope of existing research on mental health problems, identify research gaps and make informed research, policy and practice recommendations. Methods Search was conducted for original peer‐reviewed research articles, irrespective of their quality, on psychosocial aspects of cancer in all SSA countries using PubMed, Google Scholar, Google search, African Index Medicus and direct searches of reference list of pertinent journal articles. Publications in English or translated to English were included. Case reports, dissertations, abstracts, publications without primary focus on psychosocial issues, psychosocial issues in children and studies conducted with SSA populations living outside the sub‐region were excluded. The methodological framework described by Arksey and O’Malley was used to synthesize and present the results. Inductive approach was used to arrive at the thematic areas. Preferred Reporting Items for Systematic Reviews and Meta‐Analyses extension for Scoping Reviews guideline was used to describe the review. Results Eighty‐three studies conducted across 15 countries were identified. Six thematic areas emerged namely; psychosocial needs, psychiatric disorders, coping strategies, suicidality, psychometrics and psychosocial interventions. Fifteen of 46 countries had at least one study with the majority of articles emanating from Nigeria. Research articles on psychosocial needs, psychiatric morbidities and coping strategies appears adequate for systematic review in SSA region. Despite the overwhelming evidence of high unmet psychosocial needs, a huge gap exists regarding psychosocial interventions. Conclusion Further research is needed into identified gaps in the region and quality of evidence of these studies need to be improved upon. Comprehensive policies and action plan development are sin qua non for addressing psychosocial problems of adults with cancer in SSA.

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Symptoms, concerns, and experiences of women living with and beyond breast cancer in Africa: A mixed‐methods systematic review

Asuquo,

Absolom,

Ebenso

et al. 2024

Psycho-Oncology

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ObjectiveA mixed‐methods systematic review to determine reported symptoms, concerns, and experiences of women living with and beyond breast cancer in Africa.MethodsLiterature searches were conducted in Medline, Embase, PsycINFO, Global Health, Web of Science, CINAHL, and the Cochrane Library. Quantitative and qualitative studies that comprised study populations of women with breast cancer from countries in Africa, detailing symptoms, concerns, and experiences of living with and beyond breast cancer were included. Inductive framework analysis was applied to organise existing literature with the Adversity, Restoration, and Compatibility framework and quality was assessed using the Mixed Methods Appraisal Tool.ResultsIn total, 48 studies were included, comprising quantitative (n = 24), qualitative (n = 23) and mixed method (n = 1) studies. Women reported multiple complex and burdensome symptoms at all stages of the breast cancer disease trajectory. Multiple pervasive factors influencing participants' experiences included a lack of cancer knowledge, being removed from decision‐making, religion, and the presence and use of traditional medicines. Literature relating to benefit finding, understanding identity for the future, and broader perspectives of well‐being was absent.ConclusionsThis review contributes insights and mapping of symptoms, concerns, and experiences of women with breast cancer in Africa. There is a great necessity to increase an understanding of the needs and experiences of women with breast cancer in Africa following cancer treatment, stages of remission, and longer‐term monitoring and follow‐up. This is required to ensure access to prompt and timely clinical and individualized supportive care for women with breast cancer in Africa.

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“My experience has been a terrible one, something I could not run away from”: Zambian women’s experiences of advanced breast cancer

Cited by 18 publications

References 27 publications

Hope and Advanced Breast Cancer: Engaging with the Parish Nursing Community to Explore Hope in Women with Advanced Breast Cancer in Nigeria

Hope and Advanced Breast Cancer: Engaging with the Parish Nursing Community to Explore Hope in Women with Advanced Breast Cancer in Nigeria

Psychosocial aspects of adult cancer patients: A scoping review of sub‐Saharan Africa

Symptoms, concerns, and experiences of women living with and beyond breast cancer in Africa: A mixed‐methods systematic review

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