Mothers of Children with Special Health Care Needs: Documenting the Experience of Their Children’s Care in the School Setting

Anderson, Louise E.

doi:10.1177/1059840509334146

Cited by 21 publications

(18 citation statements)

References 19 publications

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“…The quality of interactions between the family and school systems are highly relevant to children's outcomes. Factors that can act as barriers to effective family-school interactions include inadequate emotional support for the family, failure to involve the family in transition planning, lack of recognition of parents' expertise on their child's condition, and poor communication and information exchange between the school and family (Johnson 1986;Fowler & Schwartz 1991;Hains et al 1991;Janus et al 2008;Anderson 2009;McIntyre et al 2010;Dockett et al 2011).…”

Section: School Experiences Of Children With Shcnmentioning

confidence: 99%

Understanding the impact of special health care needs on early school functioning: a conceptual model

O’Connor

Howell-Meurs

Kvalsvig

et al. 2014

Child

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Children with special health care needs (SHCN) have or are at increased risk for a chronic condition that necessitates more health and related supports than their peers. While it is generally accepted that these children are at risk for school failure, the mechanisms through which SHCN impact on children's experiences (and therefore opportunities to intervene) at school are still relatively poorly understood. Based on the current literature, this paper provides a conceptual framework to guide further discussion of this issue in research, policy and practice. Evidence from the literature was reviewed and existing frameworks examined. We propose that SHCN impact on four interrelated domains of children's functioning: (1) body functions and structures; (2) activities of daily living; (3) social participation; and (4) educational participation. Children's functioning is further influenced by risk and protective factors that can be identified at the level of the child, family and service systems. Together, these processes contribute to shaping either positive or negative trajectories of school functioning. The mechanisms influencing school experiences for children with special health care needs are complex, with opportunities for positive interventions at a range of levels. The proposed conceptual model provides an accessible tool for guiding discussion of the support needs of this vulnerable population.

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Section: School Experiences Of Children With Shcnmentioning

confidence: 99%

Understanding the impact of special health care needs on early school functioning: a conceptual model

O’Connor

Howell-Meurs

Kvalsvig

et al. 2014

Child

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“…School personnel and parents report relying on school nurses for meeting the healthcare needs of their children with asthma (Botcheva et al . , Anderson ). The role of the school nurse is critical to the implementation of quality school health services for children with asthma.…”

Section: Introductionmentioning

confidence: 99%

Development of an International School Nurse Asthma Care Coordination Model

Garwick

Svavarsdóttir

Seppelt

et al. 2014

Journal of Advanced Nursing

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Aim To identify and compare how school nurses in Reykjavik, Iceland and St. Paul, Minnesota coordinated care for youth with asthma (ages 10–18) and to develop an asthma school nurse care coordination model. Background Little is known about how school nurses coordinate care for youth with asthma in different countries. Design A qualitative descriptive study design using focus group data. Methods Six focus groups with 32 school nurses were conducted in Reykjavik (n=17) and St. Paul (n=15) using the same protocol between September 2008 – January 2009. Descriptive content analytic and constant comparison strategies were used to categorize and compare how school nurses coordinated care, which resulted in the development of an International School Nurse Asthma Care Coordination Model. Findings Participants in both countries spontaneously described a similar asthma care coordination process that involved information gathering, assessing risk for asthma episodes, prioritizing health care needs and anticipating and planning for student needs at the individual and school levels. This process informed how they individualized symptom management, case management and/or asthma education. School nurses played a pivotal part in collaborating with families, school and health care professionals to ensure quality care for youth with asthma. Conclusions Results indicate a high level of complexity in school nurses’ approaches to asthma care coordination that were responsive to the diverse and changing needs of students in school settings. The conceptual model derived provides a framework for investigators to use in examining the asthma care coordination process of school nurses in other geographic locations.

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“…As adults, children who grew up having a chronic illness have lower odds of graduating from college and being employed and higher odds of receiving public assistance and having a lower mean income. 20 Parents find themselves participating in educational teams, advocating for their child, and being decisional experts about the health care and educational needs of their child, but report feeling unprepared for those responsibilities. Almost 24% of parents of CCC report having to reduce employment or stop employment altogether to take care of their children.…”

Section: Impact Of Chronic Illness On the Child And Familymentioning

confidence: 99%

“…18 The families of children with chronic health conditions are affected as well. 20 In minority families, these difficulties are magnified by language and cultural differences. 3,19 Research indicates that mothers of CCC report difficulty communicating with the school and advocating for their child.…”

Section: Impact Of Chronic Illness On the Child And Familymentioning

confidence: 99%

The Development and Implementation of eSchoolCare

Anderson

2013

Advances in Nursing Science

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School-aged children with chronic conditions (CCC) are increasing in number and bring health needs into classrooms, with implications for learning. Changing technologies and complex care requirements for CCC have left school nurses, the primary health care professional in educational settings, seeking support and further training to provide quality care for CCC. This article describes the development and implementation of a Web-based program, eSchoolCare, designed to extend the expertise of professionals in an academic health care system to school nurses to improve CCC care. The eSchoolCare project serves as an exemplar of an innovative health care delivery support system.

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Mothers of Children with Special Health Care Needs: Documenting the Experience of Their Children’s Care in the School Setting

Cited by 21 publications

References 19 publications

Understanding the impact of special health care needs on early school functioning: a conceptual model

Understanding the impact of special health care needs on early school functioning: a conceptual model

Development of an International School Nurse Asthma Care Coordination Model

The Development and Implementation of eSchoolCare

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