Mothers' voices: Coping with their children's initial disability diagnosis

Bingham, Ann; Correa, Vivian I.; Huber, Jennifer J.

doi:10.1002/imhj.21341

Cited by 23 publications

(36 citation statements)

References 37 publications

(62 reference statements)

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“…The mothers could only focus on the present, as future perspectives might not have existed (Bingham, Correa, & Huber, 2012). In the transition to motherhood, when children without disabilities are born, the focus is on the future and the preparation of the children to become responsible adults .…”

Section: Transition To Motherhood In the Inside World At Homementioning

confidence: 99%

“…The participants in the study of Bingham, Correa and Huber (2012) were of the opinion that mothers are supposed to cope and to keep on coping notwithstanding the circumstances. The women who also had other children found coping with the demands of the children with disabilities and the needs of their other children very demanding.…”

Section: Transition To Motherhood In the Inside World At Homementioning

confidence: 99%

“…Instead of feeling sorry for themselves they developed strong coping strategies and positive images of themselves because of their abilities to cope with the demands of being the primary caregiver of their children . The challenges that they had to cope with made them sensitive to the needs of others and thankful for the positive aspects of life that one could easily take for granted (Bingham et al, 2012).…”

Section: Transition To Motherhood In the Outside World External To Homementioning

confidence: 99%

“…They preferred coordinated care so that only one facility could be used for all the services that their children required. A lack of information regarding the available healthcare services also made it difficult for them to access some of the services to the detriment of the development of their children (Bingham et al, 2012).…”

Section: Transition To Motherhood In the Outside World External To Homementioning

confidence: 99%

“…Although the review studies were conducted in countries that are well resourced regarding care facilities for people with disabilities, the mothers often had to repeatedly contact doctors, nurses and therapists to arrange treatment for their children . Without such efforts their children would not have had the required care (Bingham et al, 2012). In the process the women often had to endure aggression from the healthcare personnel to the extent that they were threatened that their children would not get the care that they tried to get arranged due to the 'fights' that the women had to put up .…”

Section: Transition To Motherhood In the Outside World External To Homementioning

confidence: 99%

See 4 more Smart Citations

Becoming the mother of a child with disabilities: a systematic literature review

Wyk

Leech

2016

Community, Work & Family

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The transition to motherhood starts early in pregnancy and is completed when the mother feels competent in caring for the infant. Becoming the mother of a child with disabilities is demanding as their needs are complex. The aim of the review was to appraise completed qualitative and quantitative reports on the challenges of mothers of children with disabilities regarding their own transition to motherhood. A review of the literature was carried out through, first, a computerized search strategy to identify relevant studies from selected databases and, second, quality appraisal and thematic analysis of selected studies. The transition to motherhood of children with disabilities takes place in the inside world at home, the outside world external to home and the 'going-between' world of travelling between the two worlds. The mothers are challenged at home to integrate basic infant care with technical care of their children. In the outside world they often struggled to ensure that their children got the necessary professional care. Travelling between their homes and healthcare services posed many problems.La transition vers la maternité commence au début de la grossesse et la transition s'est terminé quand la mère est compétente pour être capable de soigner pour l'enfant. De devenir la mère d'un enfant handicapé est exigeant parce que leurs besoins sont complexes. L'objectif de l'étude était d'évaluer à la fin les rapports qualitatives et quantitatives sur les défis de mères d'enfants handicapés en ce qui concerne leur propre transition vers la maternité. Une revue de la littérature a été réalisée par le biais, d'abord, une stratégie de recherche informatisé pour identifier les études pertinentes à partir de bases de données sélectionnées et, deuxièmement, l'évaluation de la qualité et de l'analyse thématique des études sélectionnées. La transition vers la maternité des enfants handicapés a lieu dans le monde dans la maison, le monde dehors de la maison et dans le monde »qui se trouve entre ces deux mondes » c.a.d. le monde de voyage entre ces deux mondes. Les mères sont contestées à la maison pour intégrer les soins de bases comme les nourrissons avec un soin technique de leurs enfants. Dans le monde dehors de la maison, ils ont souvent lutté de donner la securité à ce que leurs enfants ont obtenu les soins nécessaires qui doivent être professionnels. De voyager entre leur domicile et les services de soins de santé a posé beaucoup de problèmes.

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Section: Transition To Motherhood In the Inside World At Homementioning

confidence: 99%

Section: Transition To Motherhood In the Inside World At Homementioning

confidence: 99%

Section: Transition To Motherhood In the Outside World External To Homementioning

confidence: 99%

Section: Transition To Motherhood In the Outside World External To Homementioning

confidence: 99%

Section: Transition To Motherhood In the Outside World External To Homementioning

confidence: 99%

See 3 more Smart Citations

Becoming the mother of a child with disabilities: a systematic literature review

Wyk

Leech

2016

Community, Work & Family

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Is preparation a good reason for prenatal genetic testing? Ethical and critical questions

Michie

2020

Birth Defects Research

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As prenatal genetic testing technologies have become both easier and more accessible, women are increasingly choosing prenatal genetic testing for a reason that is largely unexamined in the clinical literature: preparation. This reasoning, offered not only from pregnant women but frequently from testing laboratories and health care providers, reflects long‐held assumptions that prenatal genetic results—properly delivered and followed with information, clinical surveillance, and/or social supports—prepare families for a child with a genetic condition, and even improve health and social outcomes for children and families. But these assumptions remain unexamined, since there are no clear definitions or recommendations for prenatal preparation. Preparation may refer to several overlapping ways in which prenatal information may change parents' approach to the rest of the pregnancy, including: (a) clinical activities, including surveillance, interventions, and delivery planning; (b) social and informational support, such as interacting with patient support groups and gathering information about quality of life; and (c) psychological “coping” or adjustments to the reality of raising a child with a genetic condition. These meanings and activities intersect and influence one another and form a foundation for postnatal family adaptation, but they are rarely parsed out in studies examining the impact of prenatal diagnosis. Based on previous work delineating conceptual models as middle terms between theory and reality, we are building a conceptual model that incorporates an empirical understanding of meanings and actions encompassed by prenatal preparation. Comparing diverse families' expectations with the resources they are offered can identify (mis)matches between priorities and approaches.

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Health information seeking and people with disability: A systematic search and scoping review

French-Lawyer

Siano

Ioerger

et al. 2021

Disability and Health Journal

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Mothers' voices: Coping with their children's initial disability diagnosis

Cited by 23 publications

References 37 publications

Becoming the mother of a child with disabilities: a systematic literature review

Becoming the mother of a child with disabilities: a systematic literature review

Is preparation a good reason for prenatal genetic testing? Ethical and critical questions

Health information seeking and people with disability: A systematic search and scoping review

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