Mortality and mental health funding—do the dollars add up? Eating disorder research funding in Australia from 2009 to 2021: a portfolio analysis

Bryant, Emma; Koemel, Nicholas A.; Martenstyn, Jordan Andre; Marks, Peta; Hickie, Ian B.; Maguire, Sarah

doi:10.1016/j.lanwpc.2023.100786

Cited by 6 publications

(5 citation statements)

References 71 publications

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“…Within this category, across all mental health conditions, the highest discrepancy between funding and disease burden was for ED research. 119 When examining funding in Australia between 2009 and 2021, Bryant et al found that ED research investment equated to $2.05 per affected individual, compared to $19.56 for depression, $32.11 for autism, and $176.19 for schizophrenia. 119 Notably, ED research was the only mental health category that saw no significant increase in funding across the 13 years.…”

Section: Resultsmentioning

confidence: 99%

“… 119 When examining funding in Australia between 2009 and 2021, Bryant et al found that ED research investment equated to $2.05 per affected individual, compared to $19.56 for depression, $32.11 for autism, and $176.19 for schizophrenia. 119 Notably, ED research was the only mental health category that saw no significant increase in funding across the 13 years. Half of this funding was for “basic” research (ie, illness underpinning), with limited investment in translational or applied research (ie, ED detection, treatment development, and management of illness and health services).…”

Section: Resultsmentioning

confidence: 99%

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A Narrative Review of Early Intervention for Eating Disorders: Barriers and Facilitators

Mills,

Hyam,

Schmidt

2023

AHMT

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Eating disorders (EDs) are serious psychiatric illnesses that typically develop during adolescence and emerging adulthood. Early intervention is important for improved outcomes for young people with EDs, yet help-seeking is low and individuals often have a significantly protracted start to treatment, suggesting that early intervention is not well established in the ED field. Previous reviews on facilitators and barriers to early intervention for EDs largely cover perceived barriers related to patient variables and perspectives, whereas clinician-, service-, and healthcare system-related facilitators and barriers are less frequently reviewed. The aim of this review is to synthesize the literature on barriers to and facilitators of early intervention for EDs, regarding patient-, clinician-, service-, and healthcare system-related factors. A narrative review was conducted by searching for relevant peer-reviewed, English-language articles published up until July 2023 on PubMed and PsychINFO. The search was conducted in two steps. First, key search terms were used to identify existing reviews and meta-analyses on facilitators and barriers to early intervention for EDs. Then, additional search terms were added to search for primary and secondary research on patient/family, clinician, service, and healthcare system-related barriers and facilitators. The identified literature shows that, after overcoming intrinsic, motivational barriers (such as self-stigma, denial, and ambivalence), help-seeking individuals may be met with long service waiting lists and limited treatment options. Despite these barriers, there is ongoing research into early intervention in practice, which aims to reach underserved populations and facilitate early intervention despite high service demands and shortages of trained healthcare professionals. Funding for ED research and services has historically been low, and there is also a research-practice gap. This highlights the need for increased consideration of, and funding for early intervention for EDs, to remove barriers as well as facilitate discussions around how to make early intervention programs scalable and sustainable.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

A Narrative Review of Early Intervention for Eating Disorders: Barriers and Facilitators

Mills,

Hyam,

Schmidt

2023

AHMT

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“…Future research should examine the ED prevention research output from different countries in relation to their overall research output, the proportion of funding devoted to research in relation to their gross national income, and what portion of the research funding goes to ED research, and more specifically, to research on the prevention of EDs. Current investigations indicate that a very small fraction of research funding goes to ED research [ 34 ], despite anorexia nervosa being one of the psychiatric conditions with highest mortality rate [ 35 , 36 ]. This picture is probably universal and even more extreme in non-Western countries.…”

Section: Discussionmentioning

confidence: 99%

A Bibliometric Analysis of Scientific Publications on Eating Disorder Prevention in the Past Three Decades

