Modeling the Distress of Spousal Caregivers of People with Dementia

Wawrziczny, Emilie; Berna, Guillaume; Ducharme, Francine; Kergoat, Marie‐Jeanne; Pasquier, Florence; Antoine, Pascal

doi:10.3233/jad-160558

Cited by 31 publications

(52 citation statements)

References 76 publications

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“…Although the lack of family support score was not a significant predictor of distress in the present study, CL caregivers feel this lack more than spouse caregivers. In fact, spouses prefer to distance themselves from family members because they want to prevent them from being involved in care‐related decisions or have little tolerance for relatives' treating the person with dementia as if they do not exist . Furthermore, spouses have difficulty delegating because they feel responsible for care and think that they alone can best provide it to their loved one; they are also highly motived by their duty as a spouse …”

Section: Discussionmentioning

confidence: 99%

“…In fact, spouses prefer to distance themselves from family members because they want to prevent them from being involved in care-related decisions or have little tolerance for relatives' treating the person with dementia as if they do not exist. 24,33 Furthermore, spouses have difficulty delegating because they feel responsible for care and think that they alone can best provide it to their loved one; they are also highly motived by their duty as a spouse. 34 When the primary caregiver is a CL, family mediation sessions may be suggested to assess family support, help other family members gain a better understanding of the disease, and reassign roles and responsibilities where possible.…”

Section: Considering the Quality Of Family Support For Clsmentioning

confidence: 99%

“…29 In cases where the primary caregiver is a CL, family mediation sessions may be suggested to assess family support. 33 Finally, CNL caregivers should be given information on support so that they can access resources to help alleviate the personal and financial burdens of caregiving.…”

Section: Limitationsmentioning

confidence: 99%

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Predictors of caregiver distress among spouses, adult children living with the person with dementia, and adult children not living with the person with dementia

2020

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Aim: The caregiving situation differs according to the type of relationship between the patient caregiver, and among dementia caregivers, living with the person with dementia can contribute to caregiver distress. This study aimed to identify the predictors of caregiver distress based on caregiver profile: spouse, adult child living with the person with dementia, and adult child not living with the person with dementia. Method: In total, 213 caregivers participated in this study. Their responses to questionnaires helped identify the positive and negative implications of the caregiving situation and the level of caregiver distress. The analyses consisted of univariate and multiple linear regression models using a forward method. Results: Based on the standardized beta scores, the variables that are the most significant in predicting spouse caregiver distress are the impact on health and impact on schedule. The variable that is the most significant in predicting the distress of adult child caregivers living with the person with dementia is the impact on health. The variables that are the most significant in predicting the distress of adult child caregivers not living with the person with dementia are the impact on health, impact on schedule, and impact on finances. Conclusion: The results make it possible to consider different approaches to providing support, including evaluating the health of all caregivers, giving guidance on accepting help and focusing caregivers' actions on their values for spouse caregivers, providing family mediation for adult child caregivers living with the person with dementia, and offering information and assistance on the available aids for adult child caregivers not living with the person with dementia.

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Section: Discussionmentioning

confidence: 99%

Section: Considering the Quality Of Family Support For Clsmentioning

confidence: 99%

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Predictors of caregiver distress among spouses, adult children living with the person with dementia, and adult children not living with the person with dementia

2020

Self Cite

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“…Psychological theory and research suggests and demonstrates that people are meaning‐making beings and that subjective meanings often mediate between a situation and a person's reaction to it . Having a sense of perceived control is vitally connected to well‐being , and generating a belief that one has entered into caregiving through choice is a protective coping strategy that is likely to enable a carer to continue with their role without resentment . It may be much better for a person's health to see himself or herself as having taken on caring not due to societally imposed duty, but due to his or her internalised values about the importance of looking after close family members.…”

Section: Discussionmentioning

confidence: 99%

Informal care: choice or constraint?

Al‐Janabi

Carmichael

Oyebode

2017

Scandinavian Caring Sciences

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Background‘Choice’ is increasingly pursued as a goal of social policy. However, the degree to which choice is exercised when entering an informal caring role is open to debate.AimIn this study, we examined the degree of choice and constraint in entering a caring role, and the relationship between choice and carers’ well‐being.MethodsData were derived from 1100 responses to a postal survey conducted in a British city. Statistical tests of association and multivariable regression modelling were applied to study the factors associated with choice in entering a caring role and the association that choice in entering a caring role had with carers’ well‐being.ResultsWe found that informal care was generally perceived to be a free choice, albeit in most cases, a choice was also constrained by duty, financial or social resources. Having a sense of free choice in entering care was strongly and positively associated with the carer's well‐being.ConclusionThe study findings are consistent with a view that enabling individuals to have more choice in their caring roles may be beneficial.

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“…Despite these positive feelings, taking care of people with dementia can increase distress levels among caregivers who report poor health and a lack of family support [ 9 ]. On the other hand, the feeling of being prepared and a level of trust reduces the level of distress [ 10 ]. Caregivers are involved in this task on a daily basis, and they consequently feel overburdened at times [ 11 – 16 ].…”

Section: Introductionmentioning

confidence: 99%

Barriers and enablers in the use of respite interventions by caregivers of people with dementia: an integrative review

Leocadie

Roy²,

Rothan-Tondeur

2018

Arch Public Health

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BackgroundDue to the increase in the number of people with dementia, relatives often provide in-home care. This care constitutes a cornerstone of the healthcare system, and maintaining these caregivers’ well-being is therefore of paramount importance. Although respite interventions are generally considered an effective support system, they tend to be underutilized. The aim of this integrative literature review is to highlight the factors that promote and impede the use of respite interventions.MethodsSearches were conducted on the PubMed and CINAHL databases for studies of respite interventions from 1980 to 2016, and they yielded 51 articles of relevance.ResultsAnalysis of these articles revealed modifiable and immutable factors that influence the use of respite. The most cited topic categories in the literature were attributes of respite services and workload managed by caregivers, which is characterized by the onset of burden.ConclusionThe factors promoting or impeding the use of respite interventions identified by our analysis highlight the need to adapt respite service attributes and use caregivers’ skills to foster the partnership between healthcare teams and caregivers and to ensure the accompanying dyad’s quality and safety.Electronic supplementary materialThe online version of this article (10.1186/s13690-018-0316-y) contains supplementary material, which is available to authorized users.

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Modeling the Distress of Spousal Caregivers of People with Dementia

Cited by 31 publications

References 76 publications

Predictors of caregiver distress among spouses, adult children living with the person with dementia, and adult children not living with the person with dementia

Predictors of caregiver distress among spouses, adult children living with the person with dementia, and adult children not living with the person with dementia

Informal care: choice or constraint?

Barriers and enablers in the use of respite interventions by caregivers of people with dementia: an integrative review

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