Missed opportunities in surveillance and screening systems to detect developmental delay: A developing country perspective

Aly, Zarmeneh; Taj, Fawad; Ibrahim, Shahnaz

doi:10.1016/j.braindev.2009.06.004

Cited by 30 publications

(28 citation statements)

References 36 publications

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“…In the present study the frequency of NDIs is observed 8.5% where males are more affected than females. Almost similar observation was also reported by a collaborative study where disability had been found as 7% and the frequency was also slightly higher in boys than girls 3 . Another community based study has found at risk for NDIs is 17% which seems much higher than the present study 5 .…”

Section: Discussionsupporting

confidence: 76%

“…Early identification can remedy the problem of some children; limit the effect of the disability and prevent the development of secondary disabilities in many children. Many children with clinically identifiable developmental problems present late for medical help due to low rate of early recognition 3 . Prevalence of childhood disability was reported 15.2% in Jamaica, 14.7% in Pakistan and 8.2% in Bangladesh 4 .…”

Section: Introductionmentioning

confidence: 99%

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Screening for Neurodevelopmental Impairments among less than 2 Years Old Children in a Tertiary Care Hospital in Dhaka city

Ara

Rahman

Khan

et al. 2017

J. Natl Inst. Neurosci Bangladesh

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Background: Neurodevelopmental impairment is an important issue in the context of normal growth of the children. Objective: The purpose of the present study was to find out the magnitude of neurodevelopmental impairments (NDIs) in young children in a tertiary care hospital Methodology: This cross sectional study was conducted in the Department of Paediatrics at Dhaka Medical College Hospital (DMCH) from January 2010 to June 2010 for a period of six months. All children with the age of 0 to 2 years irrespective of sex attended at the study place were selected as study population. Children getting developmental therapy, physiotherapy and anticonvulsant or muscle relaxant were excluded from this study. Development Screening Questionnaire (DSQ) was administered to mothers of children from birth to less than two years of age to assess their child's neurodevelopment. Then again neurodevelopmental assessment was done using a validated Rapid Neurodevelopmental Assessment (RNDA) method of evaluations of all children with positive screening results. RNDA was administered to identify the type of impairments and grades of severity. Items are arranged under the developmental parameters like gross motor, fine motor, vision, hearing, speech, cognition, behavior, and seizures for all age groups and for the age 0 to 1 month, additional primitive reflexes are examined along with other parameters. Result: Among 234 cases NDIs positive was found in 20(8.5%) cases. Among 20 children 16 (80%) were affected by cognitive impairment, 12 (60%) of each were affected by gross motor and behavioral impairment; 11 (55%) were affected by fine motor, 10(50%) speech, 8(40%) hearing, 7 (35%) visual impairment and 7 (35%) had seizure disorder. Conclusion: In conclusion NDIs are present in the general population of the Bangladesh with a very significant rate of which cognition is the most frequently involved and affected domain. [Journal of National Institute of Neurosciences Bangladesh, 2015;1(2): 57-61]

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Section: Discussionsupporting

confidence: 76%

Section: Introductionmentioning

confidence: 99%

Screening for Neurodevelopmental Impairments among less than 2 Years Old Children in a Tertiary Care Hospital in Dhaka city

Ara

Rahman

Khan

et al. 2017

J. Natl Inst. Neurosci Bangladesh

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“…It also improves parent-pediatrician communication [8] and assists recall of detailed development information during well baby visits [9]. These days, economic constraints shorten healthcare wellness visits in developed countries [9], and in developing countries a large portion of parents have poor access to health services [10]. Thus, providing convenient tools to conduct first-level screening is globally advantageous.…”

Section: Introductionmentioning

confidence: 99%

Tracking development with Baby CROINC: The interplay of parent experience, usage, and technology approach (Preprint)