Liao,

Scaltritti,

et al. 2024

Nutrients

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Background: Eating disorders (EDs) present a growing concern due to their widespread occurrence and chronic course, the low access to evidence-based treatment, and the significant burden they place on the patients and society. This picture justifies intensive focus on the prevention of EDs. The current study provides the first bibliometric analysis of research on the prevention of EDs, focusing on trends and contributions, to prompt further prevention research. Methods: We conducted a bibliometric analysis of publications on the prevention of EDs using the Web of Science database, from 1993 to 2023. Focusing on universal and selective prevention strategies, our study involved a rigorous selection process, narrowing down from 10,546 to 383 relevant papers through manual screening. The analysis utilized the “bibliometrix” R package (version 4.2.2) and Python (version 3.9.6) for data processing, with VOSviewer employed for mapping collaboration networks. Results: Our analysis revealed a consistent annual growth rate of 10.85% in ED prevention research publications, with significant contributions from the “International Journal of Eating Disorders” and some notable authors. The United States emerged as the dominant contributor. The analysis also highlighted key trends, including a surge in publications between 2010 and 2017, and the role of major institutions in advancing research in this field. Discussion: The increasing rate of publications on the prevention of EDs is encouraging. However, the actual number of studies on the prevention of EDs are limited, and the majority of this work is performed by a few research groups. Given the high concentration of publications within a few countries and research groups, increased funding, facilitation of prevention research on a wider scale, and engagement of more researchers and further collaboration are called for.

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“…Conservative estimates place 4–5% of the Australian population with an ED at any one time,10 11 with poor overall treatment outcomes, high mortality rates, and a national fiscal cost of $69.7 billion per year 11. However, inaccurate epidemiological and cost data generated from incomplete healthcare statistics means the true burden of EDs is not known 6 12–14…”

Section: Introductionmentioning

confidence: 99%

Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset

et al. 2023

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ObjectivesEating disorders (EDs) are complex psychiatric illnesses requiring multidisciplinary care across both mental and medical healthcare settings. Currently, no nationally comprehensive, consistent, agreed on or mandated data set or data collection strategy exists for EDs in Australia: thus, little is known about the outcomes of care nor treatment pathways taken by individuals with EDs. InsideOut Institute was contracted by the Australian Government Department of Health to develop a minimum dataset (MDS) for the illness group with consideration given to data capture mechanisms and the scoping of a national registry.DesignA four-step modified Delphi methodology was used, including national consultations followed by three rounds of quantitative feedback by an expert panel.SettingDue to social distancing protocols throughout the global SARS-CoV-2 pandemic, the study was conducted online using video conferencing (Zoom and Microsoft Teams) (Step 1), email communication and the REDCap secure web-based survey platform (Steps 2–4).Participants14 data management organisations, 5 state and territory government departments of health, 2 Aboriginal and Torres Strait Islander advising organisations and 28 stakeholders representing public and private health sectors across Australia participated in consultations. 123 ED experts (including lived experience) participated in the first quantitative round of the Delphi survey. Retention was high, with 80% of experts continuing to the second round and 73% to the third.Main outcome measuresItems and categories endorsed by the expert panel (defined a priori as >85% rating an item or category ‘very important’ or ‘imperative’).ResultsHigh consensus across dataset items and categories led to the stratification of an identified MDS. Medical status and quality of life were rated the most important outcomes to collect in an MDS. Other items meeting high levels of consensus included anxiety disorders, depression and suicidality; type of treatment being received; body mass index and recent weight change.ConclusionsUnderstanding presentation to and outcomes from ED treatment is vital to drive improvements in healthcare delivery. A nationally agreed MDS has been defined to facilitate this understanding and support improvements.

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Mortality and mental health funding—do the dollars add up? Eating disorder research funding in Australia from 2009 to 2021: a portfolio analysis

Cited by 6 publications

References 71 publications

A Narrative Review of Early Intervention for Eating Disorders: Barriers and Facilitators

A Narrative Review of Early Intervention for Eating Disorders: Barriers and Facilitators

A Bibliometric Analysis of Scientific Publications on Eating Disorder Prevention in the Past Three Decades

Gaining consensus on clinical quality outcomes for eating disorders: Framework for the development of an Australian national minimum dataset

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