Mothers' Experiences with Neonatal Care for Low Birth Weight Infants at Home; A Qualitative Study in the Hohoe Municipality, Ghana

Schuler, Christina; Ntow, George Edward; Agbozo, Faith

doi:10.1016/j.pedn.2018.12.017

Cited by 14 publications

(18 citation statements)

References 31 publications

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“…In contrast, a Korean study found that the source of stigma toward LBW infants was more related to children's potential future mental disability than appearance [21]. However, in our study, consistent with reports by others in Ghana [35], we did not find a prominent perceived association between a baby's size and future mental or physical disabilities. In fact, mothers' narratives suggested that one way that others encouraged them was to highlight how such children would become intelligent, healthy, and productive in the future.…”

Section: Discussionsupporting

confidence: 85%

“…While other studies have reported psychological and emotional stress mothers bear due to fear that their baby may not survive, our work suggests that the conditions of urban WLHIV may exacerbate and prolong maternal mental health concerns. Previous studies of the experiences of LBW and preterm babies have mostly focused on HIV-uninfected mothers' experiences, particularly in the NICU [10,33,35]. They show that mothers of LBW babies experience short and long-term mental health difficulties [13,14,35,57], including depression [58,59], trauma [60] and stress from the economic burden of LBW infant care [46].…”

Section: Discussionmentioning

confidence: 99%

“…Most studies have devoted attention to the care [29,30], risk factors [27,31], mortality [2,32], and maternal mental health [13,33] associated with LBW infants. In the few studies that describe stigmatizing behaviors [19,34,35], stigma has not been a key focus. Therefore, the social-cultural context, nature, and responses to LBW stigma have not been well characterized.…”

Section: Introductionmentioning

confidence: 99%

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Stigma toward small babies and their mothers in Ghana: A study of the experiences of postpartum women living with HIV

et al. 2020

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Infants born to HIV-infected mothers are more likely to be low birthweight (LBW) than other infants, a condition that is stigmatized in many settings worldwide, including sub-Saharan Africa. Few studies have characterized the social-cultural context and response to LBW stigma among mothers in sub-Saharan Africa or explored the views of women living with HIV (WLHIV) on the causes of LBW. We purposively sampled thirty postpartum WLHIV, who had given birth to either LBW or normal birthweight infants, from two tertiary hospitals in Accra, Ghana. Using semi-structured interviews, we explored women's understanding of the etiology of LBW, and their experiences of caring for a LBW infant. Interviews were analyzed using interpretive phenomenology. Mothers assessed their babies' smallness based on the baby's size, not hospital-recorded birthweight. Several participants explained that severe depression and a loss of appetite, linked to stigma following an HIV diagnosis during pregnancy, contributed to infants being born LBW. Women with small babies also experienced stigma due to the newborns' "undesirable" physical features and other people's unfamiliarity with their size. Consequently, mothers experienced blame, reluctance showing the baby to others, and social gossip. As a result of this stigma, women reported self-isolation and depressive symptoms. These experiences were layered on the burden of healthcare and infant feeding costs for LBW infants. LBW stigma appeared to attenuate with increased infant weight gain. A few of the women also did not breastfeed because they thought their baby's small size indicated pediatric HIV infection. Among WLHIV in urban areas in Ghana, mother and LBW infants may experience LBW-related stigma. A multi-component intervention that includes reducing LBW incidence, treating antenatal depression, providing psychosocial support after a LBW birth, and increasing LBW infants' weight gain are critically needed.

