Models of childhood cancer survivorship care in Australia and New Zealand: Strengths and challenges

Abstract

The lack of an accepted model of optimal childhood cancer survivorship care across ANZ prevents the synergistic development of survivorship guidelines, survivorship care plans, transition pathways, information technology solutions, funding streams and late effects data consortiums. Sufficient resources to facilitate growth may be difficult to secure if approached by individual centers rather than via a national, cooperative effort. Improved solutions are urgently needed for transitioning survivors to appropriate care beyond the pediatric age.

Falling through the cracks. A thematic evaluation of unmet needs of adult survivors of childhood cancers

“…Family physicians must be adequately trained, confident, and experienced to manage follow‐up cancer care. Health‐care capacity issues and funding ASCC lifetime follow‐up care programs may require investing in nationwide models of standardized care …”

Childhood cancer survivorship and late effects: The landscape in India in 2020

“…Surveys from high‐income countries demonstrate service delivery for these survivors 39‐42 . Such information is absent in the Indian context.…”

Comorbidity of distress experienced by parents of childhood cancer survivors points to the importance of understanding transdiagnostic cognitive–affective mechanisms

“…Our team has collected qualitative data from parents of childhood cancer survivors in the context of two large-scale research projects. The first, the long-term follow-up study of childhood cancer survivors [11,12] aimed to quantify and characterize the medical and psychosocial late effects and needs of childhood cancer survivors and their parents. The second, 'Cascade' [10,13], delivered and evaluated a new online intervention for parents, designed to mitigate some of the psychological aftereffects of childhood cancer survival.…”