Mismatches between health service delivery and community expectations in the provision of secondary prophylaxis for rheumatic fever in New Zealand

Anderson, Anneka; Peat, Briar; Ryland, Janine; Ofanoa, Malakai; Burgess, Hannah; Malungahu, Gemma; Wade, Julie; Spray, Julie; Leversha, Alison

doi:10.1111/1753-6405.12890

Cited by 20 publications

(75 citation statements)

References 13 publications

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“…Cultural safety analysis acknowledges patient lives’ complexities and reflects on institutional inequities, applies quality improvement to services, and gives insight to interpersonal and professional conduct. 10 , 52 Meanwhile, for some disparities, robust public health evidence, cultural safety steps and pathways are emerging. Future applied research might well explore the outcomes of their application.…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

School-based Streptococcal A Sore-throat Treatment Programs and Acute Rheumatic Fever Amongst Indigenous Māori: A Retrospective Cohort Study

Walsh

Innes-Smith

Wright³

et al. 2020

Pediatric Infectious Disease Journal

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Section: Discussionmentioning

confidence: 99%

“…Strategies to improve access include increasing Māori health provision of services, mainstream improvements, and waiving general practice (GP) primary care fees for children 6–13 years in 2015. 7 – 10 …”

mentioning

confidence: 99%

School-based Streptococcal A Sore-throat Treatment Programs and Acute Rheumatic Fever Amongst Indigenous Māori: A Retrospective Cohort Study

Walsh

Innes-Smith

Wright³

et al. 2020

Pediatric Infectious Disease Journal

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“…Having a large number of people in the house was described as causing hunger [9,25], and was equated with children getting sick, and feeling judged or "spied on" by healthcare providers for not meeting Western expectations in house standards [27]. Greater emphasis was placed on the impacts of housing on lived experience in the New Zealand literature and included impacts of family issues, parents being incarcerated, children and adolescents being in foster care and needing to draw on whānau (Maori extended family/community of families) support [37][38][39].…”

Section: Lived Realities Of Children Adults and Families Affected Bymentioning

confidence: 99%

Voices behind the Statistics: A Systematic Literature Review of the Lived Experience of Rheumatic Heart Disease

Haynes,

Mitchell,

Enkel

et al. 2020

IJERPH

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In Australia, Aboriginal children almost entirely bear the burden of acute rheumatic fever (ARF) which often leads to rheumatic heart disease (RHD), a significant marker of inequity in Indigenous and non-Indigenous health experiences. Efforts to eradicate RHD have been unsuccessful partly due to lack of attention to voices, opinions and understandings of the people behind the statistics. This systematic review presents a critical, interpretive analysis of publications that include lived experiences of RHD. The review approach was strengths-based, informed by privileging Indigenous knowledges, perspectives and experiences, and drawing on Postcolonialism and Critical Race Theory. Fifteen publications were analysed. Nine themes were organised into three domains which interact synergistically: sociological, disease specific and health service factors. A secondary sociolinguistic analysis of quotes within the publications articulated the combined impact of these factors as ‘collective trauma’. Paucity of qualitative literature and a strong biomedical focus in the dominant narratives regarding RHD limited the findings from the reviewed publications. Noteworthy omissions included: experiences of children/adolescents; evidence of Indigenous priorities and perspectives for healthcare; discussions of power; recognition of the centrality of Indigenous knowledges and strengths; and lack of critical reflection on impacts of a dominant biomedical approach to healthcare. Privileging a biomedical approach alone is to continue colonising Indigenous healthcare.

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“…[10][11][12][13] Misalignments between health services and Pacific and Māori expectations of care have been identified as key barriers to rheumatic fever prevention and management in New Zealand. 5,16 Although rates of…”

Section: Assessment Of the Problemmentioning

confidence: 99%

“…3 Māori and Pacific Peoples are disproportionately affected compared to non-Māori or non-Pacific, a disparity linked to racism, overcrowding, deprivation, increased incidence of group A streptococcus, inadequate health professional awareness, low health literacy and differing opportunities for effective health care. [5][6][7][8][9] Nationally, rates of first hospitalisation for rheumatic fever in 2018 show that although there has been a reduction for Māori (12.4 per 100,000 in 2009 to 8.7 per 100,000 in 2018), Pacific rates continued to increase (24.5 per 100,000 in 2009 to 31.6 per 100,000 in 2018). 10 School-based throat swabbing services were a key element of the Ministry of Health's rheumatic fever prevention programme that aimed to reduce rates by two-thirds by 2017.…”

Section: Introductionmentioning

confidence: 99%

Pacific Fono: a community-based initiative to improve rheumatic fever service delivery for Pacific Peoples in South Auckland

Anderson¹,

Brown

Wheeler

et al. 2020

J Prim Health Care

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BACKGROUND AND CONTEXTRheumatic fever inequitably affects Māori and Pacific children in New Zealand. School-based throat swabbing services, such as the South Auckland Mana Kidz programme, are a key element of rheumatic fever prevention interventions. ASSESSMENT OF THE PROBLEMCounties Manukau has the highest national rates of rheumatic fever (4.7 per 100,000 for first recorded rates). Given these disparities, Mana Kidz undertook an exploratory, community-based initiative to improve its service delivery for Pacific Peoples. RESULTSMana Kidz held a Pacific Leaders’ Fono (meeting) to discuss initiatives to improve rheumatic fever outcomes in South Auckland focused around challenges and solutions for addressing rheumatic fever, effective engagement strategies and leadership qualities needed to drive initiatives. Oral and written responses from 66 attendees were collected and thematically analysed. Four key themes were identified around challenges and solutions for rheumatic fever: social determinants of health; cultural responsiveness; health system challenges; and education, promotion and literacy. Three effective engagement strategies were identified: by Pacific for Pacific; developing a rheumatic fever campaign; improving health services. Three key leadership attributes were identified: culturally responsive leaders; having specific expertise and skills; youth-driven leadership. STRATEGIES FOR IMPROVEMENTMana Kidz has now created Pacific leadership roles in rheumatic fever governance groups, promotes Pacific workforce development and endorses Pacific-led initiatives and partnerships. LESSONSRecognising the value of critical reflection and the importance of good governance and collaborative, right-based partnerships in health services.

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Mismatches between health service delivery and community expectations in the provision of secondary prophylaxis for rheumatic fever in New Zealand

Cited by 20 publications

References 13 publications

School-based Streptococcal A Sore-throat Treatment Programs and Acute Rheumatic Fever Amongst Indigenous Māori: A Retrospective Cohort Study

School-based Streptococcal A Sore-throat Treatment Programs and Acute Rheumatic Fever Amongst Indigenous Māori: A Retrospective Cohort Study

Voices behind the Statistics: A Systematic Literature Review of the Lived Experience of Rheumatic Heart Disease

Pacific Fono: a community-based initiative to improve rheumatic fever service delivery for Pacific Peoples in South Auckland

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