Monitoring My Multiple Sclerosis

Gulick, Elsie E.; Namey, Marie; Halper, June

doi:10.7224/1537-2073-13.3.137

Cited by 13 publications

(7 citation statements)

References 49 publications

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“…It included a set of socio-demographic variables (gender, age, area of residence, educational level, and marital status) and clinical variables (disease duration, age at disease onset, a previous diagnosis of depression and antidepressant drug use). Severity of MS was measured using the Patient Determined Disease Steps (PDDS), a nine-item patient-administered measure of MS-related disability (Learmonth et al 2013 ; Vollmer et al 1999 ; Kurtzke 1970 ; Gulick et al 2011 ).…”

Section: Methodsmentioning

confidence: 99%

Insomnia among non-depressed multiple sclerosis patients: a cross-sectional study

Alhazzani

Alshahrani

Alqahtani

et al. 2018

Egypt J Neurol Psychiatry Neurosurg

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BackgroundInsomnia is a common problem that affects approximately 50% of patients with multiple sclerosis (MS), who suffer from sleep disturbances. In general, persons with insomnia are at a higher risk of developing depression. This study was conducted to assess insomnia among non-depressed MS patients in Saudi Arabia.MethodsBased on the Patient Health Questionnaire-9 (PHQ-9), those who scored 4 or less for depression out of 598 MS patients were selected (n = 112). A cross-sectional study was conducted to interview 112 non-depressed MS patients in order to assess insomnia among them. A data collection sheet has been designed by the researchers. It comprised socio-demographic variables (e.g., gender, age, area of residence, and marital status) and clinical variables (disease duration, age at disease onset, previous diagnosis of depression, and used antidepressant drugs). Insomnia was assessed by the Insomnia Severity Index (ISI), while severity of illness was assessed using the Patient Determined Disease Steps (PDDS).ResultsA total of 72 patients (64.3%) were females, and 62 (55.4%) were married. Their mean age was 32.6 years (SD = 8.9), ranging from 15 to 56 years. As for educational level, 64 (57.1%) had a Bachelor degree. The mean age at disease onset was 26 years (SD = 8.9). The mean duration of illness was 1.9 years. Symptoms of insomnia were present among 14 patients (12.5%). No statistical significance was found between the mean PDSS of insomnia and non-insomnia patients. Significant differences were present between insomnia and non-insomnia patients as regards their education level (P = 0.005) and use of antidepressant drugs (P = 0.008).ConclusionsPrevalence of insomnia among non-depressed MS patients is low. Insomnia is associated with educational and use of antidepressants. Further research is needed to assess severity of different types of insomnia among depressed and non-depressed MS patients.

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Section: Methodsmentioning

confidence: 99%

Insomnia among non-depressed multiple sclerosis patients: a cross-sectional study

Alhazzani

Alshahrani

Alqahtani

et al. 2018

Egypt J Neurol Psychiatry Neurosurg

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“…The MMMS was produced by Gulick et al in 2011, and the Turkish reliability and validity of the instrument were conducted by Polat et al in 2017. A higher score indicates that patients are more satisfied with their health status and functioning (Score ranges:26-104) 21,22 . In the study of Polat et al, Cronbach's alpha coefficients calculated to evaluate internal consistency were between 0.643 and 0.89 22…”

Section: Monitoring My Multiple Sclerosis Scale (Mmms)mentioning

confidence: 99%

Cinsel ve nörojenik alt üriner sistem disfonksiyonunun multipl skleroz hastalarının yaşam kalitesi ve sağlık algıları üzerindeki etkisi

Eşkut

Köşkderelioğlu

2023

Cukurova Medical Journal

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Purpose: To investigate the impact of neurogenic lower urinary tract dysfunction (NLUTD) and sexual dysfunction (SD) on multiple sclerosis (MS) patients' quality of life and health perceptions and evaluate the possible relationship with disease parameters. Materials and Methods: A total of 192 patients with MS were included in the study. Along with the King's Health (KHQ) and COOP/WONCA questionnaires, Arizona Sexual Experience Scale (ASEX), Beck Depression Scale (BDI), Monitoring My Multiple Sclerosis Scale (MMMS) were used to evaluate the patients’ quality of life and self-perception of health. Results: The median age of the patients was 39.5 years (18–66 years). In contrast, SD was present in 34.4%, 51.6% of the patients presented with NLUTD. Patients with NLUTD had significant differences in terms of age, education level, duration of disease, EDSS, BDI, ASEX, and MMMS scores. The majority of the study group had minor disability (82.8% had an EDSS score less than 3). Patients with SD showed higher disability, depression, and disrupted self-perception of their health status. In addition, quality of life measures correlated with the presence of NLUTD, SD and depression along with higher disability and altered self perception of their health status. Conclusion: NLUTD and SD significantly effect quality of life and well being. Increasing awareness about the impact of NLUTD and SD symptoms in patients with MS will provide a comprehensive approach in clinical practice.

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“…MS is a chronic and progressive disease causing important limitations in physical, emotional, and social functions in patients and affecting their quality of life (1,2,3).…”

Section: Introductionmentioning

confidence: 99%

“…Perception of health evaluation helps to gain an understanding on the impacts of the disease process and treatment on a patient' s daily life, defining the social, emotional, and physical needs of the patients. Therefore, it contributes to the development of an individual management plan which meets a patient' s needs, and it could be used as a self-evaluation tool by the patients to monitor their symptoms (2,3,11,14,15,16,17).…”

Section: Introductionmentioning

confidence: 99%

“…Therefore, the International Organization of Multiple Sclerosis Nurses (IOMSN) decided to develop a reliable, user-friendly, and valid self-administered measure that included often-neglected areas of MS symptoms. Hence, Gulick et al (3) developed a self-assessment scale (Monitoring My MS Scale [MMMS]) for patients, which could help them to monitor their physical condition and evaluate outcomes of healthcare. The aim of this study was to adapt this scale to the Turkish MS patients and examine its psychometric properties.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Validity and Reliability of the Turkish Version of the Monitoring My Multiple Sclerosis Scale

Polat¹,

Tülek²,

Kürtüncü³

et al. 2017

Arch Neuropsychiatr

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Monitoring My Multiple Sclerosis

Cited by 13 publications

References 49 publications

Insomnia among non-depressed multiple sclerosis patients: a cross-sectional study

Insomnia among non-depressed multiple sclerosis patients: a cross-sectional study

Cinsel ve nörojenik alt üriner sistem disfonksiyonunun multipl skleroz hastalarının yaşam kalitesi ve sağlık algıları üzerindeki etkisi

Validity and Reliability of the Turkish Version of the Monitoring My Multiple Sclerosis Scale

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