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Section: Discussionsupporting

confidence: 85%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Stigma toward small babies and their mothers in Ghana: A study of the experiences of postpartum women living with HIV

et al. 2020

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“…16 A study carried out in Ghana with mothers of low birth weight newborns verified the lack of preparation of the health professionals and the mothers' dissatisfaction with the assistance of the health professionals, as they considered the need for better advice from the health team on primary care for newborns and on the maintenance of the mother-kangaroo method. 18 From the perspective of assisting the binomial in the KM third stage, the PHC professionals reported only increasing the frequency of childcare consultations and did not mention whether they want to guide the mothers to continue the method at home, suggesting that they are unaware of the KM assumptions.…”

Section: Discussionmentioning

confidence: 99%

Terceira etapa do método canguru: experiência de mães e profissionais da atenção primária

et al. 2021

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RESUMO Objetivo Compreender a continuidade da terceira etapa do Método Canguru na perspectiva de mães e profissionais de saúde. Método Trata-se de um estudo qualitativo, exploratório-descritivo, realizado em Unidades de Saúde da Família e nos domicílios de mães canguru em uma capital do nordeste brasileiro. Foram entrevistados doze profissionais de saúde e dez mães-canguru. O material empírico foi submetido à análise temática. Resultados Emergiram duas categorias temáticas: (Des)conhecimento acerca do Método Canguru e suas ações para a continuidade da terceira etapa; e Entraves à continuidade da terceira etapa do Método Canguru. Conclusão e implicações para prática Identificou-se o ínfimo conhecimento dos profissionais e das mães acerca do Método Canguru, ausência de capacitação dos profissionais da atenção primária, lacuna na comunicação entre a atenção primária e terciária. Há descontinuidade do cuidado à criança e mãe-canguru após alta hospitalar, pois os profissionais da atenção primária não estão sendo copartícipes no acompanhamento. Conhecer a realidade da terceira etapa do método canguru viabiliza o planejamento de estratégias para superar as dificuldades existentes para continuidade do método e assim ofertar um cuidado qualificado e integral ao binômio mãe-bebê canguru.

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“…In order to reduce neonatal morbidity and mortality due to premature birth, there is an important need to increase the knowledge and skills not only for mothers but also other caregivers at home such as grandmothers. Based on the results of the study, there is a need to improve counseling and health education for newborns and special care for premature babies at home (11).…”

Section: Health Educationmentioning

confidence: 99%

Home Intervention For Mother And Premature Infant: A Literature Review

Kapti¹,

Pandin²

2021

Preprint

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Background: Premature babies have a greater risk for having health issues after being discharged from the hospital whilst the mother ability to provide premature baby care still has many issues as well. Interventions are needed to be given to mothers at home to improve the ability of mothers to care their premature babies. Methods: Search for articles used the bolean operator of “or” and “and” with the keywords used were “preterm or premature”, “intervention or program”, and “mother and home”. Data based used were Sciencedirect, Ebscohost, PubMed, SAGE, Proquest and Scopus with inclusion criteria using full text in English from 2018 to 2021. There were 428 articles obtained, the articles were then screened by reading the main focus of articles with paying attention to the topic and the suitability of article content and we obtained 13 suitable articles. Results: The interventions at home carried out for mothers and premature babies were divided into two namely the follow-up interventions from the hospital and the interventions carried out at the patient's home. Seven articles about research of interventions that were as a combination from hospital intervention with follow-up hospital intervention plus five full interventions at the patient's home. Interventions were provided through home visits (12 articles) and by telephone (1 article). The results of the article analysis resulted in 4 main themes of intervention for mothers and premature babies, they were health education, counceling, support, and care for premature babies. Conclusion: Quality care is essential for the best health, growth and development of premature babies. Interventions need to be carried out by health workers to ensure the readiness and ability of mothers to care for their babies. Maternal readiness and abilities can be improved by providing health education, counseling, support and care for premature babies.

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Mothers' Experiences with Neonatal Care for Low Birth Weight Infants at Home; A Qualitative Study in the Hohoe Municipality, Ghana

Cited by 14 publications

References 31 publications

Stigma toward small babies and their mothers in Ghana: A study of the experiences of postpartum women living with HIV

Stigma toward small babies and their mothers in Ghana: A study of the experiences of postpartum women living with HIV

Terceira etapa do método canguru: experiência de mães e profissionais da atenção primária

Home Intervention For Mother And Premature Infant: A Literature Review

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