Ben‐Sasson¹,

Ben–Sasson²,

Jacobs³

et al. 2018

Preprint

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Background: To lower barriers to developmental screening, we designed Baby CROINC (CROwd INtelligence Curation), a digital platform to help parents track and assess their children's development through crowd wisdom. Objectives: To understand users' experiences using Baby CROINC in relation to users' technological competence and attitudes, while considering the influence of their children's presented developmental evaluations and parents' actual use of the system. Methods: Mothers of 260 children (M age= 17.6 months, SD=13.7) used Baby CROINC for two weeks. They entered developmental milestones on their children's developmental diary timeline and received statistical developmental percentile reports. Mothers then completed Usability and Technology Profile Questionnaires. Results: Mothers' experiences of the Baby CROINC system usability were associated with their attitudes toward solving technological problems, mediated by frequency of engagement in Internet activities. Mothers with a proactive approach toward solving technology problems, engage in a wide range of Internet activities, and/or view the Internet as integral to their lives had a better experience with Baby CROINC than mothers who did not. The system's perceived usability was not associated with the crowd-based child developmental percentiles or quantity of mothers' usage of the system. Conclusions: Parent's user experiences correlate with their technology competence and problem solving attitude but is not correlated with their child's developmental status. Developmental screening platforms need to solve the tension between requiring active engagement and encouraging proactive parenting.

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“…If support is provided early in a child's life, it may negate or minimize the negative effect of a disability on the child's development [4][5][6] . Early intervention positively impacts children's development, behaviour and school performance 7 , lessening the burden on the child, family and society 8 . It is estimated that the national prevalence of moderate to severe disability in South Africa is between 5% and 6% 9 .…”

Section: Introductionmentioning

confidence: 99%

“…It is estimated that the national prevalence of moderate to severe disability in South Africa is between 5% and 6% 9 . Although the average age of identification of children with developmental delays in South Africa is not available, evidence suggests that even in developed countries, less than half of the eligible children are identified before entering school 8 .…”

Section: Introductionmentioning

confidence: 99%

Developmental screening: predictors of follow-up adherence in primary health care

Schoeman¹,

Swanepoel²,

Linde³

2017

Afr H. Sci.

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Background: The importance of early identification for infants and young children with developmental delays is well established. Poor follow-up on referrals, however, undermines the effectiveness of early intervention programmes. Objectives: To identify factors, including text message reminders, that influence follow-up adherence for early intervention after developmental screening in primary health care. A secondary objective surveyed reasons for follow-up default. Methods: The PEDS tools were used to screen 247 high-risk children. A risk assessment questionnaire was completed with caregivers whose children were referred for speech-language and/or occupational therapy (n=106, 43%). A quasi-experimental correlational study was employed to identify risk factors for defaulting on appointments. A thematic analysis of telephonic interviews was also employed to determine reasons for follow-up defaults. Results: Follow-up adherence was 17%. Participants who were never married, divorced or widowed were 2.88 times more likely to attend a follow-up appointment than those who were married or living together (95%, CI 0.97-8.63). Text message reminders did not improve follow-up. More than half (58%) of participants who defaulted on appontments could be reached for telephonic interviews. Interviews showed that 87% of participants were unconcerned about their child's development. Other reasons for defaulting were employment, logistical issues, other responsibilities and forgetfulness. Conclusion: Follow-up adherence for early intervention services following a positive primary health care screen was poor. Increased awareness and education regarding the importance of development for educational success is needed.

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Missed opportunities in surveillance and screening systems to detect developmental delay: A developing country perspective

Cited by 30 publications

References 36 publications

Screening for Neurodevelopmental Impairments among less than 2 Years Old Children in a Tertiary Care Hospital in Dhaka city

Screening for Neurodevelopmental Impairments among less than 2 Years Old Children in a Tertiary Care Hospital in Dhaka city

Tracking development with Baby CROINC: The interplay of parent experience, usage, and technology approach (Preprint)

Developmental screening: predictors of follow-up adherence in primary health care

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