Mothers’ Stress in Families of Children with Mental Handicap

Al-Qaisy, Lama Majed

doi:10.5539/ass.v8n2p80

Cited by 13 publications

(10 citation statements)

References 14 publications

(9 reference statements)

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“…These findings are consistent with the research of Anderson, Elliott & Zurynski, 2013;Al-Qaisy, 2012, Islam, Shanaz, & Farjana, 2013, Kezban et al, 2013, Madrigal, 2007, Núñez, 2008, Olsson & Hwang, 2008, Pérez & Lorenzo, 2007, Torres & Maia, 2009, and other authors, in relation to the impact that the birth of a child with disabilities can have on a family. Over the course of the program, mothers talked about the changes that were occurring in their own families, which were generally positive.…”

Section: Family Functioningsupporting

confidence: 91%

Fostering Awareness and Acceptance of Disability in Mexican Mothers of Autistic Children

Amaya¹,

Tomasini²

2014

PSYCH

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The arrival of a disabled child is overwhelming to any family; it is often a shocking event that impacts the life cycle of the family. Several studies highlight the support that must be provided to parents of children with disabilities. In Mexico, this support is not often promoted in a successfully way neither in official nor private institutions. The purpose of this study was to assess the effect of a special assistance program carried out with five autistic children' mothers, aged between 28 and 43 years (Mage = 35.4). Attention was focused on: family functioning, knowledge and acceptance of disability. We used a mixed design with a concurrent triangulation; the study was non-experimental, ex post facto, descriptive, and cross-cutting. The main findings show that this program had a positive effect on mothers and several changes regarding the studied variables were observed. It was important to highlight that there was one unexpected result: the personal and group empowerment that enabled the participants, on the one hand, to acknowledge themselves as women in a couple relationship and not only as mothers of their disabled child, and, on the other hand, to form a network of mothers who can look for legal and administrative protection for their autistic children.

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Section: Family Functioningsupporting

confidence: 91%

Fostering Awareness and Acceptance of Disability in Mexican Mothers of Autistic Children

Amaya¹,

Tomasini²

2014

PSYCH

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“…Outra mãe (M8) refere-se aos problemas de saúde (n = 1) decorrentes da baixa imunidade do filho como sendo uma fonte de preocupação constante. Os achados corroboram dados de outros estudos que identificaram estressores semelhantes, como problemas de comportamento da criança (Al-Qaisy, 2012;Hassall et al, 2005;Karasavvidis et al, 2011;Ribeiro et al, 2013;Weiss, Sullivan, & Diamond, 2003); preconceito e isolamento social (Al-Qaisy, 2012); desenvolvimento da criança (Gohel et al, 2011;Silva & Dessen, 2004); e problemas de saúde (Heiman, 2002).…”

Section: Identificando Fontes De Estresse Do Cuidadorunclassified

“…Diversos autores têm identificado altos níveis de estresse em famílias de crianças com deficiências ou atrasos no desenvolvimento (Al-Qaisy, 2012;Karasavvidis et al, 2011;Ribeiro, Porto, & Vandenberghe, 2013), mas a mãe é normalmente o membro mais afetado por ser a cuidadora direta (Albuquerque, Pereira, Fonseca, & Canavarro, 2012;Cherubini, Bosa, & Bandeira, 2008;Silva & Dessen, 2003). Quanto maior for o comprometimento e a dependência da criança, maiores serão as sobrecargas físicas, psicológicas, sociais e financeiras da família e dos genitores individualmente, ampliando, portanto, o nível de estresse.…”

unclassified

“…Diferentes estudos identificaram correlação entre estresse parental e problemas de comportamento da criança (Al-Qaisy 2012; Karasavvidis et al, 2011), estresse e nível de apoio social recebido pela família (Hassall, Rose, & McDonald, 2005), gastos financeiros em função da deficiência da criança e dificuldade dos pais em ter vida social ativa (Al-Qaisy, 2012) e, ainda, problemas no relacionamento conjugal (Karasavvidis et al, 2011). Gohel, Mukherjee e Choudhary (2011) apontam que, quanto maior o nível de dependência da criança para as atividades da vida diária, maior o impacto da deficiência sobre a família.…”

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Coping materno da Síndrome de Down: identificando estressores e estratégias de enfrentamento

Reis

Paula

2018

Estud. psicol. (Campinas)

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Resumo O nascimento de uma criança com Síndrome de Down pode representar risco de estresse em mães, demandando estratégias de enfrentamento. Este estudo identificou os principais estressores e as estratégias de enfrentamento adotadas por nove mães de crianças com essa patologia. As participantes responderam a um roteiro de entrevista adaptado da Motivational Theory of Coping Scale – 12. Os principais estressores identificados foram: preconceito social, rotina de atendimentos, problemas de comportamento da criança, alterações do desenvolvimento e problemas de saúde. A maioria adotou estratégias pertencentes às categorias adaptativas: Autoconfiança, Busca de Suporte, Busca de Informação, Resolução de Problemas, Acomodação e Negociação. Estratégias de enfrentamento de categorias mal adaptativas foram empregadas por algumas mães: Fuga, Isolamento, Submissão e Desamparo. O emprego de estratégias adaptativas aumenta as chances de resultado positivo para saúde mental materna a médio e longo prazos.

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“…In addition to these disability characteristics, many parents caring for infants and toddlers with a disability report high levels of stress (Al‐Qaisy, ; Bailey, Golden, Roberts, & Ford, ) and lower levels of marital satisfaction (Brobst, Clopton, & Hendrick, ). The time required to do everyday caretaking increases for some parents of children with a disability and can affect the health and well‐being of parents (Raina et al., ).…”

mentioning

confidence: 99%

Using the PICCOLO with Parents of Children with a Disability

Innocenti

Roggman

Cook

2013

Infant Mental Health Journal

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All children benefit from positive parenting behaviors that support early child development. For a parent of a child with a disability, the child's characteristics and possible limitations can make positive parenting behaviors challenging, and yet, these interactions need to be a focus of early intervention to promote optimal family and child development. Family-centered practice, which includes strengthening parenting skills, has been advocated by the early intervention field. Although early intervention programs realize the importance of supporting parent-child interaction as part of family-centered practice, it has not been an emphasis of most early intervention programs. The lack of easy-to-use, psychometrically strong parenting measures is an issue in early intervention. The Parenting Interactions with Children: Checklist of Observations Linked to Outcomes (PICCOLO) provides a practical observation measure of parenting with young children. We tested the reliability and validity of this measure with parents of children with an identified disability. Early parenting behaviors predicted cognitive and language outcomes for children with an identified disability up to 9 years after the first assessment. The PICCOLO demonstrated strong reliability and both construct and predictive validity, and shows promise as a useful measure for practitioners working with parents who have a child with a disability.

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Mothers’ Stress in Families of Children with Mental Handicap

Cited by 13 publications

References 14 publications

Fostering Awareness and Acceptance of Disability in Mexican Mothers of Autistic Children

Fostering Awareness and Acceptance of Disability in Mexican Mothers of Autistic Children

Coping materno da Síndrome de Down: identificando estressores e estratégias de enfrentamento

Using the PICCOLO with Parents of Children with a Disability

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