More Hands in Complex ART Delivery? Experiences from the Expert Clients Initiative in Rural Uganda

Kyakuwa, Margaret

doi:10.4314/asr.v13i1.57754

Cited by 11 publications

(9 citation statements)

References 23 publications

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“…The former have knowledge and expertise, while the latter are viewed as empty vessels waiting to be filled with knowledge imparted by the 'educated' and 'knowledgeable' facilitator. Next to the facilitator sat 'expert clients' (see Kyakuwa, 2009;Keilmann & Cataldo, 2010). Expert clients were patients who had already completed the initial lessons and were there to be the 'face' of ARVs and the success of the drugs, and 'models' for other patients.…”

Section: Support Groupsmentioning

confidence: 99%

Negotiating therapeutic citizenship and notions of masculinity in a South African village

Mfecane

2011

African Journal of AIDS Research

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The article explores the idea of therapeutic citizenship in relation to the experiences of men who attend support groups for people living with HIV or AIDS (PLHIV). At a rural South African health facility offering free antiretroviral (ARV) medicines, support groups aim to empower HIV-positive clients through knowledge and skills that enable them to adhere to their ARV regimen. Members are exhorted to abandon their 'traditional' health and gender beliefs in favour of a biomedical understanding and approach to health; to embrace participation in a support group for PLHIV; and to actively challenge HIV stigma through the public disclosure of their HIV-test result. Fourteen months of ethnographic fieldwork conducted in Bushbuckridge, Mpumalanga Province, South Africa, investigated how men negotiated these efforts - normally characterised in the academic literature as 'therapeutic citizenship' - in relation to men's socio-cultural definitions of masculinity. The findings reveal that most of the men gained the knowledge and skills necessary to adhere to treatment. Although they generally behaved in a disciplined way, they remained doubtful about their commitment to the particular kind of 'HIV identity' that a support group conferred on them. Men who embrace this identity must abandon their previous masculine lifestyles and conform to the support group's messages concerning what it means to be a 'responsible' HIV patient. The research documents some of the challenges men experience in negotiating these conflicting demands. The discussion draws on personal accounts by the participants to illustrate the ambivalence of men towards their 'HIV identity' and to belonging to a support group.

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Section: Support Groupsmentioning

confidence: 99%

Negotiating therapeutic citizenship and notions of masculinity in a South African village

Mfecane

2011

African Journal of AIDS Research

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“…Of the 23 studies about experiences with peer support, 15 concerned experiences with providing peer support (Table 1; studies 2, 4, 5, 7-9, 15-23), [35][36][37][38][39][40][41][42][43][44][45][46][47][48][49] four addressed experiences with receiving peer support (Table 1, studies 1, 6, 11, 13), [50][51][52][53] and four explored PLHIV's views on both providing and receiving peer support (Table 1, studies 3, 10, 12, 14). [54][55][56][57] Most studies (n = 20, 59%) utilized a qualitative design (Table 2). The four studies that covered experiences both with providing and receiving peer support included 360 participants in Uganda, Ethiopia, Zambia, and Canada.…”

Section: Categories Of Studies and Their Resultsmentioning

confidence: 99%

A Scoping Review of the Empirical Literature on Peer Support for People Living with HIV

Øgård-Repål

Berg

Fossum

2021

J Int Assoc Provid AIDS Care

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People living with HIV receiving antiretroviral therapy need support related to linkage to care and self-management in everyday life. Peer support has been found to provide varied support according to the unique needs of the group. This scoping review aims to provide an overview of research on peer support provided to people living with HIV. A search was conducted in eight databases until May 2021, and two reviewers independently screened all identified studies. We sorted the included studies into categories and conducted descriptive analyses. For this communication, we included 34 studies representing three study categories: the experiences of peer support (n = 23), program descriptions (n = 6), and training of peer supporters (n = 5). The studies were published between 2000 and 2021 and included 4275 participants from 10 countries. The flexibility of peer support complements healthcare services, but there is a need to clarify and adjust the ongoing support when living with HIV.

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“…Much research has focused on the involvement of patients in surveillance, and how treatment programmes socialise patients into becoming responsible, adherent patients who share an illness-based identity, with particular biomedical and lifestyle knowledge and modes of speech; the 'expert patient' (Kielmann and Cataldo 2010;Nguyen 2010). Another body of literature discusses the 'expert patient' , as a cadre of volunteers who may fill important gaps in the healthcare system (Kielmann and Cataldo 2010;Kyakuwa 2010;Kyakuwa, Hardon, and Goldstein 2012;Moyer 2014). In this literature, 'monitoring' refers to assessing the measured body through routine check-ups at healthcare facilities (Moyer and Hardon 2014;Whyte 2014).…”

Section: Expert Caregivingmentioning

confidence: 99%

Monitoring the body: grandmothers’ ability to provide ‘expert’ care for grandchildren living with HIV in northwest Tanzania

Klerk

2019

Anthropology & Medicine

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More Hands in Complex ART Delivery? Experiences from the Expert Clients Initiative in Rural Uganda

Abstract: This paper aims to analytically describe the experiences and outcomes of involving

Cited by 11 publications

References 23 publications

Negotiating therapeutic citizenship and notions of masculinity in a South African village

Negotiating therapeutic citizenship and notions of masculinity in a South African village

A Scoping Review of the Empirical Literature on Peer Support for People Living with HIV

Monitoring the body: grandmothers’ ability to provide ‘expert’ care for grandchildren living with HIV in northwest Tanzania

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