Motivations for advance care and end-of-life planning among lesbian, gay, and bisexual older adults

Seelman, Kristie L.; Lewinson, Terri; Engleman, Lily; Allen, Allex

doi:10.1177/1473325018792396

Cited by 8 publications

(10 citation statements)

References 20 publications

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“…Most included articles reported findings from quali-tative research studies. 13 , 15 , 19 – 21 , 40 – 57 , 59 – 61 Roughly half of the studies were conducted in the United Sta-tes 21 , 41 , 43 , 45 , 47 – 49 , 54 , 56 , 57 , 59 , 62 – 64 , 10 in Canada. 15 , 40 , 46 , 51 – 53 , 55 , 60 , 65 , 66 No articles in Portuguese or French were included.…”

Section: Resultsmentioning

confidence: 99%

“…Nineteen articles reported on the healthcare practitioner experience and/or were expressed in the “voice” of an LGBTQ+ person recounting someone else’s experience with the end-of-life care system. 19 , 21 , 41 – 43 , 45 – 47 , 49 , 51 , 53 – 58 , 62 , 65 , 66 The stories retold from peers indicated a high distrust of healthcare practitioners. While they provide insight into the perceptions of end-of-life care in LGBTQ+ adults they do not capture a complete landscape.…”

Section: Latent Analysismentioning

confidence: 99%

“…Out of the 33 articles reviewed only 11 distinguished distinct groups (e.g., lesbian, gay, bisexual, transgender, and queer) within the LGBTQ+ community. 21 , 42 , 43 , 48 , 49 , 52 , 53 , 57 , 59 – 61 The majority applied results generically to the LGBTQ+ community. Some of the articles collected participants’ gender preference and sexual orientation data separately yet described results collectively to LGBTQ+ participants.…”

Section: Latent Analysismentioning

confidence: 99%

“… 41 , 51 , 56 Interestingly, the lesbian, gay, bisexual group was the focus of the majority of articles that did differentiate between groups. 42 , 47 , 49 , 57 , 59 , 61 …”

Section: Latent Analysismentioning

confidence: 99%

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A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians

Lintott

Beringer

et al. 2022

Palliat Med

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Background: Lesbian, gay, bisexual, transgender, and queer plus (LGBTQ+) adults face challenges accessing end-of-life care. Understanding the experiences of LGBTQ+ persons within the end-of-life context is crucial in addressing their needs and supporting equity at end of life. Aim: Review recent literature documenting the experiences of LGBTQ+ adults nearing end-of-life, identifying needs, barriers to care, and translating this into clinical recommendations. Design: A rapid review design was chosen for prompt results. The process was streamlined by limiting the literature search to peer-reviewed articles, dissertations, theses, by date and language. Data collection used a predetermined set of items based on Meyer’s Minority Stress and Bronfenbrenner’s Ecological Models including participants’ voices, needs, and barriers. Thematic analysis of collected data was conducted and presented results in a narrative summary. Data Sources: We searched six electronic databases (PubMed, Medline, ProQuest Dissertations and Theses A&I, ProQuest Dissertations and Theses, Open Access Theses and Dissertations, CINAHL, and Google Scholar) for articles published from 2016 to 2020. Results: We included and appraised for quality 33 articles. We uncovered three latent themes: systemic barriers, a lack of lived experience within the literature, and treatment of LGBTQ+ as one homogeneous group. Conclusions: The hybrid Meyer’s Minority Stress and Bronfenbrenner Ecological model elucidated how stressors and social contexts may impact LGBTQ+ adults when accessing end-of-life care. Incorporating LGBTQ+ cultural competence training into continuing education and ensuring that LGBTQ+ individuals participate in the development of end-of-life care programming may better attend to the needs of this population.

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Section: Resultsmentioning

confidence: 99%

Section: Latent Analysismentioning

confidence: 99%

Section: Latent Analysismentioning

confidence: 99%

“… 41 , 51 , 56 Interestingly, the lesbian, gay, bisexual group was the focus of the majority of articles that did differentiate between groups. 42 , 47 , 49 , 57 , 59 , 61 …”

Section: Latent Analysismentioning

confidence: 99%

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A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians

Lintott

Beringer

et al. 2022

Palliat Med

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“…Seelman i wsp. zbadali, co motywuje starsze (≥ 65 lat) osoby LGBT do planowania opieki u końca życia [29]. Z przeprowadzonych wywiadów badacze wysunęli wnioski odnośnie do trzech czynników motywujących: potrzeba sprawczości, wiedza o ACP zaczerpnięta od innych i chęć zmniejszenia zagubienia oraz konfliktów wśród najbliższych.…”

Section: Planowanie Opieki Medycznejunclassified

Situation of non-heteronormative (LGBT+) people in palliative care

Graczyk¹,

Leśniak²,

Łabuś-Centek³

et al. 2021

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Szczególne potrzeby osób LGBT+ są coraz częściej w sferze zainteresowań profesjonalistów ochrony zdrowia. Autorzy artykułu po wyjaśnieniu podstawowych pojęć analizują sytuację zdrowotną osób nieheteronormatywnych. Zwrócono uwagę na istniejące bariery w dostępie osób LGBT+ do świadczeń zdrowotnych, ocenę stanu fizycznego i psychicznego w porównaniu z populacją osób heteroseksualnych oraz stosunek personelu medycznego do pacjentów w zależności od orientacji seksualnej. Stałe podnoszenie poziomu wiedzy personelu medycznego w zakresie sytuacji osób LGBT+, szczególnych dla nich problemów i potrzeb zdrowotnych staje się niezbędne w codziennej praktyce klinicznej, także w opiece paliatywnej.

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Palliative and End-of-Life Care for Sexual and Gender Minority Cancer Survivors: a Review of Current Research and Recommendations

Cloyes

Candrian

2021

Curr Oncol Rep

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Motivations for advance care and end-of-life planning among lesbian, gay, and bisexual older adults

Cited by 8 publications

References 20 publications

A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians

A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians

Situation of non-heteronormative (LGBT+) people in palliative care

Palliative and End-of-Life Care for Sexual and Gender Minority Cancer Survivors: a Review of Current Research and Recommendations

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