Motives that head and neck cancer patients have for contacting a specialist nurse – an empirical study

Salander, Pär; Isaksson, Joakim; Granström, Brith; Laurell, Göran

doi:10.1111/jocn.13283

Cited by 9 publications

(6 citation statements)

References 23 publications

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“…Written informed consent was obtained from all of the patients, and the study was reviewed and approved by the Regional Ethical Review Board in Umeå (Dnr 2010-24-31). Four articles have previously been published from the material obtained from the clinical development programme (Isaksson, Salander, Granström, & Laurell, 2014;Isaksson, Wilms, Laurell, Fransson, & Ehrsson, 2016;Salander, Isaksson, Granström, & Laurell, 2016;Stenhammar, Isaksson, Granström, Laurell, & Ehrsson, 2017).…”

Section: Ethical Considerationsmentioning

confidence: 99%

Experiences and coping strategies related to food and eating up to two years after the termination of treatment in patients with head and neck cancer

2018

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The purpose was to describe how patients with head and neck cancer experience and cope with difficulties related to food and eating up to two years after the termination of treatment. One hundred and thirty‐five patients were followed with thematically structured interviews. The patients’ responses of nutritional issues were categorised using similarities and differences technique. In the analysis, six categories emerged describing the process of eating and drinking from the end of treatment up to two years after treatment: The constant battle—eating and drinking over time, Food alterations and nutritional support—both pros and cons, Standing aside and not joining in when eating together with others, Finding ways to cope and to make the new a part of everyday life, Relationships and social support—hindrances and facilitators, and Longing for “normality.” Results imply that patients struggle with physiological, psychological and social aspects related to food and eating, and use coping mechanisms to facilitate their eating problems. The best practice for rehabilitation and follow‐up must be established in order to meet the multifaceted needs of head and neck cancer survivors.

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Section: Ethical Considerationsmentioning

confidence: 99%

Experiences and coping strategies related to food and eating up to two years after the termination of treatment in patients with head and neck cancer

2018

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“…Such a predictive ability would also encourage survivors and caregivers to report their unmet needs and allow us to improve the efficiency of the care provided and make decisions based on survivors'/caregivers' individual preferences. A few studies suggested a relationship between cancer type and specific unmet needs [16,[18][19][20], while the present study focused on the relationship. In clinical practice, cancers are conventionally dealt with by each category for the affected organ.…”

Section: Introductionmentioning

confidence: 83%

“…This result is not consistent with those of previous studies, which suggested strong relationships between specific cancer types and specific unmet needs. For example, several studies have reported that breast-cancer survivors tend to have psychosocial needs [12,[18][19][20].…”

Section: Small Effects Of Specific Cancer Typesmentioning

confidence: 99%

Impact of individual background on the unmet needs of cancer survivors and caregivers – a mixed-methods analysis

et al. 2020

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Background Cancer survivors and their caregivers may have various unmet needs that are medically difficult to solve. Previous studies have suggested the relations between individuals’ backgrounds and their unmet needs. We conducted a large-scale analysis to clarify the influence of individuals’ backgrounds, primarily cancer type, on specific types of unmet needs. Methods Using a mixed-methods approach, we analyzed records of first-time callers to a cancer-focused telephone consultation service that was provided by the Kanagawa Cancer Clinical Research Information Organization from October 2006 to May 2014. The qualitative approach concerned extracting unmet needs mentioned in each consultation and classifying them into themes of specific needs, while the quantitative approach comprised multi-variated analysis of the relationships between the frequency by which the needs in each theme arose and the associated callers’ backgrounds. Results A total of 1938 consultation cases were analyzed. In the qualitative analysis, the needs were classified into 16 themes. The mean number of unmet needs for each caller was 1.58 (standard deviation = 0.86). In the multi-variated analysis, caregivers for colorectal cancer survivors had a lower frequency of “emotional/mental health” needs (OR: 0.31, 95%CI: 0.11–0.88, p = 0.028) than did caregivers for breast-cancer survivors. Nevertheless, this was the only significant difference in needs frequency among callers (including survivors and their caregivers) with specific cancer types. Meanwhile, there significant difference in the frequency of occurrence of each unmet need theme was found among items concerning other background elements. Among survivors, sex was related to the frequency of needs among “physical” and “resources” themes, and “emotions/mental health”; their age group with “employment”; treatment course with “physical” and “resources” themes and “cure”; residence with “physical” themes; presence of symptom with “physical,” “education/information,” “resources,” “emotions/mental health,” and “cure” themes. Conclusions This large-scale study suggests that cancer type is not a significant factor for specific unmet needs and that individuals’ backgrounds and presence of symptoms play a more important role. Through this study, it was found that instruments to predict people’s needs and a system to provide individualized cancer care across cancer types should be developed in the future.

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“…There is a need for expertise in HNC care and training in counselling and relational psychology (Salander et al, 2016), particularly as there is a lack of knowledge about HNC and the psychological consequences, and psychological interventions have every chance of improving people's ability to feel happiness. The microflow component oral when snacking or chewing was seldom used on account of pain, trismus or an inability to chew.…”

Section: Discussionmentioning

confidence: 99%

Experiences of psychological flow as described by people diagnosed with and treated for head and neck cancer

Björklund

Fridlund

Mårtensson

2019

European Journal of Oncology Nursing

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Motives that head and neck cancer patients have for contacting a specialist nurse – an empirical study

Cited by 9 publications

References 23 publications

Experiences and coping strategies related to food and eating up to two years after the termination of treatment in patients with head and neck cancer

Experiences and coping strategies related to food and eating up to two years after the termination of treatment in patients with head and neck cancer

Impact of individual background on the unmet needs of cancer survivors and caregivers – a mixed-methods analysis

Experiences of psychological flow as described by people diagnosed with and treated for head and neck cancer

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