Muistisairaan ihmisen mielen hyvinvoinnin edellytykset - miten turvata oikeus niiden toteutumiseen?

Heimonen, Sirkkaliisa; Mäki‐Petäjä‐Leinonen, Anna

doi:10.23989/gerontologia.65390

Cited by 2 publications

(2 citation statements)

References 12 publications

(15 reference statements)

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“…This suggests the need to build the same care pathway for everyone to ensure their ongoing and equal access to information and services. High-quality guidance and counselling based on multi-disciplinary expertise creates conditions for people to participate in decision-making concerning themselves by providing timely information and support (Heimonen and Mäki-Petäjä-Leinonen, 2018;Nikumaa and Mäki-Petäjä-Leinonen, 2019). Some participants reported that anticipating their future was very important to them.…”

Section: Discussionmentioning

confidence: 99%

Experiences of influencing one's own life when living with working-age dementia

et al. 2021

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Having opportunities to make decisions and choices regarding one's life is crucial when living with dementia. This inter-disciplinary study draws on the concept of relational autonomy to explore how working-age people living dementia seek to influence their lives, and what makes it easier or more difficult for them in their everyday life. The data consist of three focus group discussions conducted with 12 retired adults who developed dementia while still employed. The results illuminate various resources that enable a person to (a) handle their difficulties at work and related consequences with dignity, (b) manage everyday tasks and live a fulfilling life, and (c) fight the stigma associated with (working-age) dementia. Challenges related to these aspects reported by the participants reveal gaps and obstacles that impede the full realisation of the rights of people living with early onset dementia. This research highlights the need for workplace education for different stakeholders, equal and ongoing access to guidance and counselling for younger people who live with dementia, and an effort by society as a whole to eradicate stigma.

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Section: Discussionmentioning

confidence: 99%

Experiences of influencing one's own life when living with working-age dementia

et al. 2021

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“…Counselling and support should be provided on a continuous basis and should be tailored to individual needs. The provision of guidance and information should be preventive, individual, systematic and available throughout the duration of the illness (Heimonen & Mäki-Petäjä-Leinonen, 2018;Wackerbarth & Johnson, 2002).…”

Section: Need For Counselling and Supportmentioning

confidence: 99%

Counselling of people with dementia in legal matters – social and health care professionals’ role

Nikumaa

Mäki‐Petäjä‐Leinonen

2019

European Journal of Social Work

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This article examines the counselling of people with dementia in legal matters by focusing on the experiences both of people with dementia and of social and health care professionals. The article also assesses the role of social and health care professionals in enabling the fulfilment of the legal security of people with dementia. In Finland, social and health care professionals have a responsibility to inform their clients of their social and legal security options, and therefore need to know the range of legal tools and options available. They also need to know what measures may be taken to support the remaining legal capacity and autonomy of the person with dementia and to facilitate choices and planning for the future. This article reports the findings of three separate studies carried out in Finland. By examining the results of these studies, the necessity of offering sufficient counselling and support can be addressed. Developing counselling involves changed attitudes and improved competence for the professionals involved in social and health care, as well as changes in operational practices. People with dementia constitute a large client group whose legal security should be developed in a comprehensive and nuanced way.

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Muistisairaan ihmisen mielen hyvinvoinnin edellytykset - miten turvata oikeus niiden toteutumiseen?

Cited by 2 publications

References 12 publications

Experiences of influencing one's own life when living with working-age dementia

Experiences of influencing one's own life when living with working-age dementia

Counselling of people with dementia in legal matters – social and health care professionals’ role

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