Minority ethnicity patient satisfaction and experience: results of the National Cancer Patient Experience Survey in England

Abstract

ObjectivesThis study sought to explore the differential patient satisfaction reported by patients with cancer who are from ethnic minority backgrounds, examining patient-reported experience of interacting with medical and nursing staff.SettingAs a secondary analysis, we collated data collected over two consecutive annual rounds of the National Cancer Patient Experience Survey (NCPES) from September 2012 to November 2013.ParticipantsThere were 138 878 responses from 155 hospital trusts across the National Health Service in England, representing a response rate of 63.9% based on the total identified cohort of patients receiving cancer care over those 2 years.OutcomesWe used the results of the annual survey, which sought to assess overall patient satisfaction along with patient experience of interacting with clinical nurse specialists, hospital doctors and ward nurses.ResultsEthnic minority patients reported lower satisfaction and less positive experiences of care overall. While some of this difference appeared related to demographic and socioeconomic variation, ethnic minority patients remained less positive than those in the White British group, after statistical adjustment. Ethnic minority patients also reported lower confidence in, and less understanding of, healthcare professionals, including clinical nurse specialists, doctors and ward nurses.ConclusionsGiven the diversity of the British population, as well as the clustering of ethnic minority patients in certain urban areas, a better understanding of the expectations and additional needs of ethnic minority patients is required to improve their experience of and satisfaction with cancer care.

“Hard to reach, but not out of reach”: Barriers and facilitators to recruiting Black African and Black Caribbean men with prostate cancer and their partners into qualitative research

“…The National Institute for Health and Care Excellence (NICE, ) recommends the provision of psychosocial interventions to complement clinical aids in supporting men after CaP treatment. Given the existing ethnic diversity of the UK population (Office for National Statistics [ONS], ), cultural disparities in CaP experiences and support needs as influenced by their specific socio‐cultural context should be considered when developing psychosocial interventions for men with CaP and their partners (Hosseinpoor, Williams, Itani, & Chatterji, ; Marmot et al, ; Pinder, Ferguson, & Moller, ). Qualitative researchers in particular, have a role in helping to engage under‐studied BA and BC groups in in‐depth research to inform the provision of culturally sensitive psychosocial support for them after CaP treatment.…”

Life after prostate cancer: A systematic literature review and thematic synthesis of the post-treatment experiences of Black African and Black Caribbean men

“…These include: genetic–environmental interactions (Ben‐Shlomo et al., ; Chornokur, Dalton, Borysova, & Kumar, ; Odedina et al., ; Rebbeck et al., ), knowledge of cancer and cancer symptoms (Pedersen, Armes, & Ream, ; Rajbabu et al., ), cultural barriers including the role of masculinity (being the breadwinner, being ‘tough’, demonstrating sexual prowess and virility), fatalistic beliefs, superstitious beliefs, loss of sexuality, and stigma (Mulugeta, ; Pedersen et al., ). Available evidence also highlights, that Black and Minority Ethnic (BME) groups report poor experiences of healthcare due to a lack of cultural sensitivity in healthcare delivery (Das‐Munshi, Leavey, Stansfeld, & Prince, ; Pinder, Ferguson, & Moller, ). As a consequence, a combination of factors contributes to delays in seeking help for prostate cancer (Pedersen et al., ), resulting in late diagnosis, poorer post‐treatment outcomes and higher mortality rates among BA and BC populations (Jones & Chinegwundoh, ; Rebbeck et al., ).…”

Drivers of Satisfaction With Care for Patients With Lupus

“…SLE has a higher prevalence in ethnic minorities and demonstrates worse outcomes. It is difficult to distinguish whether this discrepancy exists because of variability in the lupus phenotype among different ethnicities versus a consequence of different health behaviors, communication barriers , access to care, and socioeconomic status. In this study, we did not find an association between SC and education, which was used as a surrogate for socioeconomic status.…”