Motivations, Concerns, and Experiences of Women Who Donate Normal Breast Tissue

Doherty, Eileen; MacGeorge, Erina L.; Gillig, Traci K.; Clare, Susan E.

doi:10.1158/1055-9965.epi-14-0941

Cited by 2 publications

(1 citation statement)

References 19 publications

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“…The inability to reach these potential participants may have introduced bias into our sample. Further, our sample included fewer ethnic minority participants than desired; future prospective research efforts should consider collaboration with community leaders/groups to improve participant diversity [ 41 , 42 ]. We did not specifically inquire as to BRCA 1/2 mutation carrier status, which raises the possibility that there were more patients (other than the four who identified themselves as carriers) that should have been excluded as CPM would have been indicated.…”

Section: Discussionmentioning

confidence: 99%

Motivations for contralateral prophylactic mastectomy as a function of socioeconomic status

et al. 2017

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BackgroundDespite no demonstrated survival advantage for women at average risk of breast cancer, rates of contralateral prophylactic mastectomy (CPM) continue to increase. Research reveals women with higher socioeconomic status (SES) are more likely to select CPM. This study examines how indicators of SES, age, and disease severity affect CPM motivations.MethodsPatients (N = 113) who underwent CPM at four Indiana University affiliated hospitals completed telephone interviews in 2013. Participants answered questions about 11 CPM motivations and provided demographic information. Responses to motivation items were factor analyzed, resulting in 4 motivational factors: reducing long-term risk, symmetry, avoiding future medical visits, and avoiding treatments.ResultsAcross demographic differences, reducing long-term risk was the strongest CPM motivation. Lower income predicted stronger motivation to reduce long-term risk and avoid treatment. Older participants were more motivated to avoid treatment; younger and more-educated patients were more concerned about symmetry. Greater severity of diagnosis predicted avoiding treatments.ConclusionsReducing long-term risk is the primary motivation across groups, but there are also notable differences as a function of age, education, income, and disease severity. To stop the trend of increasing CPM, physicians must tailor patient counseling to address motivations that are consistent across patient populations and those that vary between populations.Electronic supplementary materialThe online version of this article (doi:10.1186/s12905-017-0366-2) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Motivations for contralateral prophylactic mastectomy as a function of socioeconomic status

et al. 2017

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African American Women’s Perspectives on Donating Healthy Breast Tissue for Research: Implications for Recruitment

Ridley-Merriweather

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2016

Health Communication

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African American women die of breast cancer at a higher rate than any other racial group. The Komen Tissue Bank (KTB) is an ongoing clinical trial that collects healthy breast tissue from women of all racial groups to use as controls in research and represents a critical tool in efforts to treat and prevent breast cancer; however, African Americans display reticence toward donating breast tissue to the KTB. Through the lens of the Integrated Behavioral Model, this study recruited African American women to share their perspectives on donating breast tissue for research purposes. Seventy-one (N = 71) eligible Black women who were previous tissue donors to the KTB responded to an online questionnaire. Findings revealed that (a) participants had positive instrumental attitudes or reasons for donating; (b) participants felt generally supported in their decision to donate, but revealed that the lack of Black women participating in the KTB meant that they themselves were setting the norm for others; and (c) their race was an important element in their donation decision. While acknowledging the negative history of African Americans in medical research, they offered their perceptions regarding the importance of involving themselves in medical research, and suggested that health communication strategies to recruit African Americans into research should embrace race as part of the message. The findings from this study have important implications for other those who work in applied clinical settings and are interested in addressing racial disparities in medical research through more effective and targeted recruitment messaging.

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Motivations, Concerns, and Experiences of Women Who Donate Normal Breast Tissue

Cited by 2 publications

References 19 publications

Motivations for contralateral prophylactic mastectomy as a function of socioeconomic status

Motivations for contralateral prophylactic mastectomy as a function of socioeconomic status

African American Women’s Perspectives on Donating Healthy Breast Tissue for Research: Implications for Recruitment

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