Mode of onset of psychosis and family involvement in help-seeking as determinants of duration of untreated psychosis

Compton, Michael T.; Chien, Victoria H.; Leiner, Amy S.; Goulding, Sandra M.; Weiss, Paul S.

doi:10.1007/s00127-008-0397-y

Cited by 86 publications

(110 citation statements)

References 15 publications

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“…As reported previously [20], in the larger study there was no evidence of significant differences in sociodemographic or clinical characteristics or in DUP between patients for whom information from a collateral informant (family member) was available and those for whom it was not. Additionally, there were no significant differences in gender, age, education, and having children among participants in this study and participants of the larger ACES study cohort, indicating that this sample was representative of the larger cohort.…”

Section: Resultssupporting

confidence: 68%

The period of untreated psychosis before treatment initiation:

Bergner

Leiner

Carter

et al. 2008

Comprehensive Psychiatry

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Aim-This study employed a qualitative research methodology to explore common themes pertaining to the period of untreated psychosis prior to treatment initiation in hospitalized, urban, African American, first-episode psychosis patients.Methods-Twelve family members of 10 patients were interviewed at length to gather detailed narrative accounts of factors related untreated psychosis and treatment delay. Using qualitative analysis, verbatim transcripts were reviewed by two researchers to identify prominent themes useful for generating future research hypotheses.Results-Four themes emerged as informative of the period of untreated psychosis prior to treatment initiation: (1) misattribution of symptoms or problem behaviors (e.g., depression, drug use, adolescent rebellion), (2) positive symptoms causing unusual or dangerous behaviors that served as a catalyst for initiating treatment, (3) views about personal autonomy of an adult or nearly adult patient, and (4) system-level factors (e.g., unaffordability of healthcare, inefficiency on the part of healthcare providers).Conclusions-Family members encountered numerous barriers when seeking treatment, including their own misattributions, the nature of the patient's symptoms, financial issues, and system-level delays. The themes uncovered in this formative analysis merit further exploration with additional qualitative and quantitative research.

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Section: Resultssupporting

confidence: 68%

The period of untreated psychosis before treatment initiation:

Bergner

Leiner

Carter

et al. 2008

Comprehensive Psychiatry

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“…As in previous studies, participants were generally reluctant to disclose voices: delays in seeking help were associated with denial (McGlashan, 1999), misinterpretation of symptoms (Phillips et al, 1999) and fear of stigmatization (Compton et al, 2008). Our results partly concur with previous findings that fear of being judged negatively is related to not disclosing (Bay et al, 2016;Sickel et al, 2016).…”

Section: Discussionsupporting

confidence: 90%

“That little doorway where I could suddenly start shouting out”: Barriers and enablers to the disclosure of distressing voices

et al. 2017

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Hearing distressing voices is a key feature of psychosis. The time between voice onset and disclosure may be crucial as voices can grow in complexity. This study investigated barriers and enablers to early voice disclosure. Interviews with 20 voice hearers underwent Thematic Analysis. Beliefs about the effect of disclosure on self and others acted as a barrier and enabler to voices being discussed. Voice hearing awareness should be increased amongst young people, the public and care services. To support earlier disclosure measures need to increase skill amongst those likely to be disclosed to.

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“…However, higher self esteem was also associated with compulsory admission, which is considered a poor outcome indicator, and this reflects the association between higher self esteem and the presence of manic and disorganization symptoms. Furthermore, we found that a more external LoC is associated with an insidious mode of onset and a longer DUP, indicators of poor outcome in schizophrenia (Compton et al, 2008;Ucok and Ergul, 2014). An external LoC may reflect an impaired ability to recognize psychotic experiences as one's own and as symptoms of a disease, and thus negatively affect help-seeking behaviors (Levenson, 1973;Schmidt et al, 2014).…”

Section: Discussionmentioning

confidence: 93%

Self esteem and self agency in first episode psychosis: Ethnic variation and relationship with clinical presentation

Ciufolini

Morgan

et al. 2015

Psychiatry Research

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Mode of onset of psychosis and family involvement in help-seeking as determinants of duration of untreated psychosis

Abstract: While mode of onset is a reliable illness-related determinant of DUP, further research is needed on the complex ways in which family-related variables influence DUP.

Cited by 86 publications

References 15 publications

The period of untreated psychosis before treatment initiation:

The period of untreated psychosis before treatment initiation:

“That little doorway where I could suddenly start shouting out”: Barriers and enablers to the disclosure of distressing voices

Self esteem and self agency in first episode psychosis: Ethnic variation and relationship with clinical presentation

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